This group is for parents, family members and friends of those affected by CDKL5 disorder in various forms including Atypical Rett syndrome, West syndrome, Infantile spasms and Autism. A place for them to share their stories and experiences and to offer support to each other. I have found this site to be a huge part of mine and my families life and the information and support available here has helped me enormously. More family support can be found at our bust Facebook group https://www.facebook.com/groups/CDKL5/

CDKL5 gene mutations are still being researched therefore information is limited about this condition so sharing our experiences is sure to broaden our knowledge. For more information about CDKL5 and research visit www.CDKL5.com
Look forward to hearing your stories and chatting soon!