Diamond Blackfan Anaemia (DBA) is a blood condition caused by a failure within the bone marrow. It is characterized by an inability to produce red blood cells (necessary to transport oxygen around the body). The condition is extremely rare, affecting approximately 125 people in the UK.
DBA-UK is the UK based parent support group for the condition and a registered charity. The support group is made up of parents, family and friends of patients with DBA, along with the patients themselves. The charity aims to provide support for these families by bringing them together to provide mutual help. Sometimes just talking to someone who understands can be a relief in itself.
This yahoo group is the officail email list for people with an interest in DBA in the UK.