Hi Rachel
The world welcome your little boy and congratulations. I hope someone is able to respond to your request and indeed it helps him throughout his growth. Probably your physiotherapist can also suggest about his fingers and legs shaped to prevent bending. Do start giving those physio exercises soon?
All the very best wishes and enjoy time with him.
Kim Chai
From: happyhouseachon <hahn1@...>
To: achondroplasiauk@...
Sent: Sunday, 12 February 2012, 23:37
Subject: [achondroplasiauk] Baby equipment
Hi everyone,
I've just signed up to the Achon UK site last week. Great this network exists so don't feel so alone. Medical advice from specialists seems to be easier to obtain than the emotional support from others experiencing the same condition.
We have a beautiful little boy (3.5 months old) who was diagnosed pre-natally with the condition. Slowly coming to terms with it and can start to reach out to others now.
Would very much appreciate any suggestions on:
1) baby seat (rocker) that provides good level of back support - I've spotted a number of other babies using them in the lovely photos
2) buggies that provide adequate back support
Guidelines from specialists are very useful but they don't seem to go as far as making recommedations on equipment !
Kind regards
Rachel
I've just signed up to the Achon UK site last week. Great this network exists so don't feel so alone. Medical advice from specialists seems to be easier to obtain than the emotional support from others experiencing the same condition.
We have a beautiful little boy (3.5 months old) who was diagnosed pre-natally with the condition. Slowly coming to terms with it and can start to reach out to others now.
Would very much appreciate any suggestions on:
1) baby seat (rocker) that provides good level of back support - I've spotted a number of other babies using them in the lovely photos
2) buggies that provide adequate back support
Guidelines from specialists are very useful but they don't seem to go as far as making recommedations on equipment !
Kind regards
Rachel
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