Living with Achondroplasia Aug 4 2005 By Ivy Broadhead, The Evening Chronicle What's it like being a little person in a world that's designed for the tall?...
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Sarah
sarjfin@...
Oct 25, 2008 2:17 am
Hello, I am a female who is an achondroplasic of 34 years old. I have difficulty finding shoes that are not childish. Like I am a size 12/13 junior. Do you...
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saj1971sajida
sajida1971@...
Oct 25, 2008 11:35 am
Ermmm...how do i log into the group..there is an option to join, but cant find the log in. thanks...
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wwajc
rogerandnicola@...
Oct 25, 2008 2:36 pm
I'm thinking of getting BUPA cover for my family including my baby who is an achon. I'm only hesitant because I know they won't cover for pre- existing...
Hi Sarah I have the same problem but I tend to use ebay as they always have great shoes on there that are suitale for us adults with smaller feet Hope this...
I am looking for information on reference centres and/or achondroplacia specialists in the UK. I would be particularly grateful for advise on neurosurgents...
have been asked to let people know about the new series of "How to Look Good Naked" below are the details regards Rob Do you have a disability? ... appearance...
Hi just thought I'd give a quick update on Connor and would like a bit of advice if at all possible. Connor is having a scan on his liver on Friday as his pead...
Dear Ambience, I can't really help except i am an achondroplast & have been having general anesetics since the year plonk & i've been fine (i think mum's the...
Hi the anaesthetist who sedates connor will put your mind at rest , amy had one a few months ago , explained about the reflux and he said it is fine , the mri...
Hi all I have a 10month old baby and have been applying for disability living allowance and we have been refused. Does anyone have any advice or suggestions?...
Hi Susan and Christopher, I applied for DLA and surprisingly received the middle band of DLA. THe only advice i can give you is blind them with science in your...
Hello, I have a 4 months old boy with achondroplasia. We are from Romania. I would like to know if you can help me regarding treatment of this disease. I know...
what an inspiration to us all- well done girl! How are you all? i have been meaning to send out a message for ages and am only now getting round to it. My...
Hello B, To answer your questions regarding treatment- yes you are right there is none - there are though a few rules which i will post seperately to you...
Thank you amykaren and birdtown for your replies :) Connor was supposed to go for his MRI scan today but we had to cancel it as he has a chest infection. It...
... We are in the process of completing our DLA form so would be most grateful if you could send on any information you feel would help. Cheers Amanda ... of ...
Hi Susan and Richard we ended up at tribunal today and got middle rate , ours has taken ages , started in June , a doctor, Benefits advisor and a memeber from...
... We only lower rate for Connor, I did ask them to look at their decision again which they did do, but they didn't change their minds!! Connor turned 1 on...
Cheers , i know , finally !!! They asked why Amy couldnt walk down a flight of stairs , or why she couldnt climb onto a sofa or normal sized chair so we stood...
Definitely reapply immediately , i got tons of information before our tribunal , you cant let them off with it , i originally applied when amy was 13 months...
I took fern to her first swimming lessons yesterday and it didnt go quite as smoothly as hoped. She isnt 3 until next month but the swim school said they were...
Hi Sharon , we took Amy to hydrotherapy and she was great in the water , again the instructors or therapists are inexperienced with Achon , i think sometimes...
