You can set the sort order of messages? Just click on the link in the date column. Your preferences will be remembered, so you don't have to do it again when you return.
My daughter is 16 weeks old and was diagnosed with achondroplasia following a skeletal x-ray a month ago (although I had late scans when pregnant and we were...
Hi Rocana Do not despair? You are in good hands at Great Ormond, they usually refer to specialist eventhough the one is full. At this age they usually do not...
Hello Rocana, Having a baby with achondroplasia can be a worry in the beginning and it is important to talk to competent and understanding doctors. I am the...
Hi rocana, I have a six yr old daughter with achondroplasia. My consultant also said the same thing luckily we still had blood tests done to confirm it. Tia...
Hi all My daughter Anna has just been diagnosed with Achondroplasia following full body x-ray and a blood test for a DNA test confirmation has been taken. The...
Hello Glyn, Welcome to this group. The first year or so can be a very worrying time and it can be very frustrating if you don't find the right help straight...
Hi Glyn At her age, she is fine but paediatrician will check her swelling of her head on the suture line to get it close. However may cause pressure on her...
Hi Glyn, Congratulations on the birth of your little girl. Â My son, Bruce has just turned 5 and it only seems like yesterday that I was writing for advice,...
Hi everyone, My name is charlotte & I have a six year old daughter named tia with achon. I have 3 other children who are all average height. I have started a...
Hi Mo, Interested to hear more about this new group LPUK, did you meet as suggested. How was it ? PS. We live in Northamptonshire. regards Angela (Mum to 10...
Hi everyone, I've just signed up to the Achon UK site last week. Great this network exists so don't feel so alone. Medical advice from specialists seems to be...
Hi Rachel The world welcome your little boy and congratulations. I hope someone is able to respond to your request and indeed it helps him throughout his...
Hi Rachel, Congratualtions on the birth of your son ands welcome to the forums! Our Daughter Olivia is now 14 months old, and the forums here have been really...
Hi Angela, I'm happy to report that the weekend went extremely well. It was very well attended with over 130 people there - a mix of AH parents and siblings,...
Hi everyone I have a 17 years old son who needs operation on his spine. He is always active in building his body and will never miss going on any outings. Is...
Hi Rocana, This sounds really frustrating, and I'm not sure I can help directly. Do you have somebody coordinating your care at GOSH? It wouldn't necessarily...
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Pam Dalby
Pam.Dalby@...
Feb 15, 2012 1:28 pm
Dear Sir or Madam, The NHS Yorkshire Regional Genetics Service based in Leeds Teaching Hospitals NHS Trust is updating its website to provide more information...
Hi Pam Dalby That is fine to get information from my Leon, 17yrs old, with achondroplasia. Would like to help as much as I can to help others of similar...
Hi Rachel, Welcome to the group. I'm a mum of three children and Monty's diagnosis of achon came as a complete surprise when first mentioned at a baby check...
Hi Chris Thanks very much for your response. I have done some research and Guys and Thomas have an achondroplasia clinic, so I have asked for Talia to be...
1048
Juliedarwen
cavvieluvva@...
Feb 20, 2012 1:42 pm
hi , my son is 3yrs old,he was born tiny but that wasnt unusual as im only 4ft 8inches myself,but he has only recently been diagnosed with achondroplasia,i...
Hi Julie As he has shown minor symptoms, just continue as normally but monitor his posture. Constantly remind him to sit upright, shoes, feet resting on the...
1050
Juliedarwen
cavvieluvva@...
Feb 20, 2012 9:45 pm
thankyou kim for quick response,the advice on posture ,i will take on board as our doctor really only mentioned to limit his jumping to protect his spine, i...
Hi Julie Lengthening is not necessary. Leon was given the option but reject it. Try your best to support his spine at this age but equally get advise from...
1052
Valerie
simsvalerie@...
Feb 25, 2012 4:33 pm
Michelle Troughton Webb has asked me to post on here the following: There will be a Family Social, with donations going to RGA on Saturday 7th July at the...
Hi, Thank you to everyone for the kind tips and advice re. equipment much appreciated and v. helpful. Josh has very bad cold at the moment... Best wishes, ...
Hello, We have a 3.5 year old son with Achondroplasia. We want to contribute to our community so we have started an effort to raise funds to support dwarfism. ...
