Hi Rachel The world welcome your little boy and congratulations. I hope someone is able to respond to your request and indeed it helps him throughout his...
1038
happyhouseachon
Feb 13, 2012 9:21 am
Hi everyone, I've just signed up to the Achon UK site last week. Great this network exists so don't feel so alone. Medical advice from specialists seems to be...
1037
angelaghavami
Feb 11, 2012 9:35 pm
Hi Mo, Interested to hear more about this new group LPUK, did you meet as suggested. How was it ? PS. We live in Northamptonshire. regards Angela (Mum to 10...
1036
charley3bb
Feb 10, 2012 11:49 am
Hi everyone, My name is charlotte & I have a six year old daughter named tia with achon. I have 3 other children who are all average height. I have started a...
1035
maureen carnie
maud7ed
Feb 8, 2012 9:43 pm
Hi Glyn, Congratulations on the birth of your little girl. Â My son, Bruce has just turned 5 and it only seems like yesterday that I was writing for advice,...
1034
Kim Chai
kimtan57
Feb 8, 2012 9:06 pm
Hi Glyn At her age, she is fine but paediatrician will check her swelling of her head on the suture line to get it close. However may cause pressure on her...
1033
A
agrier923...
Feb 8, 2012 5:28 pm
Hello Glyn, Welcome to this group. The first year or so can be a very worrying time and it can be very frustrating if you don't find the right help straight...
1032
GLYN
glyndrury...
Feb 8, 2012 4:03 pm
Hi all My daughter Anna has just been diagnosed with Achondroplasia following full body x-ray and a blood test for a DNA test confirmation has been taken. The...
1031
rocanahindhaugh
Feb 7, 2012 10:55 am
Thank you everyone for your kind words - the amazing support here really is overwhelming! x...
1030
Charlotte bullock
charley3bb
Feb 1, 2012 3:42 pm
Hi rocana, I have a six yr old daughter with achondroplasia. My consultant also said the same thing luckily we still had blood tests done to confirm it. Tia...
1029
A
agrier923...
Feb 1, 2012 2:10 pm
Hello Rocana, Having a baby with achondroplasia can be a worry in the beginning and it is important to talk to competent and understanding doctors. I am the...
1028
Kim Chai
kimtan57
Feb 1, 2012 1:15 pm
Hi Rocana Do not despair? You are in good hands at Great Ormond, they usually refer to specialist eventhough the one is full. At this age they usually do not...
1027
vanessahoyle89
Feb 1, 2012 12:47 pm
Hi was wondering if I could get an opinion re my 14 week old daughter Alexis?...
1026
rocanahindhaugh
Feb 1, 2012 12:47 pm
My daughter is 16 weeks old and was diagnosed with achondroplasia following a skeletal x-ray a month ago (although I had late scans when pregnant and we were...
1025
Susan
sustrangewinter
Jan 31, 2012 9:19 pm
Thanks to everyone who gave us some early days advice for Ted. Things seem to be going OK as he is coming up for 4 months. Smiling, laughing and burbling away...
1024
Kim
kimtan57@...
Jan 14, 2012 1:23 pm
I have seen a documentary about similar situation when she had a car converted to her reachable length and when for a driving test in Wales. I think is BBC2...
1023
amerhh
Jan 9, 2012 8:52 am
Below is a youtube link to view BioMarin's presentations about a new therapy (drug) that will hopefully eliminate the need for Foraman Magnum compression...
1022
shed_boy_bob
Jan 1, 2012 9:52 pm
Hi Su, Our boy Thomas is 10 months old, with Achondroplasia. The link Veronique supplied contains growth charts and a lot of other information to go in your...
1021
Kristina Canipa
kristinacanipa
Dec 28, 2011 6:20 pm
Hi Vicky, Lovely reading about your wonderful little boy. My name is Kristy and I have 3 children Emily(11), Lucy (9) both average height and Finley 14 Months...
1020
vixskff120108
jordan_skff@...
Dec 11, 2011 10:58 am
Hi, I have the most amazing lil boy (Joe) who will be 4 in Jan. During my pergnancy with Joe, a problem with the growth of his long bones was found and since...
1019
Rob M0TFO
robpegsuk
Dec 5, 2011 1:21 pm
you need to unsubscribe via the user control panel....
1018
suttong42
Dec 5, 2011 12:50 pm
unsubscribe thanks...
1017
A
agrier923...
Nov 27, 2011 12:04 am
Hello Abby, From your message I got the feeling that you have a really wonderful daughter. Well done for raising her so well. I don't have children of that age...
1016
aecastro58
mikekhs99@...
Nov 26, 2011 4:28 pm
I am a single mother and have raised both of my kids with the help of my mother. my son was born average size and 11mo later my daughter was born breach...
1015
Rachele
rachelebloor...
Nov 25, 2011 7:15 am
Well yesterday we went to Alderhay to see a Ms Burns, consultant for neurological science, very nice lady. Archie had been referred to her for a CT scan,...
1014
s.snedon@...
sharon.sneddon
Nov 21, 2011 4:57 pm
hi sue there is a document about health supervision in achondroplasia which is available on the LPA (little people of america) website and the RGA (restricted ...
1013
A
agrier923...
Nov 21, 2011 4:35 pm
Hello Su, The first couple of months can be very overwhelming. When my daughter Terra was born I worried a lot. She is 4 now and nowadays I have great faith in...
1012
Susan
sustrangewinter
Nov 21, 2011 4:13 pm
Hi We have very recently had a confirmed diagnosis of achondroplasia for our 3rd son, Ted, who is coming up for 8 weeks old. He has had no scans, tests or...
1011
Joan Scott
joanh.scott...
Nov 19, 2011 11:33 am
Hi Sarah  Do you have a Poratge scheme in your area?  I'm not sure whether you would qualify but if you do they could perhaps help with your problem. A...
1010
Rachele
rachelebloor...
Nov 19, 2011 9:31 am
I don't know if these will help but while I was out and about yesterday, I noticed in Next they had some jeans with braces attached, they may help with Jack to...
