You can set the sort order of messages? Just click on the link in the date column. Your preferences will be remembered, so you don't have to do it again when you return.
hi leanne we got the care part of dla for jamie when he was three months the mobility part they do not get till they are three yes it is worth fighting for...
1069
Anna
annameeres
Mar 11, 2012 7:19 pm
Hi Tracey, Probably worth chasing up your application, then if they are waiting for anything at least you will know and may be able to chase from your end. I...
1070
baileyleanne93
Mar 11, 2012 10:03 pm
Hi, me again :-) there was another thing I was wondering if anyone had any advice on. We have just stated weaning Abi and at the minute she is being fed in her...
1071
baileyleanne93
Mar 11, 2012 10:04 pm
Hi all, thankyou for your replies. I think I'll wait another few months and re-apply. The form is so hard to fill in, and it's horrible writing all the...
1072
baileyleanne93
Mar 13, 2012 12:03 pm
Hi Julie, I wouldn't feel guilty atall. Just after I had my baby girl the midwife thought something wasn,t quite right and refered her to a consultant, and she...
1073
Karen Mchale
karen.lambe
Mar 13, 2012 12:11 pm
I think you should pat yourself on the back, you have obviously treated him the same as you would any child and he is fine. It shows a lot of the stuff on the...
1075
happyhouseachon
Mar 26, 2012 9:58 pm
Hi everyone, Our geneticist at Great Ormond Street provided us with a booklet of information and growth charts for our baby son called 'Children with...
1076
s.snedon@...
sharon.sneddon
Mar 28, 2012 9:06 pm
Hi Rachael it is recommended in the supervision guidelines that an mri should be carried to check the foreamen magnum. from what i read it seems all...
1077
happyhouseachon
Mar 28, 2012 10:52 pm
Hi Sharon, Really appreciate you sharing your experiences. I will let you know how we get on. Interesting to see how they approach it in the US. They seem...
1078
s.snedon@...
sharon.sneddon
Mar 29, 2012 8:59 pm
Hi Rachael Fern is 6. she originally had a diagnosis of achon but after genetic tests this changed to hypochondroplasia when she was 4. they are very similar...
1079
Karen Mchale
karen.lambe
Apr 2, 2012 10:06 am
Hi all, Dylan is 17 months with achon and hasn't had an MRI, in fact he has had nothing done medically. Sometimes I feel I should do more to push for things...
1080
A
agrier923...
Apr 2, 2012 10:56 pm
Hello Rachel, My daughter Terra is almost 5 now. I think your question about how pro-active you have to be as a parent is a very good one. It is difficult to...
1081
amerhh
Apr 8, 2012 10:50 pm
You can read about the latest research on Achondroplasia at Growing Stronger http://www.growingstronger.org/blogs.html Regards Amer...
1082
natashabackhurst
natashabackh...
Apr 21, 2012 5:02 pm
My boys start school in September, can any of you give me any ideas on PE. I'm not sure if there are things I should warn them about, or thing i should advise...
1083
baileyleanne93
May 20, 2012 8:24 pm
Hi everyone, I was just wondering if someone could offer me some advice. Abi is nearly 7 months now, and because she's still not sitting yet, her head has gone...
1084
Tracey Lockwood
tracey_lockwood
May 20, 2012 8:31 pm
hi leanne, we have a g/daghter aged 3 her head stayed flatish at the back, with a bold forehead, they tend to carry a lot of fluid and so you need to be ...
1085
Rachele Bloor
rachelebloor...
May 20, 2012 8:42 pm
Hi Leanne, my son Archie had quite a flatish head at the back but he's now 2 and half and its fine, he seems to have as the neurosurgeon put it....grown into...
1086
Tracey Lockwood
tracey_lockwood
May 21, 2012 7:31 am
hi all. im in manchester, but have been thinking of having get together, to answer each others questions, but not sure if anyone would want one, ...
1087
Karen
amykaren1
May 21, 2012 10:34 am
Hi Tracey trying to send you a message on here and im having no use,all our families are in Manchester and you are welcome to come to our meet up on sunday at...
1088
baileyleanne93
May 22, 2012 6:28 pm
Hi everyone, thanyou for all your replies, they are much appreciated xx and thanks Kristy, I found that website very usefull and I am going to get the pillow...
1089
happyhouseachon
Jun 11, 2012 10:45 pm
Hi ! Is there a group that meets in London / N. London / Herts ? Josh is coming up for 8 months old and I feel ready to meet some other families / babies if...
1090
Sharon Sneddon
sharon.sneddon
Jun 12, 2012 5:50 am
Hi Rachael I'm in Kent with a 6year old who has hypo. The south east region of the dwarf sports association meet once a month in Cambridge for lunch followed...
1091
rocanahindhaugh
Jun 14, 2012 4:18 pm
Hi Rachel I have a little girl that has just turned 8 months with achondroplasia and would love to meet up with you/other families in the London area. We are...
1092
happyhouseachon
Jun 18, 2012 10:05 pm
Hi Rocana, Lovely to hear from you. Sounds like our babies are almost the same age. It would be really great to meet you and share experiences. We live in...
1093
maureen carnie
maud7ed
Jun 25, 2012 4:39 pm
http://www.aryansmarketing.com/tjgey.html...
1094
rocanahindhaugh
Jul 8, 2012 9:16 am
Hi Rachel Im sorry it has taken so long to come back to you, we have been away. It would be great to meet up, Regent's Park Cafe sounds good to me - if you...
Please may I apologise for using your site if what I am asking is not appropriate. I have a beautiful grand daughter who is now 26 months old. I suspect and...
1097
Kim Chai
kimtan57
Aug 1, 2012 12:25 pm
Hi Gabrielle An achondroplasia usually detected by peadiatrician or during scanning. I have 18 years old achondroplasia son who is a delight to my family. When...
1098
gabriellecumming@...
gabriellecum...
Aug 1, 2012 12:48 pm
Many thanks, it is of no matter whichever way. She is a delight and just as 'everything' as her brother is. From what I have read there are no problems other...
