My boys start school in September, can any of you give me any ideas on PE. I'm not sure if there are things I should warn them about, or thing i should advise...
Hi everyone, Our geneticist at Great Ormond Street provided us with a booklet of information and growth charts for our baby son called 'Children with...
hi , my son is 3yrs old,he was born tiny but that wasnt unusual as im only 4ft 8inches myself,but he has only recently been diagnosed with achondroplasia,i...
I am a little confused on this matter as when I filled out the forms, I was told that we wouldn't be able to this for Ethan's Acon till he is 5. Can I please...
Hi, me again :-) there was another thing I was wondering if anyone had any advice on. We have just stated weaning Abi and at the minute she is being fed in her...
Hi Gemma  I have a son with achon who is now 19mths old and an older son who is nearly 4 and they both get on great. I found out Chris was going to be...
Hello everyone. We have a 4 and a half month baby girl called Abi who was diagnosed with achon at a week old, thanks to the vigilance of her midwife. Abi is...
Hi All I have just received the DLA claim pack for Anna 5 1/2 months and was wondering if anyone had advice or tips regarding filling it in correctly. Our...
Hello, We have a 3.5 year old son with Achondroplasia. We want to contribute to our community so we have started an effort to raise funds to support dwarfism. ...
Hi everyone, I've just signed up to the Achon UK site last week. Great this network exists so don't feel so alone. Medical advice from specialists seems to be...
Michelle Troughton Webb has asked me to post on here the following: There will be a Family Social, with donations going to RGA on Saturday 7th July at the...
My daughter is 16 weeks old and was diagnosed with achondroplasia following a skeletal x-ray a month ago (although I had late scans when pregnant and we were...
Dear Sir or Madam, The NHS Yorkshire Regional Genetics Service based in Leeds Teaching Hospitals NHS Trust is updating its website to provide more information...
Hi all My daughter Anna has just been diagnosed with Achondroplasia following full body x-ray and a blood test for a DNA test confirmation has been taken. The...
Hi everyone, My name is charlotte & I have a six year old daughter named tia with achon. I have 3 other children who are all average height. I have started a...
Thanks to everyone who gave us some early days advice for Ted. Things seem to be going OK as he is coming up for 4 months. Smiling, laughing and burbling away...
Hi, I'm looking for a bit of advice. My sister is 16 and has achondroplasia, she is desperate to learn to drive when she turns 17. Is there any financial...
Below is a youtube link to view BioMarin's presentations about a new therapy (drug) that will hopefully eliminate the need for Foraman Magnum compression...
Hi We have very recently had a confirmed diagnosis of achondroplasia for our 3rd son, Ted, who is coming up for 8 weeks old. He has had no scans, tests or...
Hi, I have the most amazing lil boy (Joe) who will be 4 in Jan. During my pergnancy with Joe, a problem with the growth of his long bones was found and since...
I am a single mother and have raised both of my kids with the help of my mother. my son was born average size and 11mo later my daughter was born breach...
Well yesterday we went to Alderhay to see a Ms Burns, consultant for neurological science, very nice lady. Archie had been referred to her for a CT scan,...
Hi All Jack turned 3 in August, and is now fully potty trained (Yay!!). He has a problem in that he cant pull his pants and trousers down or up again, as his...
Hi Just to update you on what is going on. There is a lot going on "behind the scenes" concerning abuse on Facebook against people with dwarfism conditions....
Hi all! My 3year old, Danial, has just started nursery and the O.T and physio came round to see what they could offer etc. I was told about a fabulous charity...
As the title Suggests, we have had Archie's routine 6 monthly check up, he has grown 4cm to 80.8cm which we think is really good, the only thing they were...
Hi All, Â Hope everyone is well and has had a nice summer. Â My little lady Elowyn starts pre-school on Friday - a big day for us all, very exciting :) Â ...
