The correct link is: http://www.growingstronger.org/join-team-growing-stronger.html There was a full stop at the end of the URL Regards Amer...
1056
GLYN
glyndrury...
Mar 1, 2012 9:21 pm
Hi All I have just received the DLA claim pack for Anna 5 1/2 months and was wondering if anyone had advice or tips regarding filling it in correctly. Our...
1057
Kim Chai
kimtan57
Mar 2, 2012 1:32 pm
Hi Glyn Although this was filled by husband but I assumed is usual application and mentioned what you have to help Anna with in the house at 5 1/2 months. You...
1058
baileyleanne93
Mar 6, 2012 9:04 pm
Hello everyone. We have a 4 and a half month baby girl called Abi who was diagnosed with achon at a week old, thanks to the vigilance of her midwife. Abi is...
1059
Kim Chai
kimtan57
Mar 9, 2012 2:08 am
All achon babies are cute. They are a joy to be with and in the long run she will be famous one day. Each of them have different problems!! Like my 17+ son has...
1060
baileyleanne93
Mar 9, 2012 8:27 pm
Hi Kim, I totaolly agree! all achon babies are gorgeous, and I don't know if it's a common trait but Abi is so happy and content and full of character. I think...
1061
baileyleanne93
Mar 10, 2012 9:29 pm
Hi everyone, we had Abi's decision letter today for her disability living allowance claim, and she has been refused! I was wondering if this has happened to...
1062
Kim Chai
kimtan57
Mar 11, 2012 2:46 am
Hi there He is currently under physio which is free but going through acupuncture which is not free. We hope he will not be in great pain unless he opt to go...
1063
Karen Mchale
karen.lambe
Mar 11, 2012 3:41 pm
Hi there we live on the isle of man, Dylan was refused dal when we replied a few months ago. Dylan is 17 months and has achon. We have not appealed yet,...
1064
Tracey Lockwood
tracey_lockwood
Mar 11, 2012 4:08 pm
hi leanne. yes this is the usual thing. you will find she will have to be three before they will consider her. there are lots of schems around to give you...
1065
Anna
annameeres
Mar 11, 2012 5:50 pm
Hi Leanne, I have a little girl Elowyn, who was three in January. I applied at about six months for Dla and we were rejected, we reapplied at the age of one...
1066
Anna
annameeres
Mar 11, 2012 5:57 pm
Sorry me again. Also remember that each case is individual, as elowyn has a slight curvature of the back which now she is walking is correcting itself and she...
1067
Tracey Lockwood
tracey_lockwood
Mar 11, 2012 6:39 pm
hi we tried to get dla for gracie when she was 6months as well but they said no to us and we tried again and again  now she 3 we put in again for it and still...
1068
A Boorman
lisaatkinson79
Mar 11, 2012 7:06 pm
hi leanne we got the care part of dla for jamie when he was three months the mobility part they do not get till they are three yes it is worth fighting for...
1069
Anna
annameeres
Mar 11, 2012 7:19 pm
Hi Tracey, Probably worth chasing up your application, then if they are waiting for anything at least you will know and may be able to chase from your end. I...
1070
baileyleanne93
Mar 11, 2012 10:03 pm
Hi, me again :-) there was another thing I was wondering if anyone had any advice on. We have just stated weaning Abi and at the minute she is being fed in her...
1071
baileyleanne93
Mar 11, 2012 10:04 pm
Hi all, thankyou for your replies. I think I'll wait another few months and re-apply. The form is so hard to fill in, and it's horrible writing all the...
1072
baileyleanne93
Mar 13, 2012 12:03 pm
Hi Julie, I wouldn't feel guilty atall. Just after I had my baby girl the midwife thought something wasn,t quite right and refered her to a consultant, and she...
1073
Karen Mchale
karen.lambe
Mar 13, 2012 12:11 pm
I think you should pat yourself on the back, you have obviously treated him the same as you would any child and he is fine. It shows a lot of the stuff on the...
1075
happyhouseachon
Mar 26, 2012 9:58 pm
Hi everyone, Our geneticist at Great Ormond Street provided us with a booklet of information and growth charts for our baby son called 'Children with...
1076
s.snedon@...
sharon.sneddon
Mar 28, 2012 9:06 pm
Hi Rachael it is recommended in the supervision guidelines that an mri should be carried to check the foreamen magnum. from what i read it seems all...
1077
happyhouseachon
Mar 28, 2012 10:52 pm
Hi Sharon, Really appreciate you sharing your experiences. I will let you know how we get on. Interesting to see how they approach it in the US. They seem...
1078
s.snedon@...
sharon.sneddon
Mar 29, 2012 8:59 pm
Hi Rachael Fern is 6. she originally had a diagnosis of achon but after genetic tests this changed to hypochondroplasia when she was 4. they are very similar...
1079
Karen Mchale
karen.lambe
Apr 2, 2012 10:06 am
Hi all, Dylan is 17 months with achon and hasn't had an MRI, in fact he has had nothing done medically. Sometimes I feel I should do more to push for things...
1080
A
agrier923...
Apr 2, 2012 10:56 pm
Hello Rachel, My daughter Terra is almost 5 now. I think your question about how pro-active you have to be as a parent is a very good one. It is difficult to...
1081
amerhh
Apr 8, 2012 10:50 pm
You can read about the latest research on Achondroplasia at Growing Stronger http://www.growingstronger.org/blogs.html Regards Amer...
1082
natashabackhurst
natashabackh...
Apr 21, 2012 5:02 pm
My boys start school in September, can any of you give me any ideas on PE. I'm not sure if there are things I should warn them about, or thing i should advise...
1083
baileyleanne93
May 20, 2012 8:24 pm
Hi everyone, I was just wondering if someone could offer me some advice. Abi is nearly 7 months now, and because she's still not sitting yet, her head has gone...
1084
Tracey Lockwood
tracey_lockwood
May 20, 2012 8:31 pm
hi leanne, we have a g/daghter aged 3 her head stayed flatish at the back, with a bold forehead, they tend to carry a lot of fluid and so you need to be ...
1085
Rachele Bloor
rachelebloor...
May 20, 2012 8:42 pm
Hi Leanne, my son Archie had quite a flatish head at the back but he's now 2 and half and its fine, he seems to have as the neurosurgeon put it....grown into...
