Hi Rachel Im sorry it has taken so long to come back to you, we have been away. It would be great to meet up, Regent's Park Cafe sounds good to me - if you...
Please may I apologise for using your site if what I am asking is not appropriate. I have a beautiful grand daughter who is now 26 months old. I suspect and...
1097
Kim Chai
kimtan57
Aug 1, 2012 12:25 pm
Hi Gabrielle An achondroplasia usually detected by peadiatrician or during scanning. I have 18 years old achondroplasia son who is a delight to my family. When...
1098
gabriellecumming@...
gabriellecum...
Aug 1, 2012 12:48 pm
Many thanks, it is of no matter whichever way. She is a delight and just as 'everything' as her brother is. From what I have read there are no problems other...
1099
Sharon Sneddon
sharon.sneddon
Aug 1, 2012 9:12 pm
Hiya My understanding was that achon is often not detected antenatally before 25 weeks but bet there are exceptions! In the uk they don't do routine scans...
1100
gabriellecumming@...
gabriellecum...
Aug 1, 2012 9:26 pm
Thanks for your reply. There is a picture of a little girl in a green and purple swing which could be L. I hadn't heard of hypo before so will read up about...
1101
carolgrist@...
cazgrist
Aug 1, 2012 9:27 pm
Hi Gabrielle Just wanted to say hi, and let you know that I have a 3 year old with achondroplasia. It was never detected in any scans or after birth. It was my...
1102
gabriellecumming@...
gabriellecum...
Aug 1, 2012 9:59 pm
Thank you so very very much for this reply, it exactly mirrors my concerns. I don't want to interfere they are lovely parents and are making a brilliant job of...
1103
Karen Mchale
karen.lambe
Aug 2, 2012 8:30 pm
Oh dear you are in a difficult position. I have a beautiful 21 month old son who has achon. I started to notice things at five weeks old and had it confirmed...
1104
gabriellecumming@...
gabriellecum...
Aug 2, 2012 8:47 pm
Thank you. I think I need to say something but I am finding it hard to find the way. - Sent from my HTC on 3 - ... From: "Karen Mchale"...
1105
Rachele Bloor
rachelebloor...
Aug 2, 2012 8:49 pm
I have a nearly 3yr old Son, Archie, he has hypochondroplasia like Sharon's little girl, Fern, I was told at 37 wks that Archie was breech and to attend for an...
1106
Charlotte
charley3bb
Aug 3, 2012 7:54 am
Hi all My name is charlotte, i have four children. One of whom has achon. Tia is 7 in october & is doing extremly well. Her condition was never noticed in...
1107
Kim Chai
kimtan57
Aug 3, 2012 11:52 am
Hi CUrrently my son, 18 years old, is suffering with calves, pin and needles on heels and can't walk for more than 10 mins without resting! I suggest...
1108
Valerie
simsvalerie@...
Aug 3, 2012 1:31 pm
Kim, I think we have to be careful about advising people to have physio, every person, even though they have the same condition do not necessary have the same...
1109
Gabrielle Cumming
gabriellecum...
Aug 3, 2012 4:00 pm
Thank you for that Charlotte, I am working now on how best to talk to my son initially. People who are on this site have been so helpful. It has made a huge...
1110
Carol Grist
cazgrist
Aug 3, 2012 5:17 pm
Good luck with approaching the subject Gabrielle. If your son or daughter in law want to speak to anyone who has been in their position, I am always happy to...
1111
gabriellecumming@...
gabriellecum...
Aug 3, 2012 6:59 pm
I will let you know what happens but still very unsure of how I am going to do this. ' don't shoot the messenger' comes to mind particularly if I am wrong....
1112
amerhh
Aug 4, 2012 11:12 pm
Check out tips and ideas for school chairs, toilets, exercises etc. at http://www.growingstronger.org/parent-resources.html....
1113
amerhh
Aug 4, 2012 11:14 pm
Check out tips and ideas for school chairs, toilets, exercises etc. at http://www.growingstronger.org/parent-resources.html....
1114
Amer Haider
amerhh
Aug 6, 2012 6:07 am
Correct link http://www.growingstronger.org/parent-resources.html Regards, Amer Haider cell: 408-234-0520 Sent from mobile device. Please pardon typos and...
1115
joanh.scott@...
joanh.scott...
Aug 14, 2012 3:37 pm
Just to let everyone know that my two sons are cycling from LE to JOG to raise money for three charities, one of them being RGA. They have chosen to do this...
1116
amerhh
Sep 30, 2012 3:55 am
October is dwarfism awareness month. You can make the most of this month by sending an email to your friends and family, asking for support. Asking for support...
1117
amerhh
Oct 7, 2012 12:45 pm
For dwarfism awareness month please consider sending an email to your friends and family, asking for support. Asking for support helps increase awareness,...
1118
amerhh
Oct 14, 2012 3:34 pm
You can ask questions and meet dwarfism specialists online. Submit questions and register at: http://www.growingstronger.org/lp-doc-talk.html Ericka Okenfuss...
1119
amerhh
Oct 14, 2012 4:51 pm
You can ask questions and meet dwarfism specialists online. Submit questions and register at: http://www.growingstronger.org/lp-doc-talk.html Ericka Okenfuss...
1120
Natalie Lawrence
natalielawre...
Oct 14, 2012 7:18 pm
Can anyone give me some advice on getting my nearly 3yr old little girl a Car seat. She currently has a Maxi Cosi stage two car seat, but as she is getting...
1121
s.snedon@...
sharon.sneddon
Oct 14, 2012 8:06 pm
fern went into a booster with a back and 5 point harness, i cant remember the make of the car seat but it was from argos. we like the ikea wooden double step,...
1123
Rob M0TFO
robpegsuk
Nov 13, 2012 7:53 pm
Yahoo Groups are upgrading their systems and Yahoo! Groups will be unavailable for a few hours on the night of November 18th Pacific Standard Time. Emails sent...
1141
nobodylovesmeuk
Feb 6, 2013 5:52 pm
Hello there I wonder if you can help me. I am a freelance writer doing a feature for the Daily Mail about the growing number of men having children later in...
