You can set the sort order of messages? Just click on the link in the date column. Your preferences will be remembered, so you don't have to do it again when you return.
Hi Leanne, my son Archie had quite a flatish head at the back but he's now 2 and half and its fine, he seems to have as the neurosurgeon put it....grown into...
Hi Tracey trying to send you a message on here and im having no use,all our families are in Manchester and you are welcome to come to our meet up on sunday at...
Hi everyone, thanyou for all your replies, they are much appreciated xx and thanks Kristy, I found that website very usefull and I am going to get the pillow...
Hi ! Is there a group that meets in London / N. London / Herts ? Josh is coming up for 8 months old and I feel ready to meet some other families / babies if...
Hi Rachael I'm in Kent with a 6year old who has hypo. The south east region of the dwarf sports association meet once a month in Cambridge for lunch followed...
Hi Rachel I have a little girl that has just turned 8 months with achondroplasia and would love to meet up with you/other families in the London area. We are...
Hi Rocana, Lovely to hear from you. Sounds like our babies are almost the same age. It would be really great to meet you and share experiences. We live in...
Hi Rachel Im sorry it has taken so long to come back to you, we have been away. It would be great to meet up, Regent's Park Cafe sounds good to me - if you...
Please may I apologise for using your site if what I am asking is not appropriate. I have a beautiful grand daughter who is now 26 months old. I suspect and...
Hi Gabrielle An achondroplasia usually detected by peadiatrician or during scanning. I have 18 years old achondroplasia son who is a delight to my family. When...
Many thanks, it is of no matter whichever way. She is a delight and just as 'everything' as her brother is. From what I have read there are no problems other...
Hiya My understanding was that achon is often not detected antenatally before 25 weeks but bet there are exceptions! In the uk they don't do routine scans...
Thanks for your reply. There is a picture of a little girl in a green and purple swing which could be L. I hadn't heard of hypo before so will read up about...
Hi Gabrielle Just wanted to say hi, and let you know that I have a 3 year old with achondroplasia. It was never detected in any scans or after birth. It was my...
Thank you so very very much for this reply, it exactly mirrors my concerns. I don't want to interfere they are lovely parents and are making a brilliant job of...
Oh dear you are in a difficult position. I have a beautiful 21 month old son who has achon. I started to notice things at five weeks old and had it confirmed...
I have a nearly 3yr old Son, Archie, he has hypochondroplasia like Sharon's little girl, Fern, I was told at 37 wks that Archie was breech and to attend for an...
Hi all My name is charlotte, i have four children. One of whom has achon. Tia is 7 in october & is doing extremly well. Her condition was never noticed in...
Hi CUrrently my son, 18 years old, is suffering with calves, pin and needles on heels and can't walk for more than 10 mins without resting! I suggest...
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Valerie
simsvalerie@...
Aug 3, 2012 1:31 pm
Kim, I think we have to be careful about advising people to have physio, every person, even though they have the same condition do not necessary have the same...
Thank you for that Charlotte, I am working now on how best to talk to my son initially. People who are on this site have been so helpful. It has made a huge...
Good luck with approaching the subject Gabrielle. If your son or daughter in law want to speak to anyone who has been in their position, I am always happy to...
I will let you know what happens but still very unsure of how I am going to do this. ' don't shoot the messenger' comes to mind particularly if I am wrong....
Correct link http://www.growingstronger.org/parent-resources.html Regards, Amer Haider cell: 408-234-0520 Sent from mobile device. Please pardon typos and...
