Hi the anaesthetist who sedates connor will put your mind at rest , amy had one a few months ago , explained about the reflux and he said it is fine , the mri...
Hi all I have a 10month old baby and have been applying for disability living allowance and we have been refused. Does anyone have any advice or suggestions?...
Hi Susan and Christopher, I applied for DLA and surprisingly received the middle band of DLA. THe only advice i can give you is blind them with science in your...
Hello, I have a 4 months old boy with achondroplasia. We are from Romania. I would like to know if you can help me regarding treatment of this disease. I know...
what an inspiration to us all- well done girl! How are you all? i have been meaning to send out a message for ages and am only now getting round to it. My...
Hello B, To answer your questions regarding treatment- yes you are right there is none - there are though a few rules which i will post seperately to you...
Thank you amykaren and birdtown for your replies :) Connor was supposed to go for his MRI scan today but we had to cancel it as he has a chest infection. It...
... We are in the process of completing our DLA form so would be most grateful if you could send on any information you feel would help. Cheers Amanda ... of ...
Hi Susan and Richard we ended up at tribunal today and got middle rate , ours has taken ages , started in June , a doctor, Benefits advisor and a memeber from...
... We only lower rate for Connor, I did ask them to look at their decision again which they did do, but they didn't change their minds!! Connor turned 1 on...
Cheers , i know , finally !!! They asked why Amy couldnt walk down a flight of stairs , or why she couldnt climb onto a sofa or normal sized chair so we stood...
Definitely reapply immediately , i got tons of information before our tribunal , you cant let them off with it , i originally applied when amy was 13 months...
I took fern to her first swimming lessons yesterday and it didnt go quite as smoothly as hoped. She isnt 3 until next month but the swim school said they were...
Hi Sharon , we took Amy to hydrotherapy and she was great in the water , again the instructors or therapists are inexperienced with Achon , i think sometimes...
Thank you Karen we arent offically seeing a physio and they have no experience locally in hydro but you have made me think about contacting a friend who works...
Hi Kaz Hi Kaz I'm really pleased you finally got DLA, it took some doing but is worth it. Hope you are all keeping well. Louise ... From: Karen Donaghy...
hi Sharon I have just started taking my boys to swimming lessons. Chris is nearly 1 and has achon and I still go in the pool with him I also take him to a...
Hi Susan thank you. I'm sure it wont happen again and hope she has a think about it. the assisstant when she got in the pool kept by fern so hopefully will be...
Dragonfly Film and Television for The BBC. Dear Achondroplasia Group. I am documentary filmmaker who is looking for help researching a documentary for the BBC...
My daughter gave birth to twin boys in April and one of them has Achondroplasia his name is Ethan. He is such a lovely boy but my daughter is so worried as the...
Hi, I have a 2 year old son with Achondroplasia. He has a lot of feeding problems, when he was tiny we fed him laying flat on the floor (which he still does...
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achondroplasiauk@...
Jan 24, 2009 3:19 pm
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the achondroplasiauk group. File :...
Hi, We are organising an RGA fun day in Shropshire which is open to anyone with restricted growth and their families. Their will be childrens' entertainment...
Hi Barbara Conratulations on the twins. Just as has already been said you should get hold of the growth charts for achondroplasia. I havent checked the files...
... nothing ... very ... of ... The ... hard ... comes ... and ... as ... to ... Hi there Barbara, My son Tom was born in July (2008) and he too has problems...
I am sure there has been a similar discussion on POLP2 (parents of little people2)a more american yahoo group but the same issues arise. i dont remember what...
Hi All, I am a new member to this site although I have been looking at the site since my daughter found out that her baby would be born with achondroplasia. I...
