You can set the sort order of messages? Just click on the link in the date column. Your preferences will be remembered, so you don't have to do it again when you return.
Living with Achondroplasia Aug 4 2005 By Ivy Broadhead, The Evening Chronicle What's it like being a little person in a world that's designed for the tall?...
4
Sarah
sarjfin@...
Oct 25, 2008 2:17 am
Hello, I am a female who is an achondroplasic of 34 years old. I have difficulty finding shoes that are not childish. Like I am a size 12/13 junior. Do you...
5
saj1971sajida
sajida1971@...
Oct 25, 2008 11:35 am
Ermmm...how do i log into the group..there is an option to join, but cant find the log in. thanks...
6
wwajc
rogerandnicola@...
Oct 25, 2008 2:36 pm
I'm thinking of getting BUPA cover for my family including my baby who is an achon. I'm only hesitant because I know they won't cover for pre- existing...
7
rob
robpegsuk
Oct 25, 2008 3:43 pm
Hi, at the top of the screen, there is (sign in)(signout) next to the yahoo! groups logo hope this helps. Rob...
8
littlefowlers
Oct 26, 2008 11:16 pm
Hi Sarah I have the same problem but I tend to use ebay as they always have great shoes on there that are suitale for us adults with smaller feet Hope this...
9
aitipapa
Oct 29, 2008 10:44 pm
I am looking for information on reference centres and/or achondroplacia specialists in the UK. I would be particularly grateful for advise on neurosurgents...
10
Sarah
sarjfin
Oct 30, 2008 12:47 pm
what size are you? If you don't mind me asking what size are you? If you don't mind me asking...
11
littlefowlers
Oct 30, 2008 10:03 pm
Hi Sarah I'm a size 13 junior too! Kirsty...
12
rob
robpegsuk
Nov 28, 2008 2:15 pm
have been asked to let people know about the new series of "How to Look Good Naked" below are the details regards Rob Do you have a disability? ... appearance...
13
ambiencebride
Nov 29, 2008 11:26 pm
Hi just thought I'd give a quick update on Connor and would like a bit of advice if at all possible. Connor is having a scan on his liver on Friday as his pead...
14
muriel screech
birdtown25
Nov 30, 2008 11:30 am
Dear Ambience, I can't really help except i am an achondroplast & have been having general anesetics since the year plonk & i've been fine (i think mum's the...
15
Karen Donaghy
amykaren1
Dec 1, 2008 8:32 am
Hi the anaesthetist who sedates connor will put your mind at rest , amy had one a few months ago , explained about the reflux and he said it is fine , the mri...
17
skalford1
Dec 14, 2008 4:14 pm
Hi all I have a 10month old baby and have been applying for disability living allowance and we have been refused. Does anyone have any advice or suggestions?...
18
christinejones333
christinejon...
Dec 15, 2008 8:17 am
Hi Susan and Christopher, I applied for DLA and surprisingly received the middle band of DLA. THe only advice i can give you is blind them with science in your...
19
Bodrag Support
bodrag2
Dec 15, 2008 8:39 am
Hello, I have a 4 months old boy with achondroplasia. We are from Romania. I would like to know if you can help me regarding treatment of this disease. I know...
20
christinejones333
christinejon...
Dec 15, 2008 9:41 am
what an inspiration to us all- well done girl! How are you all? i have been meaning to send out a message for ages and am only now getting round to it. My...
21
christinejones333
christinejon...
Dec 15, 2008 9:47 am
Hello B, To answer your questions regarding treatment- yes you are right there is none - there are though a few rules which i will post seperately to you...
22
ambiencebride
Dec 17, 2008 10:31 pm
Thank you amykaren and birdtown for your replies :) Connor was supposed to go for his MRI scan today but we had to cancel it as he has a chest infection. It...
23
skalford1
Dec 19, 2008 1:14 pm
We phoned them up and talked to the people at the dla and are now going to recieve it - Can't believe it has taken so long....
24
rob
robpegsuk
Dec 20, 2008 3:41 pm
Wishing you all a Very Merry Christmas ,and a Happy New Year Regards Rob...
25
amandamillgate
Dec 20, 2008 9:46 pm
... We are in the process of completing our DLA form so would be most grateful if you could send on any information you feel would help. Cheers Amanda ... of ...
26
amykaren1
Jan 12, 2009 1:53 pm
Hi Susan and Richard we ended up at tribunal today and got middle rate , ours has taken ages , started in June , a doctor, Benefits advisor and a memeber from...
27
D TOPPING
bty553989
Jan 12, 2009 2:33 pm
GOOOO !!!!!!! YOU . Well done and a happy new year to you all ... From: amykaren1 <amykaren1@...> Subject: [achondroplasiauk] Re: dla To:...
28
ambiencebride
Jan 12, 2009 8:56 pm
... We only lower rate for Connor, I did ask them to look at their decision again which they did do, but they didn't change their minds!! Connor turned 1 on...
29
Karen Donaghy
amykaren1
Jan 13, 2009 4:25 pm
Cheers , i know , finally !!! They asked why Amy couldnt walk down a flight of stairs , or why she couldnt climb onto a sofa or normal sized chair so we stood...
30
Karen Donaghy
amykaren1
Jan 13, 2009 4:38 pm
Definitely reapply immediately , i got tons of information before our tribunal , you cant let them off with it , i originally applied when amy was 13 months...
31
sharon.sneddon
Jan 13, 2009 6:33 pm
I took fern to her first swimming lessons yesterday and it didnt go quite as smoothly as hoped. She isnt 3 until next month but the swim school said they were...
32
Karen Donaghy
amykaren1
Jan 14, 2009 4:14 pm
Hi Sharon , we took Amy to hydrotherapy and she was great in the water , again the instructors or therapists are inexperienced with Achon , i think sometimes...
