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achondroplasiauk · achondroplasia uk

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  • Members: 119
  • Category: Care Giving
  • Founded: Oct 24, 2008
  • Language: English
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Messages 237 - 266 of 1088   Oldest  |  < Older  |  Newer >  |  Newest
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237 natashabackhurst
natashabackh... Offline Send Email
Jun 1, 2009
3:05 pm
Hello there, Welcome to this group, this is a really supportive group to join, I'm sure you will meet lots of new people that will be able to give you just the...
238 valeriesims@...
valeriesims... Offline Send Email
Jun 1, 2009
3:33 pm
... Hi Sandy, My name is Val and I have achondroplasia and am married to Geoff who is average height and we have two sons both with the condition who are 36...
239 lisaatkinson79 Offline Send Email Jun 1, 2009
8:22 pm
240 ambiencebride Offline Send Email Jun 2, 2009
10:42 am
Hi Sandy welcome to the group. I have two children Keisha who is 8 and Connor is nearly 18mths. My son Connor has Achondroplasia. If you have any questions...
241 xen.apten Offline Send Email Jun 2, 2009
8:03 pm
I'm the SENCO in a Secondary school. We have a student with achondroplasia who up until now has not wanted to initiate contact with other individuals having...
242 A Boorman
lisaatkinson79 Offline Send Email
Jun 2, 2009
8:58 pm
hi have you tried rga restricted growth association they have get togethers ect....
243 D TOPPING
bty553989 Offline Send Email
Jun 3, 2009
8:22 am
Hi, Have you tried the daauk.org. Bearing in mind you are talking about a teenager there would be many  kids for her to connect with . It is a national...
244 threedaughters1son
threedaughte... Offline Send Email
Jun 5, 2009
10:07 pm
hi all thought id update re josh so ive posted some new pictures of him. he is almost 17 mths old now! where did that go? he is doing really well and we are...
245 sharon.sneddon Offline Send Email Jun 5, 2009
11:26 pm
Hi Lottie Josh is doing really and sounds like he will walking really soon:) I have no idea what is normal for OTs to do as ours is next to useless. I guess...
246 Christine Jones
christinejon... Offline Send Email
Jun 6, 2009
7:02 am
yes time has flown- glad to hear you and Josh are doing fine. i too have not posted for a while but Lailou has quiet severe spinal compression so the only...
247 Christine Jones
christinejon... Offline Send Email
Jun 6, 2009
7:07 am
* apologies sorry just re-read and can ssee it was baby club who suggested bgt -ok they are forgiven. just thought it was a professional which would not be...
248 sharon.sneddon Offline Send Email Jun 6, 2009
1:34 pm
Hi Christine I have had the discussion about 3 times with Ferns consultant about MRIs but he reassures me each time that she displays no clinical signs of...
249 Christine Jones
christinejon... Offline Send Email
Jun 6, 2009
4:52 pm
hi, Sharon, so sorry to worry you honey I dont want to alarm anyone but i would never forgive myself if i never said what i thought :) from the heart girl....
250 sharon.sneddon Offline Send Email Jun 6, 2009
9:50 pm
No worries christine i totally understand..would be the same myself. have sent you a message through FB. Lailou sounds like she is being well looked after:) ...
251 okiesandy44 Offline Send Email Jun 7, 2009
10:32 am
My Grandson Gavin Dewayne Fifield arrived on May 28th 2009 weighing 4 lbs and 5 oz and was 16 and 1/2 inches long. He is still at St. Mary's Hospital in St....
252 okiesandy44 Offline Send Email Jun 7, 2009
10:34 am
... thank you Fiona...I posted some pictures of my grandbaby...check em out!...
253 okiesandy44 Offline Send Email Jun 7, 2009
10:37 am
... I just got back from seeing my grandbaby. He is just the sweetest baby. I miss him already. It sucks cuz I live far away. Anyways I live in the United...
254 agrier923@...
agrier923... Offline Send Email
Jun 7, 2009
6:43 pm
Hello everybody, My name is Veronique Walraven and I have a 2 year old daughter (Terra) who has Achondroplasia. Terra doesn't walk and doesn't talk (much) yet...
255 skalford1 Offline Send Email Jun 7, 2009
7:51 pm
Hi all Having a little problem with car seats and was wondering if anyone had any suggestion. My son is 16 months old and is quite slow developing physically...
256 lisaatkinson79 Offline Send Email Jun 7, 2009
8:10 pm
257 sharon.sneddon Offline Send Email Jun 7, 2009
8:22 pm
Hi Susan I dont really have a an answer but wondering if the 'head huggers' that are in newborn baby car seats may work. or maybe a neck pillow. perhaps its...
258 sharon.sneddon Offline Send Email Jun 7, 2009
8:29 pm
Hi Veronique Terra..what a beautiful name:) Dont worry about her not walking or her speech. My friends twins didnt walk until they were gone 2..she will get...
259 sharon.sneddon Offline Send Email Jun 7, 2009
8:38 pm
Hi Sandy your grandson is beautiful i can understand that you miss him. Just wondering if you have found the huge family of blogs written by people who have...
260 natashabackhurst
natashabackh... Offline Send Email
Jun 8, 2009
9:43 pm
Hi Susan, I also had a problem with carseats with Ethan, he is now just coming up to 14 months. He was in a rear facing carseat Britax also, we used a new born...
261 loopyblondelou Offline Send Email Jun 10, 2009
1:16 pm
Dear all may i remind you that we are not allowed to name doctors on the site, Dur to the fact that one parent can say well doctor so nad so dos this and this...
262 loopyblondelou Offline Send Email Jun 10, 2009
1:25 pm
Sorry about the last message it didnt make much sence, it was supposed to read we are not supposed to leave docs names on here due to the fact, that any parent...
263 Christine Jones
christinejon... Offline Send Email
Jun 10, 2009
4:59 pm
ooops sorry i forgot....my apologies, thanks. christine To: achondroplasiauk@... From: loopyblondelou@... Date: Wed, 10 Jun 2009 13:24:17...
264 agrier923@...
agrier923... Offline Send Email
Jun 10, 2009
6:12 pm
Hello everybody, I have a big bag of baby clothes, that my daughter (2 now) has grown out of. They have all been adapted to fit her, including pyjamas, jumpers...
265 natashabackhurst
natashabackh... Offline Send Email
Jun 11, 2009
9:50 am
Can someone tell me what this is? Ethan isn't old enough to do this yet I'm sure, but would be nice if I knew what I'm looking for, so I know it is normal. He...
266 sharon.sneddon Offline Send Email Jun 12, 2009
6:49 am
Hi Tasha The squat is when they look like they are trying to sit on an imaginery chair (only way i can think of to descibe it). Fern occasionally does it when...
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