Hi All I have a lovely pair of ankle high shoes that Jack wore up until the beginning of this summer in navy leather. Â He is 2.5 years old now. Â I am not...
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Marie Molloy
mariemolloy_1@...
Oct 2, 2009 1:54 pm
Hi there I wonder if you can offer some advice on strategies to help with toileting. I am a health professional and I am trying to help a young girl( 10) with...
423
leannekavanagh22
leannekavanagh22@...
Oct 2, 2009 6:41 pm
Hi there I'm Leanne and my son Jack has just had a genetic blood test to determine whether or not he has achon or a milder condition called hypochondroplasia....
Hi Leanne, I have a 21 month old son Connor who is Achon. Connor has slight bowing of his lower legs. Bowing of the lower legs is very common in Achondroplasia...
October has been declared National Dwarfism Awareness Month by Little People of America. Little People of America (LPA) is a national support organization for...
my friend who is now in her fourtys had problems as a child with going to the toilet in them days at school the teacher helped her but now as we know this is...
My son is just coming up to 18 months and has been walking unaided for the last 6-8weeks, Ethan's feet aren't even a size one yet!! We were told we could get...
Hi everyone Jack is now 14 months old, and has outgrown his lie-flat Mutsy car seat. I figure that he is probably better off in a rear-facing car seat, as his...
My OT wouldnt give us any advice either and told me to go to halfords. i contacted a car saftey center someone suggested to me..they have centres across the...
Hi Sarah, We were advised to keep Connor rear facing for longer. Have you had a look at any of the Britax car seats? I know alot of the parents on the POLP...
Yes if you need them then they will fit some, its normally the orthotics dept , you will be referred by either Physio or Orthopaedics , just remind them , they...
Hi , we had a jane rebel pro, suits up to 18 months and is a rear facing car seat , its big enough and can be positioned so that he is not propped up chin to...
Hi I agree car seats are a nightmare. We had problems for months with car seats - we contacted physio, ot, hospital, car safety, wheelchair uses - loads of...
Thank you very much for all your reactions. They have been very helpful. I contacted Terra's OT, who contacted Terra's physio, who arranged for us to see a...
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Khadijah Abdi
khadijah6987@...
Oct 13, 2009 9:37 am
Hi I read one of your post about applying for dla for a child with achondroplasia, my son has this condition and I would be very grateful if you still have it...
Hi all My son, Chris, is now 20mths old and we have been to alder hey and been told he has kyphosis of the lumbar spine, basically his spine is curved. They...
Hi Susan I have no experience of these braces with fern but i remeber reading about it on Tonyas blog about her sone knoah who has achon. it is very...
438
juliannesheahan
juliannesheahan@...
Oct 15, 2009 2:27 pm
Hi my daughter was diagnosed with achondroplasia at birth , she is now seven months old and is making no improvements with head control and her right arm seems...
Hi there, Sounds like she may have some compression - my daughter had foreman magnum decompression surgery in June 09 and is now on full charge walking ect. I...
hi jamie is now ten months old and he still has no control of his head as i understand this is normal most parents i have spoken to there children have been...
Hi My son Connor is 22 months old and didn't gain reasonable head control til around 10months. Babies with Achondroplasia also tend to have hypermobility which...
Hi I agree with christine and fiona that you should insist on an mri if she hasnt yet had one.. i think i would be more concerned about the difference in arm...
Hi Susan , Amy had the same brace fitted , did dave do it ? Amy wore hers for a couple of days , too uncomfortable , too restricting and no good when in the...
Hello Julianna, I am not a specialist, but I can tell you about my own experiences as a mother of an achon daughter. The first 17 months of my daughter's life...
Just a short thank-you to Karen for sending me the document to help me with the DLA form. My claim was successful first time. I did think that filling in the...
Just a query really. Connor is sitting independantly now, but is struggling with lying back down from the sitting position. Connor's physio told me to...
Hi Fiona, Terra usually leans forward, then swings her legs behind her (via the splits) and ends up on her tummy. Sometimes she moves to the side and kinda...
Hi, Just to confirm what Veronique has said. My son Josh was just the same, extremely floppy and way behind developmentally. He sat unaided at 20 months and...
Hi Veronique I keep putting off filling in the form but you have spurred me to get on with it. i was told by someone with achon recently to remeber that i have...
Hi Fiona I cant think how fern does it but i can remeber wondering how she was going to do that at the time and she worked it out for herself just like connor...
