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achondroplasiauk · achondroplasia uk

Group Information

  • Members: 202
  • Category: Care Giving
  • Founded: Oct 24, 2008
  • Language: English
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47 sharon.sneddon Send Email Feb 3, 2009
10:27 am
Yesterday whilst on facebook 2 groups were 'sent' to me. They are very upsetting. one is called 'I am terrified of dwarfs and midgets' the other 'the Roloffs...
48 suebourton Send Email Feb 3, 2009
12:04 pm
I have fowared a complaint on to facebook, these people are disgusting and these groups need shuttin down, the comments they make are sick.x...
49 sharon.sneddon Send Email Feb 3, 2009
9:33 pm
Thank you Sue. heres hoping action will be taken to remove these groups. we have strength in numbers with those on POLP2 and shortlist also responding:0)...
50 tinamarcus@...
tinamarcus... Send Email
Feb 3, 2009
10:17 pm
Hi Sharon, I'm a novice at using the internet but I will certainly complain if you can tell me how. Regards, Tina ... least...
51 simsvalerie Send Email Feb 4, 2009
10:38 am
Tina, if you go to the bottom of the page of the forum, i.e. the one headed "Iam terrified of dwarfs and midgets" there is a report button, just press that....
52 sharon.sneddon Send Email Feb 4, 2009
10:42 am
Hi Tina if you are not a facebook member then google facebook complaints and alot of links come up. if you are search the groups for compliants. thank you ...
53 clarel777 Send Email Feb 4, 2009
10:55 am
Hi, I'm looking for a bit of advice. My sister is 16 and has achondroplasia, she is desperate to learn to drive when she turns 17. Is there any financial...
54 sharon.sneddon Send Email Feb 4, 2009
1:57 pm
I cant help you directly as my daughter is only 2 and so have not looked into that yet. There has, however, been a recent disscussion on the yahoo group...
55 tinamarcus@...
tinamarcus... Send Email
Feb 4, 2009
9:53 pm
Hi Sue & Val, After about 3 hours I have managed to send a complaint to abuse@facebook. Tina...
56 sharon.sneddon Send Email Feb 4, 2009
10:26 pm
Thank you Tina I'm sorry it took so much time...
57 loz282002 Send Email Feb 5, 2009
10:24 am
Hi, My son Jack is 6 years old and has Pseudoachondroplasia. He would like some football boots to use in the garden. Does any one know anywhere, we can buy...
58 Karen Donaghy
amykaren1 Send Email
Feb 6, 2009
8:25 am
Hi , complained on tuesday , they said will deal with it , have given the group names etc , i think they want the URL and the person hosting the group , they...
59 tinamarcus@...
tinamarcus... Send Email
Feb 6, 2009
8:12 pm
Hi, The reply I received today from facebook is: ' We will do our best to assist you with this matter. Please provide the full names and web addresses (URLs)...
60 sharon.sneddon Send Email Feb 6, 2009
9:31 pm
You guys have more of a response that i have. i had a message that wants me to phone to register the complaint. at £1.50/min i cant afford finacially afford...
61 sharon.sneddon Send Email Feb 7, 2009
11:52 pm
Great news. it looks like the groups dwarfes amuse me and I'm terrified of dwarfes and most midgets (the one that upset me the most) are now gone:) the one...
62 ambiencebride Send Email Feb 8, 2009
9:29 pm
Hi Sharon, I hadn't noticed these groups on facebook and I haven't been on here for a while. Have the groups all been removed now? If not I shall go and make...
63 sharon.sneddon Send Email Feb 8, 2009
9:49 pm
I think they have been removed but more have been found. If this worries any of you are you are not yet on shortlist i do recommend that you go look. there is...
64 meebh Send Email Feb 9, 2009
11:45 am
Hi all sorry haven't been using the site lately but have had very little time due to festive period, family events and illness. Unfortunately Ritchie has been...
65 Valerie Sims
simsvalerie Send Email
Feb 9, 2009
12:07 pm
Hi Just to update you on what is going on. There is a lot going on "behind the scenes" concerning abuse on Facebook against people with dwarfism conditions....
66 ambiencebride Send Email Feb 9, 2009
12:31 pm
Hi Moira. I'm so sorry to hear about everything you have been going through with Ritchie. Hopefully the operation will be a complete success and Ritchie will...
67 sharon.sneddon Send Email Feb 9, 2009
2:00 pm
Hi Moira I pray that Richie continues to make good progress and that he is home soon. sounds like he is a big fighter. If you go onto the yahoo group parents...
68 amandamillgate Send Email Feb 9, 2009
8:23 pm
... Unfortunately ... so ... awful ... us ... Hello Moira, I just read your post and my heart goes out to you and your family. I hope Ritchie continues to go...
69 Louise Atkinson
amara_jayne Send Email
Feb 10, 2009
9:00 pm
Hi Clare It might be worth your sister applying for DLA again as if she qualifies and gets the higher rate she could learn to drive from 16. Check link ...
70 meebh Send Email Feb 12, 2009
11:26 am
Hi all Just to let you know Ritchie is doing well, we had a big fright earlier in week as his lungs collapsed and he had to be put back on ventilator,...
71 meebh Send Email Feb 12, 2009
11:28 am
hi I would like to thank everyone for the kind messages of support and good wishes for Ritchie. Moira...
72 sharon.sneddon Send Email Feb 12, 2009
10:19 pm
Hi Moirs thank you for the update i have been wondering how you were doing. I hope ritchie got offthe vent today and hope that you can get home very soon ...
73 natashabackhurst
natashabackh... Send Email
Feb 14, 2009
9:26 pm
Hello all, this is my first message that I have posted myself, however my mum has already been on asking questions about my sons feeding. thank you for your...
74 stephbirch@...
stephbirch... Send Email
Feb 14, 2009
9:46 pm
Hi Tasha, Great to hear Ethan is beginning to enjoy his food. He sounds very much like Sam. Sam is 11 months old, so just a bit older than Ethan. He's...
75 Karen Donaghy
amykaren1 Send Email
Feb 16, 2009
9:25 am
Hi Natasha , glad he is doing so well , most achon kids will do this crab position but i would discourage it as i have with Amy as the neck area is very...
76 natashabackhurst@...
natashabackh... Send Email
Feb 16, 2009
11:20 am
Ethan hasn't had a MRI scan, no one has said anything to me about this. He has had scans on his head using a probe though his soft spot, cheacking the drainage...
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