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achondroplasiauk · achondroplasia uk

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  • Members: 202
  • Category: Care Giving
  • Founded: Oct 24, 2008
  • Language: English
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521 VALERIE SIMS
valeriesims... Send Email
Jan 2, 2010
10:03 am
Hi all Happy New Year to you all. Lets hope it turns out to be a healthier one too for all of us. As most of you must be aware there are two Socials "kicking...
522 angelaghavami Jan 2, 2010
12:44 pm
Happy New Year to everyone. Thanks Val for the reminder to all of the social events in Jan and Feb. As stated it would really help if you plan to attend to let...
523 lisaatkinson79 Send Email Jan 4, 2010
5:56 pm
hi everyone hope you all had a good christmas and happy new year, our doctors are now offering the swine flu injection to children under five, i am just...
524 Graham Crane
gacrane Send Email
Jan 5, 2010
9:11 am
Hi Amelia (4YO Achon) had hers before Christmas and has had no noticible effects from it, apart from a sore arm for the day where she was injected. Regards   ...
525 Christine Jones
christinejon... Send Email
Jan 5, 2010
10:06 am
hi, Lailou was due hers before xmas but had a very bad cold and ear infection so i have to think about taking her back...I had mine before xmas as pregnant and...
526 Emma Jarvis
emmajarvis43 Send Email
Jan 5, 2010
12:41 pm
Hi, Both my boys had theirs, Josh (Achon) had just turned 3, he was absolutely fine. My 12 year old (AH) was really poorly with it though (think that was due...
527 sharon.sneddon Send Email Jan 5, 2010
5:45 pm
Hi Lisa alot of children have had the jab with no side effects but i think you have to do what you feel is right. our paed said fern (achon) isnt in an at risk...
528 lisaatkinson79 Send Email Jan 6, 2010
4:09 pm
hi everyone seems to be one thing after another at the moment, thanks for sharing all your experiences about swine flu injection seems i have a bit more time...
529 Claire
scullionclaire@... Send Email
Jan 7, 2010
12:29 pm
Hi everyone, i'm Claire and i'm new to this group. My daughter Maria is 11 months old and has been diagnosed with achondraplaysia. Concerns regarding her...
530 Christine Jones
christinejon... Send Email
Jan 7, 2010
1:03 pm
Hi Claire, Just a quick note to say that my daughter Lailou had no eating issues in fact i have a problem in stopping her she is two now but weaning and lumps...
531 A Boorman
lisaatkinson79 Send Email
Jan 7, 2010
1:50 pm
hi claire jamie is the same with feeding he has little amounts and is still first stage i still give him baby milk to boost him up, he also still wakes me up...
532 Ambi
ambiencebride Send Email
Jan 7, 2010
3:52 pm
Hi Claire, My son Connor has just turned 2. He has always had problems with feeding, choking and then being sick He also has reflux which he is on Gaviscon...
533 angelaghavami Jan 7, 2010
9:26 pm
Dear All, Sorry for the late notice but unfortunately the planned social for Sat 9th Jan 2010 has been POSTPONED. We had tried hard to ensure that the event...
534 MBH
meebh Send Email
Jan 8, 2010
10:14 am
Hi Claire Hope you and Maria are both well and coping with the snow. I am not on this site often but Maria's feeding issues sound very similar to Ritchie's,...
535 Claire
scullionclaire Send Email
Jan 8, 2010
1:08 pm
Thanks everyone for all your comments regarding spoon feeding i really appreciate you taking the time to reply. I realise now that this problem is not specific...
536 lindsey.bucknall
lindsey.buck... Send Email
Jan 11, 2010
2:50 pm
hi my names lindsey and we have 2 beautiful girls evie 3 of normal stature and darcie who has just been diagnosed with achondroplasia/hypocondroplasia and to...
537 angelaghavami Jan 12, 2010
1:48 pm
Hi Lindsey, I have 2 boys, one is 12 of average height and my 8 year old has Achondroplasia, and I know exactly what you mean. This first few days are hard...
538 sharon.sneddon Send Email Jan 12, 2010
11:39 pm
Hi Lindsey I have a son, leo (8) who is average height and my daughter, fern (4 next month) has acjhondroplasia, we were told of her possible diagnosis when...
539 jubb.christine Send Email Jan 14, 2010
9:29 am
... hi my name is christine me and my hubbie live in germany with the british army we have a daughter justina who is 11 going on 12 she has achondroplasia our...
540 Ambi
ambiencebride Send Email
Jan 14, 2010
10:06 am
Hi LIndsey, My name is Fiona I have 2 children. Keisha (9) AH and Connor (2) has Achondroplasia.We line in Norfolk. Where in West Sussex do you live? We used...
541 sjbell27 Send Email Jan 14, 2010
2:40 pm
Hi Lindsay My name is Sarah, and I have 3 children. Immie - 6, laila - 3, and Jack - 18mths. We found out that Jack had a skeletal dysplasia when I was 32...
542 lisaatkinson79 Send Email Jan 15, 2010
1:07 pm
hi everyone spent the beginning of this week in hospital checking the pressure on jamies brain seems it was very high so we have to go in hospital next week...
543 sharon.sneddon Send Email Jan 15, 2010
11:15 pm
Hi Lisa i dont have any experience or knoledge of this op other than its not that uncommon in achon but i have seen discussions about it on the yahoo group...
544 A Boorman
lisaatkinson79 Send Email
Jan 16, 2010
12:13 pm
thanks sharon...
545 Karen Donaghy
amykaren1 Send Email
Jan 17, 2010
9:06 am
Hi , have lots of friends who have had this done , seems to be a very successful operation , also they are putting shunts in now that can be adjusted too , i.e...
546 A Boorman
lisaatkinson79 Send Email
Jan 17, 2010
2:58 pm
thanks karen...
547 artysue77 Send Email Jan 19, 2010
1:11 am
Hi there I do hope I am posting this in the right place...(if not, Mods please feel free to move my post) I have recently moved on to another school, after...
548 Ambi
ambiencebride Send Email
Jan 19, 2010
1:10 pm
Hi Sue, You are more than welcome here and I'm sure if you have any questions we will all do our best to answer them.:) I have 2 children Keisha is 9 (average...
549 Ambi
ambiencebride Send Email
Jan 19, 2010
1:14 pm
Hi Lisa, I don't have any experience of shunts, but just wanted to wish you luck and I hope Jamie's op goes well. Please keep us updated :) Fiona x...
550 artysue77 Send Email Jan 20, 2010
8:37 pm
... Thanks so much Fiona ,that's real kind of you. To be honest ~ I think it's only right that a Carer should find out as much as they can about the child they...
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