Skip to search.
achondroplasiauk · achondroplasia uk

Group Information

  • Members: 197
  • Category: Care Giving
  • Founded: Oct 24, 2008
  • Language: English
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
You can set the sort order of messages? Just click on the link in the date column. Your preferences will be remembered, so you don't have to do it again when you return.

Messages

  Messages Help
Advanced
Messages 558 - 587 of 1176   Oldest  |  < Older  |  Newer >  |  Newest
Messages 558 - 587 of 1176   Oldest  |  < Older  |  Newer >  |  Newest Start Topic
Messages: Simplify | Expand Author Sort by Date ^
558 sjbell27 Send Email Feb 3, 2010
5:40 pm
Hi everyone Jack has just started cruising around the furniture, and we thought it is probably about time he had some shoes. I took him to Clarks, and they...
559 agrier923@...
agrier923... Send Email
Feb 3, 2010
6:31 pm
Hello Sarah, You can go to your doctor (or in my case the physiotherapist) who can refer you to an orthotist. My daughter Terra got her shoes via the...
560 agrier923@...
agrier923... Send Email
Feb 3, 2010
6:41 pm
Hello all, My daughter Terra will be 3 in May. She can climb stairs, she bum shuffles very fast, she can pull herself up and she can walk behind a walker for a...
561 Steph
stephbirch... Send Email
Feb 3, 2010
11:12 pm
Hi, We're currently waiting for an appointment for shoes for Sam, which we arranged through the paediatrician. In the meantie we tried Clarks, but they were...
562 Christine Jones
christinejon... Send Email
Feb 4, 2010
7:39 am
just a quick note to add my two pennies worth...i found umi a great make of shoes for Lailou when she was cruising as really wide and small sizes, they...
563 sharon.sneddon Send Email Feb 4, 2010
9:32 am
I shop for ferns shoes in an independant shoe shop they stock all the clarks and startrite stuff but lots of different makes from europe also. her first shoes...
564 Graham Crane
gacrane Send Email
Feb 4, 2010
1:41 pm
Hi As you've already heard from many, the issue of shoes is a taxing one, basically you just have to try lots and see what fits (not a lot of help I know) ...
565 Susan
mainly4ebay... Send Email
Feb 6, 2010
5:06 pm
Can anyone tell me when they had an actual diagnoses? My granddaughter had short femurs on ultrasound and her parents were told "dwarfism"; hence we assumed...
566 ricardo piper
piperricardo Send Email
Feb 6, 2010
6:02 pm
hello susan                My wife normally would reply but i picked up the email so think i can answer your question.  After our son arrived we...
567 sharon.sneddon Send Email Feb 6, 2010
11:15 pm
Hi Susan When fern was first born the midwife thought she looked out of proportion but the paed at the time just said she was petite. when she was 12 weeks her...
568 Susan
mainly4ebay... Send Email
Feb 7, 2010
7:08 pm
Thanks for your replies, she has an appointment mid March at our local hospital for I assume more xrays. Susan...
569 Bodrag 2
bodrag2 Send Email
Feb 12, 2010
5:59 pm
Hello, My son have achondroplasia and I would like to ask if anybody knows if he can take calcium tablets? Thank you, Dragos...
570 Lisa
lisaatkinson79 Send Email
Feb 12, 2010
6:59 pm
571 Susan
mainly4ebay... Send Email
Feb 13, 2010
9:53 pm
Hello, It will not make much of a difference to him because the condition is not due to lack of calcium/vitamin D. If you supplement a child that has rickets...
572 elaine.campbell68
elaine.campb... Send Email
Feb 24, 2010
12:41 am
hi my name is Elaine my son darren has achondroplasia , he got jags until he was 14 years old and then he got his first op to lengthening is legs, a few months...
573 simsvalerie Feb 24, 2010
9:40 am
Its great to hear when people have had leng lengthening and the person involved is happy with it. Obviously, as yo have clearly shown it is quite a lengthy...
574 elaine.campbell68
elaine.campb... Send Email
Feb 25, 2010
12:49 pm
575 elaine.campbell68
elaine.campb... Send Email
Feb 25, 2010
4:23 pm
hi i do understand were you are coming from,my son has small arms but because he went through a lot with his legs in the last 3 years , he said that he is not...
576 simsvalerie Feb 25, 2010
4:52 pm
I was not condemning the operation, not at all. Its purely a person's choice, but I think it should be their choice. I wish him well and hope he continues to...
577 buckleyjulie70
buckleyjulie70@... Send Email
Mar 6, 2010
7:35 pm
hi my son conor is 10 yrs old and we are in the early stages of looking at leg lengthening conor first mentioned to us that he wanted his legs longer so we got...
578 Elaine Campbell
elaine.campb... Send Email
Mar 6, 2010
7:48 pm
________________________________ From: buckleyjulie70 <buckleyjulie70@...> To: achondroplasiauk@... Sent: Sat, 6 March, 2010 19:33:05 ...
579 Margaret
amargaret19 Send Email
Mar 7, 2010
10:05 pm
Hi our daughter Robyn (achon) has just had both thighs done, She had both lower limbs done in 2007, all decisions were of her own making inc starting the...
580 Lorraine
loz282002 Send Email
Mar 8, 2010
9:36 pm
Hi, My son Jack has Pseudoachondroplasia, he is 7 years old. He was sent home from school on Thursday, with ear ache. On Friday, we were told he had a burst...
581 sharon.sneddon Send Email Mar 8, 2010
10:20 pm
Hi Lorraine I'm sorry to haer Jack is not well at the moment. I have no idea how common ear problems are in pseudo but they are very common in achon. fern...
582 sharon.sneddon Send Email Mar 9, 2010
6:59 pm
Lorraine when i was looking into info re glue ear before fern ahd the grommets i remember reading about craniel osteopathy..apparently they can help drain glue...
583 Natasha Backhurst
do-not-reply@... Send Email
Mar 11, 2010
9:52 pm
Connect with Friends and Family on Yahoo! Natasha Backhurst (NatashaB) Natasha Backhurst (NatashaB) would like to connect with you on Yahoo! so you can easily...
584 Lorraine
loz282002 Send Email
Mar 14, 2010
11:19 am
Hi, Thank you for your replies. Your advice has been very helpful. Jack is alot better, the antibiotics and ear drops, have helped him. He will be back at...
585 buckleyjulie70
buckleyjulie70@... Send Email
Mar 19, 2010
7:13 pm
... both lower limbs done in 2007, all decisions were of her own making inc starting the growth hormone prior to the op. we had a psychological report done...
586 buckleyjulie70
buckleyjulie70@... Send Email
Mar 19, 2010
7:42 pm
hi margaret thanks for replying glad to hear from you conor has got an appointment for a mri scan at sheffield then we are back there again 2weeks later with...
587 lollyward22
lollyward22@... Send Email
Mar 20, 2010
1:50 pm
hey all u out there im a mum of 3 2 boys and a little girl my little girl has got achondroplasia i wonderin if there r any groups out there 2 help me wiv...
Messages 558 - 587 of 1176   Oldest  |  < Older  |  Newer >  |  Newest Start Topic
Add to My Yahoo!      XML What's This?
Messages 558 - 587 of 1176   Oldest  |  < Older  |  Newer >  |  Newest
Advanced
Add to My Yahoo!      XML What's This?

Copyright © 2010 Yahoo! UK. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help