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achondroplasiauk · achondroplasia uk

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  • Members: 197
  • Category: Care Giving
  • Founded: Oct 24, 2008
  • Language: English
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577 buckleyjulie70
buckleyjulie70@... Send Email
Mar 6, 2010
7:35 pm
hi my son conor is 10 yrs old and we are in the early stages of looking at leg lengthening conor first mentioned to us that he wanted his legs longer so we got...
578 Elaine Campbell
elaine.campb... Send Email
Mar 6, 2010
7:48 pm
________________________________ From: buckleyjulie70 <buckleyjulie70@...> To: achondroplasiauk@... Sent: Sat, 6 March, 2010 19:33:05 ...
579 Margaret
amargaret19 Send Email
Mar 7, 2010
10:05 pm
Hi our daughter Robyn (achon) has just had both thighs done, She had both lower limbs done in 2007, all decisions were of her own making inc starting the...
580 Lorraine
loz282002 Send Email
Mar 8, 2010
9:36 pm
Hi, My son Jack has Pseudoachondroplasia, he is 7 years old. He was sent home from school on Thursday, with ear ache. On Friday, we were told he had a burst...
581 sharon.sneddon Send Email Mar 8, 2010
10:20 pm
Hi Lorraine I'm sorry to haer Jack is not well at the moment. I have no idea how common ear problems are in pseudo but they are very common in achon. fern...
582 sharon.sneddon Send Email Mar 9, 2010
6:59 pm
Lorraine when i was looking into info re glue ear before fern ahd the grommets i remember reading about craniel osteopathy..apparently they can help drain glue...
583 Natasha Backhurst
do-not-reply@... Send Email
Mar 11, 2010
9:52 pm
Connect with Friends and Family on Yahoo! Natasha Backhurst (NatashaB) Natasha Backhurst (NatashaB) would like to connect with you on Yahoo! so you can easily...
584 Lorraine
loz282002 Send Email
Mar 14, 2010
11:19 am
Hi, Thank you for your replies. Your advice has been very helpful. Jack is alot better, the antibiotics and ear drops, have helped him. He will be back at...
585 buckleyjulie70
buckleyjulie70@... Send Email
Mar 19, 2010
7:13 pm
... both lower limbs done in 2007, all decisions were of her own making inc starting the growth hormone prior to the op. we had a psychological report done...
586 buckleyjulie70
buckleyjulie70@... Send Email
Mar 19, 2010
7:42 pm
hi margaret thanks for replying glad to hear from you conor has got an appointment for a mri scan at sheffield then we are back there again 2weeks later with...
587 lollyward22
lollyward22@... Send Email
Mar 20, 2010
1:50 pm
hey all u out there im a mum of 3 2 boys and a little girl my little girl has got achondroplasia i wonderin if there r any groups out there 2 help me wiv...
588 Christine Jones
christinejon... Send Email
Mar 20, 2010
8:07 pm
Hi there, this is a support group so you are in the right place- I would love to give you advice on your little girls questions but I am a few years behind you...
589 Christine Jones
christinejon... Send Email
Mar 20, 2010
8:13 pm
sorry lolly my son knocked me and my mail sent without me finishing.... Do you know anyone with achon? It may help to start making friends locally do your...
590 ricardo piper
piperricardo Send Email
Mar 20, 2010
9:14 pm
you are good company here .with almost any question you need to ask ... From: lollyward22 <lollyward22@...> Subject: [achondroplasiauk] little girl...
591 sharon.sneddon Send Email Mar 21, 2010
7:29 am
Hi Laura My daughter, Fern is just 4 and has an older brother. she has hypochondroplasia (its just been changed from achon!) she has yet to ask any questions...
592 goslinglol
lollyward22 Send Email
Mar 21, 2010
8:30 am
hi thanks to all who reply ed to my post well to some of ya questions I do not no anyone wiv achondroplasia ive been tryin to find some parents or groups...
593 sharon.sneddon Send Email Mar 21, 2010
9:17 am
Hiya again! That is good to hear that jessica jane is treated no differently by her friends in school. bet she is determined and independant as fernie!! Are...
594 lollyward22 Send Email Mar 22, 2010
7:07 am
hey guys hope all ok im just wonderin if any of ya no where i can buy propper clothes for my daughter as i always have to have them changed then i love the tag...
595 sharon.sneddon Send Email Mar 22, 2010
8:06 pm
Hi Laura for trousers i try and get the 3/4 length ones or those that are meant to roll up. get most in next and occ pumkin patch. fern is in 12month clothes...
596 lollyward22 Send Email Mar 22, 2010
8:32 pm
hey sharon thanks for the advice i really do struggle wiv clothes for her like u say u can never buy a set school tights is no ideas as i cant find jess any...
597 kvam20@...
kvam20... Send Email
Mar 23, 2010
12:07 pm
hello my name is keighly and im 21 yrs old, i have 2 children my son bobby of 3 who is of normal statue and my daughter olivia 15months who has shortend...
598 simsvalerie Mar 23, 2010
12:24 pm
Hi Keighley, I have just replied to you via your email address. Please get in touch. Regards Val. Sims...
599 agrier923@...
agrier923... Send Email
Mar 23, 2010
12:55 pm
Hello Keighly, Welcome to this group. We all have been in your shoes, so this is the right place for your questions. Another good group to get in touch with is...
600 Margaret
amargaret19 Send Email
Mar 23, 2010
6:51 pm
Hi Julie, Robyn's first op on the lower limbs was a total of 15mths from start to finish inc getting the frames off and plaster casts and walking unaided. The...
601 sharon.sneddon Send Email Mar 26, 2010
9:07 pm
Hi Keighly Great to meet you. my daughter is 4 now, her older brother is AH. Fern was diagnosed at 4-9 months of age from a skeletal survey (it wasnt a quick...
602 Christine Jones
christinejon... Send Email
Mar 27, 2010
7:55 am
Hi Keighly, I have 3 children awaiting a fourth daughter who will be delivered on the 12th april! my third daughter Lailou has achondroplasia also. Lailou is...
603 Christine Jones
christinejon... Send Email
Mar 27, 2010
8:11 am
please find as promised some information on all possible medical complications linked to short stature...it looks complicated and daunting but try to look up...
604 lollyward22 Send Email Mar 27, 2010
3:44 pm
hi all as im joining rga i was wondering if anyone out there knew wen the daauk national open dwarf games r and where they r being held plz as i would like...
605 Christine Jones
christinejon... Send Email
Mar 27, 2010
6:47 pm
Hi, I am currently joining the DAAUK as well, its a different organisation to RGA so you will have to join both....just go to the DAAUK website and it will...
606 skalford1 Send Email Mar 27, 2010
8:59 pm
Hi all My son christopher who is 2yrs 2mths has just started cuising round furniture and is very interested in his older brothers trucks and bikes but Chris...
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