Hi everyone, You may recall that my granddaughter had short femurs on ultra sound scans and we thought she had achondroplasia. Well then they said she did not...
797
Sharon Sneddon
sharon.sneddon
Dec 3, 2010 5:10 pm
It is great to hear you have a diagnosis. Fern is looked after at GOSH too. Dr W is fantastic:) have you come across parents of little people 2 yahoo group?...
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sjbell27
Dec 5, 2010 5:38 pm
Hi Pete Congratulations on the birth of your new baby girl!! My name is Sarah, and I also live in Hampshire, in Lee-on-Solent. We have a little boy called...
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katie24reading
Dec 5, 2010 8:21 pm
Hi, have read with interest the message from Pete and the responses to that, regarding laying Georgia flat. My sister and her husband haven't been given any...
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Moira Horrocks
meebh
Dec 5, 2010 9:35 pm
Hi Katie Here is a link to a report based on lots of research. It has all the important points you will need to know medically really....
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Sharon Sneddon
sharon.sneddon
Dec 6, 2010 6:45 am
Hi katie Yes it's fine to hold your niece in your arms you just need to try and keep her back straight and avoid the c position. All children have spinal...
802
Katie Amos
katie24reading
Dec 6, 2010 1:59 pm
Dear Moira Thanks, have printed off and will pass it along. I think someone else on the site said that you become your child's medical expert, and I am...
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Katie Amos
katie24reading
Dec 6, 2010 2:01 pm
Hi Sharon Thank you for your message, I never knew that, and I've a little boy myself! I'm glad she won't be missing out on her cuddles. Katie To:...
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Lorraine Gulliford
loopyblondelou
Dec 9, 2010 5:08 pm
Hi Pete my name is Lou we have 4 children 3 boys of adverage height and 1 little girl with achon, she is 9 now, while i was pregant i had no idea that i was...
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Pramod
drpramod_menon
Dec 10, 2010 6:41 am
dear Rosa and Pete, we have a 10 year old daughter, Sam who was also diagnosed with Achondroplasia after her birth. this site has given us lots of hope and...
806
sunshine.heathaze
sunshine.heathaze@...
Dec 10, 2010 10:24 am
Hi Everyone, I was just wondering if anyone has any experience of achon children not growing, at all. I am mum to Charlie, now 3 and a 3 quarters, for the last...
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Sharon Sneddon
sharon.sneddon
Dec 10, 2010 7:13 pm
Hi hazel Sorry I can't really help. Fern who has hypochondroplasia has always remained on the 50th centile on the achon charts. At nearlly 5 she is 79cm. I've...
808
Pramod
drpramod_menon
Dec 12, 2010 2:07 pm
Dear Hazel, in Achondroplasia growth does not occur on a regular basis. my daughter at birth was 45cms in length now at 10years she is 100 cms in height she...
809
N F
n399@...
Dec 13, 2010 8:41 pm
Hi Everyone. We have been to see our consultant today and Ethan has to go to the QMC because they think his spine has got worse! Also they are sorting a...
810
sunshine.heathaze
sunshine.hea...
Dec 14, 2010 10:12 am
... Thanks. Charlie has followed the lowest line since he was born (55cm) until he was 18 months (71cm), so I was only really expecting a cm or two, but no...
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A
agrier923...
Dec 14, 2010 10:49 am
Hello Hazel, My daughter Terra is 3 and a half. She did have a period that she did not seem to grow at all but this period did not take quite as long as...
812
sunshine.heathaze
sunshine.hea...
Dec 15, 2010 8:14 am
Thank you Veronique, thats good information,:)...
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robert
robpegsuk
Dec 22, 2010 3:08 pm
We wish you a very happy Christmas and a New Year filled with peace and prosperity. Achondroplasia UK...
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simsvalerie
Dec 27, 2010 7:02 am
February 5th is the "I can't believe its not Christmas party" in Essex. Its open to anyone who has a restricted growth condition, or has children or relatives...
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Paula
paula.hodgson@...
Jan 16, 2011 1:55 pm
Hi I have a nephew who is 3 yrs old and currently wears 9-12 month old clothes. He is starting nursery next week and unfortunately he does not have a uniform...
819
Sue
suebourton
Jan 16, 2011 3:48 pm
Hiya, My son Ryan is 5. We found that marks and Spencer do a age 3 but offer 3 lengths. We went for the short and although they still need altering its much...
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Rob M0TFO
robpegsuk
Jan 24, 2011 11:51 am
I came across your facebook group and felt compelled to get in touch. I cannot begin to imagine what everyone has been through but I read an incredibly...
822
lucy
stroud_lucy
Jan 24, 2011 4:54 pm
Hello There, This is my media request below, I forgot to attack my email address. If anyone is interested please do get in touch with me and I can explain...
823
Robyn Andrew
robynjaynean...
Jan 28, 2011 10:45 pm
Hi Lucy My Name is Robyn-Jayne, I have achondroplasia and recently I have finshed up on the limb lengthing. I am finishing my last year at school in June, at...
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Steve
stevenmattock
Jan 28, 2011 10:50 pm
Hi my name is steve my girl is 7 months with Acon how was it for u. ?? Sent from my iPhone...
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truebluemfg
Feb 1, 2011 1:50 pm
hi i wonder if anybody could help us!we have just found out that our 3 month old grandson finley has achondroplasia,the problem is that all the doctors we have...
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kristinacanipa
Feb 1, 2011 2:16 pm
Hi my name is Kristy and my 3 month old son Finley has just been diagnosed with achondroplasia, it was queried at birth and confirmed by genetics at Alder Hey...
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A Boorman
lisaatkinson79
Feb 1, 2011 3:44 pm
hi welcome to the group and congratulations on the birth of your son there is plenty of research on this site and also rga site, but it always good to talk to...
828
A
agrier923...
Feb 1, 2011 4:39 pm
Hello Kirsty, Welcome and congratulations with your son Finley. My name is Veronique and I have a 3 year old daughter Terra with achondroplasia. You seem very...
829
Rachele
rachelebloor@...
Feb 2, 2011 9:28 am
Morning all, Not been on for a while but had our routine check up with Archie yesterday and we've finally had it confirmed that he has Achondroplasia bless got...
