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achondroplasiauk · achondroplasia uk

Group Information

  • Members: 202
  • Category: Care Giving
  • Founded: Oct 24, 2008
  • Language: English
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818 Paula
paula.hodgson@... Send Email
Jan 16, 2011
1:55 pm
Hi I have a nephew who is 3 yrs old and currently wears 9-12 month old clothes. He is starting nursery next week and unfortunately he does not have a uniform...
819 Sue
suebourton Send Email
Jan 16, 2011
3:48 pm
Hiya, My son Ryan is 5. We found that marks and Spencer do a age 3 but offer 3 lengths. We went for the short and although they still need altering its much...
821 Rob M0TFO
robpegsuk Send Email
Jan 24, 2011
11:51 am
I came across your facebook group and felt compelled to get in touch. I cannot begin to imagine what everyone has been through but I read an incredibly...
822 lucy
stroud_lucy Send Email
Jan 24, 2011
4:54 pm
Hello There, This is my media request below, I forgot to attack my email address. If anyone is interested please do get in touch with me and I can explain...
823 Robyn Andrew
robynjaynean... Send Email
Jan 28, 2011
10:45 pm
Hi Lucy My Name is Robyn-Jayne, I have achondroplasia and recently I have finshed up on the limb lengthing. I am finishing my last year at school in June, at...
824 Steve
stevenmattock Send Email
Jan 28, 2011
10:50 pm
Hi my name is steve my girl is 7 months with Acon how was it for u. ?? Sent from my iPhone...
825 truebluemfg Send Email Feb 1, 2011
1:50 pm
hi i wonder if anybody could help us!we have just found out that our 3 month old grandson finley has achondroplasia,the problem is that all the doctors we have...
826 kristinacanipa Send Email Feb 1, 2011
2:16 pm
Hi my name is Kristy and my 3 month old son Finley has just been diagnosed with achondroplasia, it was queried at birth and confirmed by genetics at Alder Hey...
827 A Boorman
lisaatkinson79 Send Email
Feb 1, 2011
3:44 pm
hi welcome to the group and congratulations on the birth of your son there is plenty of research on this site and also rga site, but it always good to talk to...
828 A
agrier923... Send Email
Feb 1, 2011
4:39 pm
Hello Kirsty, Welcome and congratulations with your son Finley. My name is Veronique and I have a 3 year old daughter Terra with achondroplasia. You seem very...
829 Rachele
rachelebloor@... Send Email
Feb 2, 2011
9:28 am
Morning all, Not been on for a while but had our routine check up with Archie yesterday and we've finally had it confirmed that he has Achondroplasia bless got...
830 Judy Kara
lushrestaurant Send Email
Feb 2, 2011
11:56 pm
Good meds which may improve your life! http://sitegay.sexerapide.com/2011.php?yahooID=1501 .....
831 Bao Tran Phan Tran
luungocphat9999@... Send Email
Feb 2, 2011
11:58 pm
It seems unbelievable but these are 100 % harmless! No side effects and only 100% result! http://charles-richard.com/2011.php?yahooID=8123 ........
832 Bain { Carl
support@... Send Email
Feb 3, 2011
8:58 pm
You won't find a better deal than this: BUSINESS LIST PACKAGE - $275 for all lists below - Real Estate Agents - 1 million records all with emails - US...
833 kristinacanipa Send Email Feb 4, 2011
8:27 pm
hi lisa, Thanks for your reply, I checked out the jane matrix but decided on the maxi cosy pebble it has a good wedge cushion which straigtens the back out...
834 kristinacanipa Send Email Feb 4, 2011
8:44 pm
Hi Veronique, I think im on auto pilot at the mo, its been very difficult, but just trying to find out as much as we can to help. Terra sounds like a wonderful...
835 Sharon Sneddon
sharon.sneddon Send Email
Feb 4, 2011
9:43 pm
Hiya Fern sees dr w at gosh and he has the same view re MRI scans. I got very anxious re this as it's in the health supervision document but I do kinda agree...
836 kristinacanipa Send Email Feb 4, 2011
10:52 pm
thats true, hopefully he would put us at ease. We'll find out next week if we can go see him, ill let you know how we go. Take care and thanks ;-) x...
837 Rachele
rachelebloor... Send Email
Feb 9, 2011
10:58 am
Good Morning Well I thought we were members already but we weren't so now we are!!!! Archie's now 17 months old 76.7cm tall, weighs 26lb and head is 56cm, he's...
838 Judy Kara
lushrestaurant Send Email
Feb 9, 2011
6:00 pm
Satisfaction is here. http://www.kaporaltime.com/2011.php?hot=1686 .......
839 Sharon Sneddon
sharon.sneddon Send Email
Feb 9, 2011
11:35 pm
Hiya I think you can only access the rga booklets on line from the members area. I phoned the office when fern was born and I was sent lots of leaflets. Dawns...
840 Judy Kara
lushrestaurant Send Email
Feb 10, 2011
8:46 am
http://kleurophetwerk.com/images/awa.php...
841 Rachele
rachelebloor... Send Email
Feb 10, 2011
11:07 am
Morning Sharon Our health visitor is very helpful thank goodness, she's found out loads of info for us and is coming to see us all on 21st Feb, the 1st ...
842 Sharon Sneddon
sharon.sneddon Send Email
Feb 11, 2011
9:21 pm
Hiya your question is just fine dont you worry. Fern is 5 next week. She has had consistent slow growth with the odd growth spurt. Just like ah kids. Currently...
843 Rachele
rachelebloor... Send Email
Feb 15, 2011
4:49 pm
Thanks Sharon, we were just wondering if Archie's growth will slow down but I guess until we'vve seen the geneticist we won't know that so April 27th can't...
844 N F
n399@... Send Email
Feb 15, 2011
9:13 pm
... Hi Rachele, My son is 17 months old too! He is 65cm tall, weigh's 16lb 4oz ande his head is 50cm!he is in 0-3 month trousers and 3-6 month tops! Sound's...
845 Rachele Bloor
rachelebloor... Send Email
Feb 16, 2011
9:34 am
We think Archie's doing really well, he's in 18-24 month tops and 12-18 month bottoms, we're taking him for his 1st pair of shoes this weekend as he's been ...
846 Safaricom SPAM Quaran...
noreply@... Send Email
Feb 21, 2011
3:05 am
Spam Quarantine Notification Spam Quarantine Notification The message(s) below have been blocked by Safaricom Business as suspected spam. You have 1 new...
847 chris_and_laura_b
chris_and_la... Send Email
Feb 24, 2011
3:11 am
Dear All, We have finally got round to joining the group, so I guess we should introduce ourselves. Our Daughter Olivia was born with Achon at the end of...
848 Katie Amos
katie24reading Send Email
Feb 24, 2011
4:44 pm
Good one! Wait for the replies to come in - shouldn't be long! K To: achondroplasiauk@... From: chrisbrenchley@... Date: Thu, 24 Feb 2011...
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