You can set the sort order of messages? Just click on the link in the date column. Your preferences will be remembered, so you don't have to do it again when you return.
Hi there, Sorry for delay, not be on site for a few weeks. Sounds like Olivia was diagnosed around the same time as my son Finley, who was born at the end of...
my son is 2 and a half now and adores playing outside.He loves to play with older and younger brothers but he is becoming increasingly frustrated at not being...
Hello Lorraine, I know the frustration you are talking about. I bought for my daughter a specialised trike (no pedals)through the Bath Institute of Medical...
Fern loves playing in the I think little tikes car she sits in and pushes along with her feet. She used to just perch on the edge of the seat. They are in the...
Archie has a smart trike we bought it off amazon last year although he's not old enough to peddle it himself, we took him out in it for the 1st time last...
Hi everyone, hope things are going well? A few issues have come up with our son Finley 4 1/2 months. And I'm wondering if anybody knows of any good solutions. ...
hi there jamie was the same and still is at night he keeps waking up and needs settling back down again think it is a mixture of snoring and they say he moves...
Thanks for your comments Lisa, Finley's breathing is rubbish so that seems to make sense and he does like to shift from side to side. He is due to have a sleep...
Hi Kristy, Our little boy (not so little any more)! used to sleep with his head at almost right angles, it was just his way of finding a comfortable position...
hi kirsty jamie goes to hydro pool every week and sees his physio there which he loves it he has a great time, we have mention a brace but jamies spinal doctor...
Hi Mo, I'll try not to worry, he's due to have his first sleep study at AH in a couple of weeks so that should rule out anything serious. Like Bruce, Finley...
Hi Lisa, Im going to make sure I get the physio sorted out as soon as poss and see what my pead's thoughts are on a brace, Ill let you know what she think's. ...
... Hi Kristy, My son Odin is 2 and half years old and has achondroplasia (I too also have the condition, but my wife doesn't). Odin also had his spin sticking...
Hi David, What a fantastic little boy, Odin is absolutely adorable such a cutie, I must put some pics up of Finley its nice to know who we're all talking...
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charlottehaymesgoodey...
Mar 18, 2011 9:49 am
hi you all might remember me as fourdaughters1son....lottie mum to josh. anyway im tired of not being able to get clothes to fit him. i approached many people...
That sounds great Charlotte. However, there is a company called Ideal Fit - www.idealfit.co.uk It is owned and run by Randa Gowiely, who has a brother with...
Hi Charlotte, Excellent News! Bruce starts school in September so I'll be knocking at your door! Mo ________________________________ From: Ali Thomas...
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charlottehaymesgoodey...
Mar 18, 2011 8:20 pm
... hi val thanks for the info however ive looked at this site and its not running either, ive never heard of it???? i am offering a service aimed at the...
Thats great Charlotte, I wish you all the best with it. You may not be aware, but I have been there twice fold, or triple fold counting myself, so I do know...
Hi Lorraine My son Jack is 2 and a half now as well, and we have had similar problems finding sit and ride toys for him. We bought a Scuttlebug trike from...
Hi Lottie Thank goodness!! My sewing skills are particularly sketchy at the best of times, so your news was like music to my ears!! Good Luck, and keep us...
Hello, I might have mentioned it once before, but the specialised trike for children of restricted growth of the Bath Institute of Medical Engineering (BIME)...
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Randa
rgowiely@...
Mar 25, 2011 8:41 pm
Dear all, www.idealfit.co.uk - Now Online! For those of you who do not know me, my name is Randa Gowiely and I set up Ideal Fit. Ideal Fit offers an exclusive,...
hi, ive been wanting to find and have contact with parents with kids with the same condition as my daughter who as just turned 16, i would also like for her to...
ive been reading some of the messeges from some mums with babies that have just found out that they have achon i just want you to no that until now ive not...
Great to see you contributing to this group. It may be helpful to know there are a couple of companies that make clothes for people with restricted growth....
thanks for lettin me no where to look for clothes, we have never bothered befor we have always made do with what we could get local but now charlotte is...
Hi. My son is 8 and also has Pseudoachondroplasia. We live in Leicester,where abouts are you? We are members of the RGA and DSAUK which have been a big help to...
... hi im on facebook too, im not sure if you got my reply befor i think it went as an email instead of on this site. ive been on this site for an hour and its...
