Hi My name is Lucy, My wonderful friend Nikki is mother to Beautiful Kaed, 5yrs old with Achondroplasia. As I type, he is going into theatre to have a shunt...
Hi. My name is Emma Jarvis, I have a 2 year old with Achon. I haven't had any of the problems (yet!) with my son that your friend is facing. However, if she...
Hi Tina, My son Connor is 14 months old he also has the curve at the bottom of his spine (kyphosis) he was seen by the spinal Consultant who advised against...
Hiya, I to have a son with Achon he is 10mths. I haven't had any problems so far with what your friend is having with her son, but to be honest he hasn't even...
Hi all, I hope I am replying in the right place.... I just wanted to say thank you for all of your wonderful messages, it's so great to see a huge support...
Hi Lisa my son Connor was diagnosed with Achondroplasia at birth. He had xrays and an MRI within the first week that he was born which confirmed the diagnosis....
... Hi natasha My daughter is 3 and had never had any scans either so you arent alone. She was supposed to have one but didnt cooperate with the sedation at...
Hi Barry I tend to buy trouser for fern who is 3 that are cropped, and like lorraine that are young ie she still wears some 3-6month trousers. tops i just roll...
Hi Sharon, Thank you for your email, I had a chat with Ethan's pead about the mri scan.. He said he would look into it for me, but his views as they stand at...
... This is a complicated one and it depends for what purposes you mean "classified as a disability" and who gives that classification. Other people can...
hi tasha,, i was able to look for the charts.. could you kindly send me charts for adults with achondroplasia because most of my respondents are 18 years old...
you can always get them shortened your local haberdashery or dress alteration services will do that. I have achondroplasia, and I get my clothes shortened....
thank you so much tasha.. i really appreciate your help..take care Get connected with chat on network profile, blog, or any personal website! Yahoo! allows you...
Hi All Back in November Connor saw the ENT consultant due to his sleep apnea. He went for an x-ray the same day. When the results of the x-ray came back we...
- Hi Fiona, I am very happy to hear this news...poor Connor has really been through it lately so good news regarding his adeniods and I'll be thinking of you...
I would love to offer any advice but am average height and my daughter too young, but goodluck and thanks for taking an interest in Achondroplasia. Best...
hi moira, sorry for not ringing you but i have mislaid your number and having builders in the past 2 weeks, i have just put the whole possible operation to the...
My best friend of over 20 years has just had a baby on Monday 15th March. He's a darling little boy but Doctors have diagnosed Achondroplasia and they've been...
Hi Helen Its hard but tell your friend she is not alone. My daughter is 3 with achon and sees someone at great ormond street, if she has been refered to the...
Hiya Helen, I gave birth to twins in April last year, one has Acon the other doesn't. I first got told at my 29wk scan that Ethan may have achon,i had other...
... Hi helen, What a great friend to have, i too was in shock when i found out about my daughter Lailou....my sister like you contacted various support groups...
Just want to say a big thanks to all those kind people that responded to my message about helping my friend, Alison and her little boy Callum. She was amazed...
