my husband mike has fribromaiga and who like to here from others

Hello and welcome to all the newbies
   I sincerely apologise for not having responded long before now .My
only exuse is there didn't seem to be much point as the activity on the
site is very limited .I am not saying it is anyone's fault ...I am as
much to blame as the next person and it is only my personal opinion .
   Iwas dx'ed  Fibromyalgia many years ago along with countless other
autoimmune diseases for which as yet, there is no known cause / cure .
   I am 67 years young and I try to take as little medication as
possible on account of all the side effects .I  have found that
excercise is the only thing that helps ,so I try to go swimming at
least two to three times a week ,it doesn't cure it but it helps a
little .
  If you would like to e-mail me personally you are more than welcome to
do so .brenda.mccoll@btinternet .com
I wish you all well
Hugs
Brenda

Hi
I am new to this group my wife has had fibro for many years now and
know she will never be her old self again, but she gets little in the
way of pain killer's little in the way of sleep, walking is a nightmare
for her and during the day she will have to go for a lie down as she is
so tried and sore I even try and give her peace by helping with the
house,what I am asking is what could she have in the way of pain
killer's or some thing to help her just to get a good night's sleep.
The doc has only given her anti infaml tablets is there any else the
doctor could give her. Any advice would be great.
regards
David

I'm new to this group and i hope that i may be able to make some
friends and have a chat about fibro to others.

I will be sorting out a page on the net with some pics that i have
taken over the last few years and i hope that you enjoy looking at
them as much as i have when i took them.

i am 35 and had a diagnosis of fibro 6 years ago i also have
degeretive arthritis of my spine and other probs as well but a lot of
you know the sorts of things that i am on about feel free to contact
me look forward to hearing from you soon take care and may your god
bless you and keep you safe

regards steve

I'm new to this group and i hope that i may be able to make some
friends and have a chat about fibro to others.

I will be sorting out a page on the net with some pics that i have
taken over the last few years and i hope that you enjoy looking at
them as much as i have when i took them.

i am 35 and had a diagnosis of fibro 6 years ago i also have
degeretive arthritis of my spine and other probs as well but a lot of
you know the sorts of things that i am on about feel free to contact
me look forward to hearing from you soon take care and may your god
bless you and keep you safe

regards steve

Hi all

Sorry for the no update on the website and the newsletter delay I have
been down in Dorset more than Nottingham at the moment.

I would like to welcome Liz and I will post and put in the newsletter
the vitamins, etc recommended for fibro and chronic pain sufferers that
I obtained at the conference in London a couple of years ago.

The newsletter will be sent out on my arrival home and the website
updated shortly.

Thanks for all your support and if there is anyone in the Dorset or
South Somerset area that would like to start a social meet-up for
Fibromyalgia and Chronic Pain Syndrome sufferers please let me know.

Thanks

Nicola
Founder of Fibro Friends

Hi, my name is liz and I was diagnosed with fibromyalgia 8 yrs ago it
would be great to hear from anyone who has come across treatments or
medication which they feel helps with their condition.

liz

Hi all!!

Welcome to the new members, sorry that I have not posted sooner to do
this, but I have been away at a funeral.  Apologises for no update on
the newsletter and there may be a delay in the new one.

Thanks again Yvonne!!!

An interesting news article from the Nottingham Evening Post that
particularly those from Nottingham need to be aware of:

http://www.thisisnottingham.co.uk/displayNode.jsp?
nodeId=133942&command=displayContent&sourceNode=201398&home=yes&more_n
odeId1=133951&contentPK=14751440

Basically people who have no medical knowledge may take the blue
badges off people who don't look disabled and as we know those of us
with blue badges that this is an added burden for these sorts of
things.  The scammers who are don't this who don't need the badge but
is a quick money making scheme.  Sorry about the rant...

Anyway on a lighter note, the next meal in Nottingham is on the 7th
July at the Old Spot in Daybrook, we are working towards a slightly
later time of 1pm to allow others to join us.

Speak to you all soon.

Nicky
Founder Of Fibro Friends

Hi my name is Olivis i have fibro had it for 20 years. it's nice to
know there is other fibro's out there, that i can talk to.

Hi all!!

I am back!! Although it's been quite an exciting time for me.  With
this in mind I hope to set up some form of South West group in the very
near future.  Watch this space!!  Anybody in the Dorset/Somerset area
who would be interested in meeting up please let me know.  I am also
learning to drive so I can reach many more people once I pass!!!

I would like to apologise to those of you who may have been trying to
call me during the past few weeks.  I think it may be that I will need
to re-think the helpline situation and perhaps transfer the calls to my
mobile, although the signal on Orange is poor down where I would be
staying.

I also must apologise for no updates on the website, for the same
reason that I have been away.  I would like to thank Yvonne for
stepping in and minding this group and hope she is happy to continue as
and when she can.  Although I have noticed we've all gone a bit quiet?!?

Just to let those of you in the Nottingham area who are coming to the
next meal that the location has been changed to the Old Spot in
Daybrook, Nottingham.  We had particularly poor meals and service at
the Willow Tree last Friday and this hasn't been the first time.  It
was bad enough that the manager refunded all the meals.  So it will be
the same time as 12.30pm.  Should anyone need any lifts please let me
know.

Anyway I think that's all my news!!  I hope you are all keeping as well
as possible.  I hope to speak or see messages from you soon!!!

Nicky

Hi all

Yvonne will be looking after the message board in my absence.  So any
postings will go through her for approval (this one as well all being
well!).

I hope that you keep up the communication while I am away.

Thanks Yvonne again.

Nicky

Hi all

Having just got back from my rest and relaxation.  It has become
necessary for me to be away for about 10 days from Friday of this week.

Unfortunately that does leave me back for one week before I am on
holiday again for a week.

I am sorry for any inconvenience this may cause in postings.  I would
ask that if someone would like to help with this for the next couple of
months.  Just to moderate, all this involves is no advertising for
products being on the messages, just the postings of the friends.  I
may be able to find a hot spot while I am away to get any messages
published but would help if someone would volunteer to help me.

I hope someone can to keep the group moving forward.

Thanks

Nicky

Hi Stu

So pleased for u.  I have popped on and posted this for you.

Having plenty of rest, relaxation and red wine.

Nicky

Hello all!

Just to let you know that I was granted DLA!! It only took one appeal  -
  they sent a doctor out to assess me and I wrote a really long letter
explaining in full how deeply this pain and immobility affects me and
they granted it!

Have a nice holiday Nicky - get some red wine (or local cider) down you
and just chill out!

All the best

Stuart

Hi all

I am taking a weeks break away from tomorrow to visit family so as I am
the moderator if you post anything in the next week it may take a
couple of days to be posted.  I hope to be able to access the Internet
at some point while I am away but cannot promise.

Sorry for any inconvenience this may cause.

Nicky

Hi all

Just a quick message to say Happy Easter to all fibro friends.

Nicky

Hi all

The next meal in Nottingham has been changed to the 21st April due to
holidays,etc.

I hope you can come along.

Nicky

Hi Stuart
   I'm happy for you getting your diagnosis after all this time ,but
sorry for it having taken so long . I can understand your frustration
as these things seem to take forever .
   I sincerely hope that it wont be too long before your financial
situation sorts itself out ,as I do know what it's like - having been
down that road myself many years ago .
Take care of each other
Best wishes
Hugs
Brenda

LIVING WITH a Chronic Illness

I wish they could walk in my shoes for a day
Then they wouldn't be so quick to say
"But you don't look sick .you're looking okay "
Then they give me that look as if to say
"You're not really ill, it's all in your head "
Well I don't care what they think: I'm going to bed
Having A chronic disease might make you feel needy
Having three of them makes you feel downright greedy
Water infections that make me feel drained
Have I taken my pills? Can't recall, fuzzy brained
My body thinks it's been hit by a tram
Am I getting the flu? No; it just feels like I am
My eyes and my mouth are screaming for fluids
I'm on more medication than I know what to do with
To read a good book was a pleasure of mine
Now the print goes askew by the third or fourth line
Two inhalers so I am able to breathe
Two red hands stemming from a liver disease
The itching starts and I tear at my skin for satisfaction
The men in white coats will soon have me in traction
Every muscle and sinew is ever so sore:
In fact I think I'll lie down on the floor
The soles of my feet feel as if they're on fire
A bucket of ice is what I desire
I've cleaned half the kitchen: and you know it looks grand
Now if only someone would give me a hand
To finish the job because my oomph is all spent
I don't know where it's gone
It just got up and went
Don't give me your pity: that's the last thing I want
Understanding and laughter are what I am after
Because they do me more good than any medicine could
So the next time someone tells me:" you don't look sick
You look rather well"
I'll smile very sweetly before I yell
GO TO ****

Hi Everyone.

Well after seven months of tests, x-rays & MRI scans my Consultant
has diagnosed me with chronic pain and referred me to a specialist
Pain Management Clinic at Frenchay Hospital in Bristol.

I've had a bit of a nightmare over the last four weeks or so.  The
Benefits Agency have refused me Incapacity Benefit despite the fact
my employer dismissed me due to ill health and I have no other
income.  Their superb system failed my application due to £36 in
unpaid NI contributions!!!!   I paid the outstanding amount and now
they say I have to wait six weeks before I get any money!!

I've applied for Disability also - as regular readers will remember
that I suffer with pain in my back and legs making it impossible for
me to walk without assistance - the Doctor came out to assess me and
I have to wait another six weeks for that decision also!

My regular medication has been changed recently also and that played
havoc with me too!  My wife will tell you, I was a pleasure to live
with for three or four days until I settled down and got used to it.

My daily concoction is:

3 x 50mg diclofenac
8 x 50mg tramadol
6 x 300mg gabapentin
1 x 200mg omeprazole

Anyway - it's Easter and I hope you all have a pain-free time and get
lots of Easter Eggs.

Take Care

Stu