Nice to meet you all. Sounds like you all have a really good support network
for youth RP.



When I was diagnosed I was put in contact with another person around my age
with RP. We have never met and there are no youth forums here that I am
aware of.



I get the Australian newsletter but it is aimed at the older generation.
Gardening tips etc.



I notice you all share articles on latest research etc. I am really looking
forward to having another source of information to see what may be out there
for our futures!



_____

From: m.georg@... [mailto:m.georg@...]
Sent: Friday, 18 March 2005 11:36 PM
To: retinayouth@...
Subject: Re: [retinayouth] Hello




Hey Juha,
Welcome to our community.
As I notice they technical problems seems to be solved.
We have already been in contact through Pekka.
Hope to meet you in Stockholm this summer.
Best regards,
Markus


Juha Nordman <vili.saunatonttu@...> schrieb am 18.03.2005,
11:31:04:
>
> Hello
>
>
>
> My name is juha and I am from Finland. I am member of the board in Finish
RP
> associaton and I am the youth contact person in Finland. I have retinitis
> Pigmentosa. I
> was diagnosed at 25yrs and am now 30yrs. I just finishing my studies in
> Turku Polytechnic (Business Logistics)
>
>
>
> regards juha
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
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