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Reply | Forward Message #715 of 1255 |
Today brought the postman me a letter I have been waiting for, the
paper telling me what time and date I am going to Lund to get a
proper examination of my RP.

In Sweden the healthcare is divided into 20 separate areas depending
where in the country you live. I live in Stockholm and have asked my
eyedoctors here to give me a paper that would allow be examined in
Lund where they are the best in Sweden when it comes to RP. This way
it would not cost me more than a normal visit to the doctor. But the
healthcare department in my area has refused since this would cost
them money and since there is any how no cure for RP anyhow.

So I got tired this autumn and contacted Lund to go there private.
They accepted this, very friendly, explained to me that this is a
whole day session, from 8.30 in the morning until 4 á clock in the
afternoon. Including both examinations and question sessions.

I am quite aware that they will not be able to cure my RP, but I wont
to know as much as possible about my RP. I have no relatives who has
RP, and I would like to know what they can say about the prognose, I
want somebody who can explain how my vision works from a medical
point of view. Of course there is a major risk that they can not tell
me anything, but then have I search for the answers as far as I can
do within Swedens borders.

The time they gave me is friday before Christmas, so now it is
waiting time.

Sorry for talking so much about me, right now am I little bit upset
and can't explain why and how, not even to my boyfriend, maybe some
of you can understand.
Hugs
/Caisa





Thu Nov 7, 2002 9:17 pm

cramshage
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Message #715 of 1255 |
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Today brought the postman me a letter I have been waiting for, the paper telling me what time and date I am going to Lund to get a proper examination of my RP....
Caisa
cramshage
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Nov 7, 2002
9:17 pm

Dear Caisa, I understand very well what you are talking about. Anyway, I guess nobody without RP can really understand it. In my opinion those guys can listen...
m.georg@...
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Nov 7, 2002
11:56 pm

Hallo Caisa! Yvonne from the Netherlands calling! What a lovely letter! Good news too! When you go to Lund perhaps you will meet B. Ehinger - he is a fantastic...
R. van der Wiel
wielromp@...
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Nov 8, 2002
9:00 am

Thanks a lot both Yvonne and Markus, you are so lovely. Yvonne, I hope I will at least have time to say hello to Berndt Ehinger and as well to a wonderful...
Caisa
cramshage
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Nov 10, 2002
9:25 pm

Greetings Markus ! I myself visited an information event in Münster last year. Many researchers have been there to explain RP patients and opthalmologists the...
altunok1@...
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Nov 11, 2002
12:10 pm

Hello, it's me again from USA, There will be a next youth meeting in Hannover at beginning of 2003. I do not know actually the exact date. Ute Pfannschmidt and...
m.georg@...
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Nov 12, 2002
11:13 pm

Hi Caisa, Noreen Power-Waldron from Ireland here. I can fully sympathise with how you feel - it's very difficult to deal with a condition when you don't know ...
Noreen Power Waldron
nrpower@...
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Nov 13, 2002
1:01 pm

ups, i didn't check my mail att this address fore some time so they closed my account, but now i am up and running again. I wanted to ask Caisa if she has...
anna.berndtson@...
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Nov 13, 2002
2:58 pm

Dear Anna and everybody, A lot of the peoples with RP notice this black dots. I have really no idea where they come from. But I have heard this might be the...
m.georg@...
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Nov 14, 2002
7:04 pm

Hello Anna, Thank you for your kind offer. We will stay at a friend in Hässleholm, so there is no need for room, but thank you anyway. Now I have asked some...
Caisa
cramshage
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Nov 21, 2002
5:14 pm
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