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Re: [retinayouth] A letter

Hallo Caisa!

Yvonne from the Netherlands calling! What a lovely letter! Good news too!
When you go to Lund perhaps you will meet B. Ehinger - he is a fantastic
person - we met at the RI 1998 in Lugano.

It was interesting to read how Swedish healthcare is organized. We will keep
our fingers crossed for you on friday before Christmas. We too had one of
those days - at the end you are "pooped" as the Americans say - or totally
whiped out! The only thing you will be able to do at the end of the day is
role into bed! But you will find it interesting. Do not expect to hear too
many answers that day - a number of tests have to be processed and
evaluated. (In Jacquelines case we were dissapointed that the only thing we
heard that it was RP and that she would be blind when she was about 19 - you
met her in Poland when she was 19 and she can still read books with normal
letters) This was more than ten years ago - now a days the prof´s have
become more careful.

It´s a pity that I do not know what you mean by wanting to hear how your
vision works from a medical point of view, it´s so difficult to talk via the
computer! As you know I talk with hands and feet - so typing into this
machine is a disaster for me!

Please mail me if you think I can help!
Love for you and the rest of our list and RP family,
Yvonne van der Wiel-Rompa




Fri Nov 8, 2002 9:00 am

wielromp@...
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Message #717 of 1255 |
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Today brought the postman me a letter I have been waiting for, the paper telling me what time and date I am going to Lund to get a proper examination of my RP....
Caisa
cramshage
Offline Send Email
Nov 7, 2002
9:17 pm

Dear Caisa, I understand very well what you are talking about. Anyway, I guess nobody without RP can really understand it. In my opinion those guys can listen...
m.georg@...
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Nov 7, 2002
11:56 pm

Hallo Caisa! Yvonne from the Netherlands calling! What a lovely letter! Good news too! When you go to Lund perhaps you will meet B. Ehinger - he is a fantastic...
R. van der Wiel
wielromp@...
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Nov 8, 2002
9:00 am

Thanks a lot both Yvonne and Markus, you are so lovely. Yvonne, I hope I will at least have time to say hello to Berndt Ehinger and as well to a wonderful...
Caisa
cramshage
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Nov 10, 2002
9:25 pm

Greetings Markus ! I myself visited an information event in Münster last year. Many researchers have been there to explain RP patients and opthalmologists the...
altunok1@...
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Nov 11, 2002
12:10 pm

Hello, it's me again from USA, There will be a next youth meeting in Hannover at beginning of 2003. I do not know actually the exact date. Ute Pfannschmidt and...
m.georg@...
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Nov 12, 2002
11:13 pm

Hi Caisa, Noreen Power-Waldron from Ireland here. I can fully sympathise with how you feel - it's very difficult to deal with a condition when you don't know ...
Noreen Power Waldron
nrpower@...
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Nov 13, 2002
1:01 pm

ups, i didn't check my mail att this address fore some time so they closed my account, but now i am up and running again. I wanted to ask Caisa if she has...
anna.berndtson@...
Send Email
Nov 13, 2002
2:58 pm

Dear Anna and everybody, A lot of the peoples with RP notice this black dots. I have really no idea where they come from. But I have heard this might be the...
m.georg@...
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Nov 14, 2002
7:04 pm

Hello Anna, Thank you for your kind offer. We will stay at a friend in Hässleholm, so there is no need for room, but thank you anyway. Now I have asked some...
Caisa
cramshage
Offline Send Email
Nov 21, 2002
5:14 pm
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