Thanks a lot both Yvonne and Markus, you are so lovely.

Yvonne, I hope I will at least have time to say hello to Berndt
Ehinger and as well to a wonderful fellow countryman of yours: Theo
van Veen (also a researcher in Berndts team).

I try to explain what I mean with "to hear how my
vision works from a medical point of view". For example I sometimes
see things that I bump in to before I bump into them, it is just like
my control of how distant things are doesn't work properly. I haven't
had the opportunity to ask any eye doctor if that is an RP-related
problem and if that kind of trouble is something that can get worse.
Another example are the "yellow worms" and "black dots" that
sometimes "swims" around in my vision what they really are, and why I
don't always see them. And what about my glaukom (not sure if I am
using the right name here, the unclear things in the lens) does that
yet have an impact on my vision field or accusity?

Hope this explanation was a little bit better.

It was a good point of yours that they propably will have to process
the test results.

Markus, it was interesting to here about your seminar "basis
knowledge for research". Is it possible to get som abstracts or
agenda from that meeting? Maybe we could do something similar in
Sweden.

Once again thanks for your support. Yvonne, say hello to your
daughters from me, I'm looking forward to see them in the Netherlands
and maybe in Paris before that. Markus, I hope the yankees are kind
to you and that you will come back to Europe until the next REY-
meeting.
/Caisa



--- In retinayouth@y..., "R. van der Wiel" <wielromp@w...> wrote:
> Hallo Caisa!
>
> Yvonne from the Netherlands calling! What a lovely letter! Good
news too!
> When you go to Lund perhaps you will meet B. Ehinger - he is a
fantastic
> person - we met at the RI 1998 in Lugano.
>
> It was interesting to read how Swedish healthcare is organized. We
will keep
> our fingers crossed for you on friday before Christmas. We too had
one of
> those days - at the end you are "pooped" as the Americans say - or
totally
> whiped out! The only thing you will be able to do at the end of the
day is
> role into bed! But you will find it interesting. Do not expect to
hear too
> many answers that day - a number of tests have to be processed and
> evaluated. (In Jacquelines case we were dissapointed that the only
thing we
> heard that it was RP and that she would be blind when she was about
19 - you
> met her in Poland when she was 19 and she can still read books with
normal
> letters) This was more than ten years ago - now a days the prof´s
have
> become more careful.
>
> It´s a pity that I do not know what you mean by wanting to hear how
your
> vision works from a medical point of view, it´s so difficult to
talk via the
> computer! As you know I talk with hands and feet - so typing into
this
> machine is a disaster for me!
>
> Please mail me if you think I can help!
> Love for you and the rest of our list and RP family,
> Yvonne van der Wiel-Rompa