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Re: [retinayouth] A letter

Greetings Markus !

I myself visited an information event in Münster last year. Many researchers
have been there to explain RP patients and opthalmologists the current stand
of research.

On one side it was really interesting of being informed about the daily work
researchers are dealing with. But the informations which were given were
much too specific. In fact i understood much of them what they were talking
about but they couldnt give an overview of the whole research. As a result i was
a little bit dissappointed.

So i think it makes much more sense to make such organisations like " basic
knowledge about research". Will that be repeated one day and do you have a
date?

I sometimes try to find informations in the internet but cant find any pages
which are at the current level.

By the way, will there be a RPY meeting in the near future ?

--
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Mon Nov 11, 2002 12:10 pm

altunok1@...
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Message #719 of 1255 |
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Today brought the postman me a letter I have been waiting for, the paper telling me what time and date I am going to Lund to get a proper examination of my RP....
Caisa
cramshage
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Nov 7, 2002
9:17 pm

Dear Caisa, I understand very well what you are talking about. Anyway, I guess nobody without RP can really understand it. In my opinion those guys can listen...
m.georg@...
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Nov 7, 2002
11:56 pm

Hallo Caisa! Yvonne from the Netherlands calling! What a lovely letter! Good news too! When you go to Lund perhaps you will meet B. Ehinger - he is a fantastic...
R. van der Wiel
wielromp@...
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Nov 8, 2002
9:00 am

Thanks a lot both Yvonne and Markus, you are so lovely. Yvonne, I hope I will at least have time to say hello to Berndt Ehinger and as well to a wonderful...
Caisa
cramshage
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Nov 10, 2002
9:25 pm

Greetings Markus ! I myself visited an information event in Münster last year. Many researchers have been there to explain RP patients and opthalmologists the...
altunok1@...
Send Email
Nov 11, 2002
12:10 pm

Hello, it's me again from USA, There will be a next youth meeting in Hannover at beginning of 2003. I do not know actually the exact date. Ute Pfannschmidt and...
m.georg@...
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Nov 12, 2002
11:13 pm

Hi Caisa, Noreen Power-Waldron from Ireland here. I can fully sympathise with how you feel - it's very difficult to deal with a condition when you don't know ...
Noreen Power Waldron
nrpower@...
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Nov 13, 2002
1:01 pm

ups, i didn't check my mail att this address fore some time so they closed my account, but now i am up and running again. I wanted to ask Caisa if she has...
anna.berndtson@...
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Nov 13, 2002
2:58 pm

Dear Anna and everybody, A lot of the peoples with RP notice this black dots. I have really no idea where they come from. But I have heard this might be the...
m.georg@...
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Nov 14, 2002
7:04 pm

Hello Anna, Thank you for your kind offer. We will stay at a friend in Hässleholm, so there is no need for room, but thank you anyway. Now I have asked some...
Caisa
cramshage
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Nov 21, 2002
5:14 pm
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