Sign In
New User? Sign Up
retinayouth · Network of young people with retina degenerations
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
You can search the group for older messages.

Messages

  Messages Help
Advanced
A letter   Message List  
Reply | Forward Message #720 of 1255 |
Re: Re: [retinayouth] A letter

Hello, it's me again from USA,
There will be a next youth meeting in Hannover at beginning of 2003.
I do not know actually the exact date. Ute Pfannschmidt and Manuel Ott
are the organizers for this event. Maybe Manuel can put some more
information into the mailing list as soon as available.
Nevertheless, it will be announced on the homepage and in German youth
magazine "Durchblick" which you certainly already subscribed (or?).

By the way, as far as I know you are living in the Ruhrgebiet where also
regional youth meetings were hold nearly every month. For the next date
please ask Simone Brucker.


The seminar that I have participated was hold in Bad Liebenzell
(Schwarzwald). Helma Gusseck organized it on behalf of the Pro Retina
section research. Mean purpose was to involve people into the work of
this special section within our organization in order to win them as
active members who support this special field. A lot of work is to do to
support the scientists and to provide all the news of research to the
big community of members of Pro Retina Deutschland.
Some participants became active part of this important section in order
to work together for research. If you are interested in more details
please contact Helma Gusseck.
There was a minutes of meeting about this seminar but unfortunately I do
not have it with me in the USA.

The meeting in Muenster was a patient symposium that is frequently held
on different places in Germany. The next one will be end of this year in
Tuebingen.

So, if you need more information, dates, addresses please feel free to
send an email.

Yours,
Markus

altunok1@... schrieb am 11.11.2002, 13:10:18:
> Greetings Markus !
>
> I myself visited an information event in Münster last year. Many researchers
> have been there to explain RP patients and opthalmologists the current stand
> of research.
>
> On one side it was really interesting of being informed about the daily work
> researchers are dealing with. But the informations which were given were
> much too specific. In fact i understood much of them what they were talking
> about but they couldnt give an overview of the whole research. As a result i
was
> a little bit dissappointed.
>
> So i think it makes much more sense to make such organisations like " basic
> knowledge about research". Will that be repeated one day and do you have a
> date?
>
> I sometimes try to find informations in the internet but cant find any pages
> which are at the current level.
>
> By the way, will there be a RPY meeting in the near future ?



Tue Nov 12, 2002 11:13 pm

m.georg@...
Send Email Send Email

Forward
Message #720 of 1255 |
Expand Messages Author Sort by Date

Today brought the postman me a letter I have been waiting for, the paper telling me what time and date I am going to Lund to get a proper examination of my RP....
Caisa
cramshage
Offline Send Email
Nov 7, 2002
9:17 pm

Dear Caisa, I understand very well what you are talking about. Anyway, I guess nobody without RP can really understand it. In my opinion those guys can listen...
m.georg@...
Send Email
Nov 7, 2002
11:56 pm

Hallo Caisa! Yvonne from the Netherlands calling! What a lovely letter! Good news too! When you go to Lund perhaps you will meet B. Ehinger - he is a fantastic...
R. van der Wiel
wielromp@...
Send Email
Nov 8, 2002
9:00 am

Thanks a lot both Yvonne and Markus, you are so lovely. Yvonne, I hope I will at least have time to say hello to Berndt Ehinger and as well to a wonderful...
Caisa
cramshage
Offline Send Email
Nov 10, 2002
9:25 pm

Greetings Markus ! I myself visited an information event in Münster last year. Many researchers have been there to explain RP patients and opthalmologists the...
altunok1@...
Send Email
Nov 11, 2002
12:10 pm

Hello, it's me again from USA, There will be a next youth meeting in Hannover at beginning of 2003. I do not know actually the exact date. Ute Pfannschmidt and...
m.georg@...
Send Email
Nov 12, 2002
11:13 pm

Hi Caisa, Noreen Power-Waldron from Ireland here. I can fully sympathise with how you feel - it's very difficult to deal with a condition when you don't know ...
Noreen Power Waldron
nrpower@...
Send Email
Nov 13, 2002
1:01 pm

ups, i didn't check my mail att this address fore some time so they closed my account, but now i am up and running again. I wanted to ask Caisa if she has...
anna.berndtson@...
Send Email
Nov 13, 2002
2:58 pm

Dear Anna and everybody, A lot of the peoples with RP notice this black dots. I have really no idea where they come from. But I have heard this might be the...
m.georg@...
Send Email
Nov 14, 2002
7:04 pm

Hello Anna, Thank you for your kind offer. We will stay at a friend in Hässleholm, so there is no need for room, but thank you anyway. Now I have asked some...
Caisa
cramshage
Offline Send Email
Nov 21, 2002
5:14 pm
Advanced

Copyright © 2009 Yahoo! UK. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help