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Reply | Forward Message #723 of 1255 |
Re: [retinayouth] A letter

ups, i didn't check my mail att this address fore some time so they closed
my account, but now i am up and running again.

I wanted to ask Caisa if she has anywhere to stay in the south, when you
are going to Lund, i am from malmö and I don't know if I am there (what is
the eyact date) but maybe you could still stay with my parents, if I am not
back yet? shall i ask them? That would be in malmö then, acctualy in Limhamn,
you would have to take a buss to the train station ca 20min and a train to
lund ca 20min and then i don't know... maybe it's to complecated. what do
you say?

another thing -
I don't know about you gyes but I don't just have this "floters" consisting
of dead cells but I also have worm that consist of flaches of light - how
could they be dead cell? no, I think this is yea again another thing (as
I wrote in a preavious mail - phantom light, like phantom pains just it's
not a pain but a light the accures)
what do you say?

all the best Anna

>The worms and black dots in your eyes are 'floaters' - they are free
>radicals (dead cells, etc) which are not being cleared out of your body.

>-- Ursprungligt meddelande --
>To: <retinayouth@...>
>From: "Noreen Power Waldron" <nrpower@...>
>Date: Wed, 13 Nov 2002 12:50:42 -0000
>Subject: Re: [retinayouth] A letter
>Reply-To: retinayouth@...
>
>
>Hi Caisa,
>Noreen Power-Waldron from Ireland here. I can fully sympathise with how
>you
>feel - it's very difficult to deal with a condition when you don't know
>anything about it, this is obviously one of the issues that needs to be
>covered in the Netherlands Congress.
>In the meantime, I have attached some brochures which I put together for
>Fighting Blindness Ireland - I hope that they might be of some use to you.
>In terms of looking after what sight you have, it's important to have a
good
>diet with lots of brightly coloured vegetables and fruit, some seeds and
>nuts (the oil in these is important for your eyes), and plenty of water
to
>flush out toxins. It's also important to avoid foods containing artificial
>sweeteners and monosodium glutamate (I don't know how these translate) as
>these are retinal toxins and are very damaging to eyesight.
>The worms and black dots in your eyes are 'floaters' - they are free
>radicals (dead cells, etc) which are not being cleared out of your body.
>Eating foods with antioxidants (brightly coloured fruit and vegetables)
can
>help to 'mop up' these free radicals.
>I don't know if this information of any use to you, maybe you know most
of
>it already. If I come accross any information which I think might be
>useful, I will send it on.
>Kind regards,
>Noreen.
>----- Original Message -----
>From: Caisa <ramshage@...>
>To: <retinayouth@...>
>Sent: 07 November 2002 21:17
>Subject: [retinayouth] A letter
>
>
>Today brought the postman me a letter I have been waiting for, the
>paper telling me what time and date I am going to Lund to get a
>proper examination of my RP.
>
>In Sweden the healthcare is divided into 20 separate areas depending
>where in the country you live. I live in Stockholm and have asked my
>eyedoctors here to give me a paper that would allow be examined in
>Lund where they are the best in Sweden when it comes to RP. This way
>it would not cost me more than a normal visit to the doctor. But the
>healthcare department in my area has refused since this would cost
>them money and since there is any how no cure for RP anyhow.
>
>So I got tired this autumn and contacted Lund to go there private.
>They accepted this, very friendly, explained to me that this is a
>whole day session, from 8.30 in the morning until 4 á clock in the
>afternoon. Including both examinations and question sessions.
>
>I am quite aware that they will not be able to cure my RP, but I wont
>to know as much as possible about my RP. I have no relatives who has
>RP, and I would like to know what they can say about the prognose, I
>want somebody who can explain how my vision works from a medical
>point of view. Of course there is a major risk that they can not tell
>me anything, but then have I search for the answers as far as I can
>do within Swedens borders.
>
>The time they gave me is friday before Christmas, so now it is
>waiting time.
>
>Sorry for talking so much about me, right now am I little bit upset
>and can't explain why and how, not even to my boyfriend, maybe some
>of you can understand.
>Hugs
>/Caisa
>
>
>
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Wed Nov 13, 2002 2:58 pm

anna.berndtson@...
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Forward
Message #723 of 1255 |
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Today brought the postman me a letter I have been waiting for, the paper telling me what time and date I am going to Lund to get a proper examination of my RP....
Caisa
cramshage
Offline Send Email
Nov 7, 2002
9:17 pm

Dear Caisa, I understand very well what you are talking about. Anyway, I guess nobody without RP can really understand it. In my opinion those guys can listen...
m.georg@...
Send Email
Nov 7, 2002
11:56 pm

Hallo Caisa! Yvonne from the Netherlands calling! What a lovely letter! Good news too! When you go to Lund perhaps you will meet B. Ehinger - he is a fantastic...
R. van der Wiel
wielromp@...
Send Email
Nov 8, 2002
9:00 am

Thanks a lot both Yvonne and Markus, you are so lovely. Yvonne, I hope I will at least have time to say hello to Berndt Ehinger and as well to a wonderful...
Caisa
cramshage
Offline Send Email
Nov 10, 2002
9:25 pm

Greetings Markus ! I myself visited an information event in Münster last year. Many researchers have been there to explain RP patients and opthalmologists the...
altunok1@...
Send Email
Nov 11, 2002
12:10 pm

Hello, it's me again from USA, There will be a next youth meeting in Hannover at beginning of 2003. I do not know actually the exact date. Ute Pfannschmidt and...
m.georg@...
Send Email
Nov 12, 2002
11:13 pm

Hi Caisa, Noreen Power-Waldron from Ireland here. I can fully sympathise with how you feel - it's very difficult to deal with a condition when you don't know ...
Noreen Power Waldron
nrpower@...
Send Email
Nov 13, 2002
1:01 pm

ups, i didn't check my mail att this address fore some time so they closed my account, but now i am up and running again. I wanted to ask Caisa if she has...
anna.berndtson@...
Send Email
Nov 13, 2002
2:58 pm

Dear Anna and everybody, A lot of the peoples with RP notice this black dots. I have really no idea where they come from. But I have heard this might be the...
m.georg@...
Send Email
Nov 14, 2002
7:04 pm

Hello Anna, Thank you for your kind offer. We will stay at a friend in Hässleholm, so there is no need for room, but thank you anyway. Now I have asked some...
Caisa
cramshage
Offline Send Email
Nov 21, 2002
5:14 pm
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