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retinayouth · Network of young people with retina degenerations
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Reply | Forward Message #947 of 1255 |
thank you

A word of thanks from me too. It was historic to have a program for youth
connected with the international congress and a great idea. I really
enjoyed the dialogues we shared and getting to know you all better.

In terms of getting more into business concerning EU-funding I totally
agree with Markus - we could have reached further in getting more concrete,
but then again this can easily be done via email. I guess our first step is
focusing on Sweden next year and by when we should have a possible
application ready - not to say - who sends it?
At the same time I would ask you all to try to get into the budget for next
year some money set aside for REY/RIY activities. How they are distributed
can be settled later, but make sure to put in a proposal to you national
organizations as soon as possible.

Thanks for a good time.

BTW: the link to the place in Estonia where one can send blood for
geneanalysis for Stargardts is www.asperbio.com and the link for the
clinical trial concerning growth factors is www.neurotech.fr

Brynjulv




Mon Jul 12, 2004 12:55 pm

brynjulvb
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Message #947 of 1255 |
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Hi all members! First of all I really want to give my greatest thanks to the family Van der Wiel, you have done an amazing job with the conference and I higly...
Åsa Gunnarsdotter
asa.gunnarsdotter@...
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Jul 7, 2004
12:52 pm

Hi Åsa, Thanks for your email. I totally agree with you and also like to say "thank you" to everybody involved in planing and implementing of this youth...
m.georg@...
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Jul 7, 2004
2:55 pm

Hi everybody! I'm glad to hear you all enjoyed our programme. I've just sorted some pictures from the conference and the activities that my dad shot. Maybe...
r. van der wiel
wielromp@...
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Jul 8, 2004
10:58 am

Hi Nathalie, There are two possibilites to set the pictues to the homepage: 1) use the homepage of the mailing list (at yahoo). you can upload the pictures by...
m.georg@...
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Jul 8, 2004
11:30 am

A word of thanks from me too. It was historic to have a program for youth connected with the international congress and a great idea. I really enjoyed the...
Brynjulv Norheim jr.
brynjulvb
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Jul 12, 2004
1:02 pm

Hi all, Thanks from me too - it was great to catch up with everyone and meet new friends. I'm very much looking forward to the next one already. I will be...
Noreen Power-Waldron
nrpower@...
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Jul 15, 2004
8:51 pm

Hey Markus! When we were in noordwijk I understood that you had 2 comics to explain RP to children, right? So I was talking with my mom about the congress and...
r. van der wiel
wielromp@...
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Jul 12, 2004
1:10 pm

Hi Nathalie, The comics came from Greece. Stratis gave it to me. Very good idea. I really like it. Unfortunately it was in Greek. He explained to me the story...
m.georg@...
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Jul 12, 2004
2:14 pm

Of course I also would like to say "thank you" Dutch people. This meeting was very helpfull and important for me. And I'm really glad that it was possible for...
MDX
mikedx@...
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Jul 14, 2004
9:52 am

Hi Mike and everybody, Yes, I am preparing the minutes (a last time). I am just waiting for Dave. He took the minutes on the EU funding session and I would...
m.georg@...
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Jul 14, 2004
3:18 pm

Hey! Yesterday I have send the pictures to pawel, I thought that would be the best..... Kind regards, Nathalie....
r. van der wiel
wielromp@...
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Jul 14, 2004
10:42 am
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