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#1226 From: "Markus Georg" <m.georg@...>
Date: Wed Jan 10, 2007 10:00 am
Subject: RETINA EUROPE YOUTH MEETING 2007 - program -
m.georg@...
Send Email Send Email
 
This is the preliminary program.



PROGRAM FOR RETINA EUROPE YOUTH MEETING, OSLO 2007
7th – 12th August 2007, Huseby Kompetansesenter

[PROVISIONAL PRORAM]
Tuesday 7th August

The participants arrive, and will, after agreement, be picked up and
taken to Huseby Kompetansesenter.

19-00: The meeting is opened by a representative from the project-
group. As well as by the Norwegian RP Association's leader: Anne
Berit Gransjøen.

19.15: Short presentation of all the participants.

19.30: Dinner.

20.45: Presentation of the program for the week, as well as serving
of coffee/tea and cake.

The rest of the evening the participants are free to socialise.

Wednesday 8th August

08.00: Breakfast

09.15: A presentation of Huseby Kompetansesenter by Reidun Leirvaag
(?).

09.45: A tour of the premises. The participants will be divided into
3 groups.

11.00: The Norwegian RP Association's work, presented by a member of
the board.

12.00: A presentation of the Norwegian Blind Association, given by a
representative.

13. 00: Lunch.

14.15: A presentation of the rehabilitation offered by the Norwegian
Blind Association, given by Unn Ljøner Hagen.

14.45: A presentation of the "Mentor Arrangement", given by Stian
Larsen.

15.10: A presentation of the Norwegian Blind Association Youth, given
by a representative.

16.00: swimming, barbecuing and serialising with members from the
Norwegian Blind Association Youth.

There is no set program for the evening, but there will be
representatives from the project-group present at Huseby, for those
who wish to stay there.

Thursday 9th August

08.00: Breakfast.

09.15: Workshops. The participants will be divided into three
groups, and will rotate three different workshops.

1. Technical Aids: Different manufactures have stands where they
present their aids.

2. Guide dog: The Blind Association's Guide dog school, explain
how they train the dogs, and the participants can try to walk with a
guide dog.

3. GPS: The company, BoJo Tveter, present their GPS, and the
participants can try the equipment.

13.00: Lunch.

14.15: Joint departure for those who wish to see the shop Blindes
Produkter (Products for the blind). The participants are free to
experience Oslo.

18.00: Dinner at a restaurant in the centre of Oslo.

Friday 10th August
PSYCHIC ASPECTS – AIDS AND THE FAMILY ROLE.

08.00: Breakfast.

09.15: Viewing of the Norwegian RP Association's dvd "følelser når
synet svikter" (feelings when ones sight fails).

09.45: A common discussion about the film's content.

10.15: The psychological challenges connected to aids, by a mobility
educator from Huseby, and psychologist Åse Frostad Fasting (?).

10.45: The participants are divided into 5 discussion groups.

12.15: A common discussion of own experiences.

13.00: Lunch.

14.15: The role as vision impaired parent, by a representative from
the (Association for Parents with Vision Impaired Children) –
ASSISTANSE, parents with RP, and psychologist Åse Frostad Fasting.

14.45: The participants are divided into 5 discussion groups.

16.15: A common discussion of own experiences.

18.00: Dinner.

19.15: An update on the latest research on RP, by eye specialist
Ragnheidur Bragadottir.

The rest of the evening the participants are free to socialise.

Saturday 11th August.

08.00: Breakfast.

09.15: Joint departure by bus to Hurdalsenteret (the Hurdal
Centre(. The Norwegian Blind Association's rehabilitation centre.

10.50: The participants are divided into four groups for a tour of
the centre, both inside and outside.

11.45: General Assembly.

13:00: Lunch.

14.00: The General Assembly continues.

After the General Assembly we meet at the beach, and the rest of the
afternoon and evening
Will be used for swimming, barbecuing and socialising.

22.30: Departure for Huseby Kompetansesenter.

Sunday 12th August.

08.00: Breakfast.

09.15: Those who need assistance will be taken to Oslo S train
station, and the airport train
terminal.



Interested in more details? Visit http://groups.yahoo.com/group/riy/.

Best regards,

Markus



[Non-text portions of this message have been removed]

#1225 From: "Markus Georg" <m.georg@...>
Date: Wed Jan 10, 2007 9:57 am
Subject: RETINA EUROPE YOUTH MEETING 2007
m.georg@...
Send Email Send Email
 
RETINA EUROPE YOUTH MEETING 2007

The Norwegian RP Association is the proud host of the Retina Europe
Youth (REY) meeting in 2007. The meeting will be held in Oslo 7-12th
August 2007.

THE PROGRAM:

The details of the program for this years meeting is still being
worked out, but some main subjects are ready. The meeting will
present the newest technical aids, news from the latest research,
psychological aspects of living with Retinitis Pigmentosa, and of
course lots of social activities.

The preliminary program can be found at the Norwegian RP-association
homepage (www.rpfn.no) and via http://groups.
<http://groups.yahoo.com/group/RIY/> yahoo.com/group/RIY/.
Please check for updates and further information.

WHO CAN ATTEND?

This is a REY meeting, but it is open to all countries. We have room
for about 45 people, which means that each country can send 2-3
people.

The delegates should be between the age of 18-30, be members of their
national organisation and at least one should have the mandate to
speak on behalf of his/her organization at the Annual General Meeting
of REY (to be held during the program).

WHAT DOES IT COST?

At the REY meeting in Stockholm in 2005 it was decided that the cost
for each person could not be more then 300 Euro. At this moment we
are budgeting with a cost of 275 Euro per person. We are working on
finding sponsors, and are applying for funds, and hope to lower to
cost as much as possible.

The 275 Euro will cover accommodation, meals (breakfast/lunch/dinner)
and transportation in Oslo.

WHERE CAN I REGISTER?

From the 15th January 2007 registration information will be available
on the Norwegian RP Association homepage (www.rpfn.no). An e-mail
address will also be provided for anyone with questions.

WHEN CAN I REGISTER?

Registration is open from 15th January - 15th March 2007. Book early!



CU

Markus





To begin the year with a fresh start, we are launching a new Retina Youth
e-group on Yahoo.  You can find it at http://groups.yahoo.com/group/riy/.



[Non-text portions of this message have been removed]

#1224 From: "Markus Georg" <m.georg@...>
Date: Wed Jan 10, 2007 9:43 am
Subject: Happy New Year
m.georg@...
Send Email Send Email
 
Happy New Year to everybody!

Hope you have had a great start with a big party!!!



To begin the year with a fresh start, we are launching a new Retina Youth
e-group on Yahoo.  You can find it at http://groups.yahoo.com/group/riy/.





All the best to you for 2007 (and a cure for RP as well)  :-)

Markus



[Non-text portions of this message have been removed]

#1223 From: "Caisa" <ramshage@...>
Date: Thu Dec 21, 2006 8:49 am
Subject: More light
cramshage
Offline Offline
Send Email Send Email
 
Hi,
I thought it is time for some celebration. Today is the darkest night
of the year. This sounds really depressing, but the good side of it is
that after this night it will only be more daylight for the comming six
month.
Happy holiday, merry christmas and happy new year to all of you!
/Caisa
in Stockholm with just 6 hours of daylight today
http://www.timeanddate.com/worldclock/sunrise.html

#1222 From: "Markus Georg" <m.georg@...>
Date: Sat Dec 2, 2006 10:10 am
Subject: spare parts that can replace damaged or dead nerve cells in the retina...
m.georg@...
Send Email Send Email
 
Unexpected findings about development of nervous system



Veröffentlicht am:

20.10.2006





Veröffentlicht von:

Anneli Waara, Uppsala University, email anneli.waara@...
  <http://idw-online.de/pages/de/institution732> Schwedischer Forschungsrat -
The Swedish Research Council





Kategorie:

überregional
Forschungsergebnisse
Medizin und Gesundheitswissenschaften

Druckansicht <http://idw-online.de/pages/de/news?print=1&id=180825>

In his dissertation work, Per-Henrik Edqvist at Uppsala University in Sweden
has characterized the molecular development of the retina in the eye with
the aim of understanding how the nervous system develops. He has attained
several unexpected results that may be of importance to the future treatment
of damage to the nervous system.

The retina of the eye, which is part of the central nervous system, is where
visual impressions take their initial shape. The retina consists of
photoreceptors and several different specialized nerve cells that use
various networks to coordinate impressions from the light-sensitive
photoreceptors before the information is relayed to the brain.

Per-Henrik Edqvist has studied how the retina's complex structure of
specialized cells is formed from a small number of retina stem cells during
the fetal development of chickens. Above all, he has examined how one of the
retina's specialized cell types, so-called horizontal cells, are formed and
reach maturity. Their task is to receive and integrate information from a
large number of photoreceptors, and there are at least two functionally
different types.

"We have characterized the molecular development of these different
horizontal cell types in order to better understand how the nervous system
is formed," explains Per-Henrik Edqvist.

He shows that the different types take on their determined role at a very
early stage in development, which conflicts with certain conventional models
of the development of the retina. What's more, they do not develop
simultaneously but rather one after the other, and in their development they
undergo a highly unexpected cell migration from their birth site to their
ultimate position in the retina.

"The fact that they migrate at different times toward or away from signals
that can influence their continued development may be the mechanism that
governs them in different developmental directions," says Per-Henrik
Edqvist.

The dissertation enhances our knowledge of how the central nervous system is
formed during fetal development, and thereby our understanding of how
disturbances of the brain and ocular system can occur and be prevented.

"By understanding these mechanisms, we hope some day to be able to use stem
cells to create spare parts that can replace damaged or dead nerve cells in
the retina."

For more information, please contact Per-Henrik Edqvist, phone: +46 18-471
49 42; cell phone: 046 70-615 93 25; or e-mail:
Per-Henrik.Edqvist@....



URL dieser Pressemitteilung: http://idw-online.de/pages/de/news180825



Source: http://idw-online.de/pages/de/news180825







Markus Georg

Am Reuterberg 26

35745 Herborn

Tel.: 02772 / 570 576

Email:  <mailto:vorstand@...>
vorstand@...

www.pro-retina.org





[Non-text portions of this message have been removed]

#1221 From: "Markus Georg" <m.georg@...>
Date: Thu Nov 30, 2006 6:32 pm
Subject: European Day of Disabled People 2006 - EDF Youth Committee preparing the conference
m.georg@...
Send Email Send Email
 
European Day of Disabled People 2006 - EDF Youth Committee preparing the
conference



On 4 and 5 December, the 2006 European Day of Disabled People will be held
in Brussels. The theme will focus on youth: "Youth=Future. Let's make an
equal future for all."



In order to prepare the conference and the publication of a leaflet on youth
and disability to raise awareness about disability and youth organisations,
EDF Youth committee met on 28-29 October.



The committee is also currently drafting a declaration, "Opportunities for
All - Make it real!" which will be distributed among the European Day
conference participants.



It is the first time that the European Day will be dedicated to youth and
give young people with disabilities the opportunity to express themselves.
It is therefore an opportunity not to be missed by EDF Youth committee.



For more information, please visit the following link:

  <http://ec.europa.eu/employment_social/disability/day_en.html>
http://ec.europa.eu/employment_social/disability/day_en.html







Source: EDF Newsletter





Markus Georg

Vorstand

Pro Retina Deutschland e.V.
Selbsthilfevereinigung von Menschen mit Netzhautdegenerationen
Am Reuterberg 26

35745 Herborn

Tel.: 02772 / 570 576

Email:  <mailto:vorstand@...>
vorstand@...

www.pro-retina.org





[Non-text portions of this message have been removed]

#1220 From: "Markus Georg" <m.georg@...>
Date: Sun Nov 26, 2006 11:13 am
Subject: Internationale Begegnungswoche in Graz, Österreich (Intl. Meeting in Austria (in German))
m.georg@...
Send Email Send Email
 
Internationale Begegnungswoche

für Jugendliche und junge Erwachsene



Sprachen der Liebe, Macht der Gefühle -

Lass deinem Herzen Flügel wachsen!



(BAÖ und Arbeitsgemeinschaft)



Datum:                       04. - 11. August 2007

Ort:                             Graz (Österreich)

Leitung:                       ein österreichisches Vorbereitungsteam

Teilnehmer:    blinde, sehbehinderte und sehende Personen

                                    im Alter zwischen 18 und 35 Jahren

Kosten:                       EURO 190.-

Anmeldung:    bis 31. Mai 2007 bei

                                    Helmut Müllner, Hans-Resel-Gasse 21/7,

                                    A-8020 Graz; Tel. +43 (0)650 81 83 858

                                    Mail: helmut.muellner@...



Quelle: http://www.blindenwerk.de/



[Non-text portions of this message have been removed]

#1219 From: "Markus Georg" <m.georg@...>
Date: Sat Nov 25, 2006 12:07 pm
Subject: Seminar on Strategies to develop Youth Volunteering policies
m.georg@...
Send Email Send Email
 
Seminar on Strategies to develop Youth Volunteering policies

Skopje (Macedonia)
http://www.socialplatform.org/code/en/even_detail.asp?id_events=212

7-11/03/ 2007



To participate:

assistant@...



Source: EDV Newsletter



Markus Georg

Vorstand

Pro Retina Deutschland e.V.
Selbsthilfevereinigung von Menschen mit Netzhautdegenerationen
Am Reuterberg 26

35745 Herborn

Tel.: 02772 / 570 576

Email:  <mailto:vorstand@...>
vorstand@...

www.pro-retina.org





[Non-text portions of this message have been removed]

#1218 From: "Markus Georg" <m.georg@...>
Date: Sat Nov 25, 2006 12:05 pm
Subject: JOB / TRAINING / SCHOLARSHIP OPPORTUNITIES out of EDF Newsletter
m.georg@...
Send Email Send Email
 
European Parliament Traineeship Programme for disabled persons (Application
period: from 15 March to 15 May 2007)



The European Parliament promotes equality of opportunity and encourages
applications from women and men from all cultural and ethnic backgrounds,
including people with a disability, for all its traineeship programmes.



In 2007, as a positive action measure, the European Parliament is also
running a specific traineeship programme for people with a disability. In
the course of 2007, the European Parliament will offer 10 paid five-month
traineeship to disabled candidates. These traineeships are open both to
graduates of universities or equivalent institutions and to people whose
qualifications are below university level. The main purpose of this
programme is to offer a number of people with disabilities a meaningful and
valuable work experience, and an opportunity to familiarise themselves with
the activities of the European Parliament.



More information can be obtained from:


<http://www.europarl.europa.eu/parliament/public/staticDisplay.do?id=147&pag
eRank=4&language=EN>
http://www.europarl.europa.eu/parliament/public/staticDisplay.do?id=147&page
Rank=4&language=EN







Workability Europe to organize Specialized English Language Course for
Rehabilitation Professionals! (Malta, Summer 2007)



In an era of increasing mobility and international cooperation, it is
important that people from different national backgrounds are able to
communicate properly. English is today the main language of communication
not just in the Workability Europe network but also globally.



For this reason, Workability Europe has teamed up with its partners to
organise a Specialised English Language Course for Rehabilitation
Professionals during two weeks in the summer of 2007 in Malta. They offer a
comprehensive tailor-made programme combining study of general and
specialised rehabilitation English as well as exciting social, cultural and
learning activities.



The Course is also open to participants from non-Workability Europe.



To have further information about the Draft Programme of the Course
including full details and prices:
<http://www.workability-europe.org/News/Draft%20programme.pdf>
http://www.workability-europe.org/News/Draft%20programme.pdf and
<http://www.workability-europe.org/europe_news.html>
http://www.workability-europe.org/europe_news.html



You can also contact Martin Ohridski, e-mail:
<mailto:publicaffairs@...>
publicaffairs@...;        tel. +32 2 235 66 64











Markus Georg

Vorstand

Pro Retina Deutschland e.V.
Selbsthilfevereinigung von Menschen mit Netzhautdegenerationen
Am Reuterberg 26

35745 Herborn

Tel.: 02772 / 570 576

Email:  <mailto:vorstand@...>
vorstand@...

www.pro-retina.org





[Non-text portions of this message have been removed]

#1217 From: "Markus Georg" <m.georg@...>
Date: Sat Nov 25, 2006 12:05 pm
Subject: Greek, Finnish or Dutch native speaker ??
m.georg@...
Send Email Send Email
 
European Personnel Selection Office (EPSO) is looking for linguistics
administrators



EPSO have launched an open competition to recruit candidates in all EU
institutions as the European Parliament. The candidates must be Greek,
Finnish or Dutch native speaker.



Candidates must have completed the equivalent of a university course at
least three years long and obtained the relevant leaving qualification. They
also must satisfy these conditions:



-          Main language: have a perfect command of Greek, Finnish or Dutch

-          Have a very sound knowledge of English, French or German



Applications to the competition is open until: 19 December 2006



The European Commission implements an equal opportunities recruitment
procedure.  Persons with disabilities are therefore encourage to submit
applications.



More information and job description available at:
<http://europa.eu.int/epso/on-line-applications/eu15-and-accession_en.htm>
http://europa.eu.int/epso/on-line-applications/eu15-and-accession_en.htm



Source: EDF Newsletter





Markus Georg

Vorstand

Pro Retina Deutschland e.V.
Selbsthilfevereinigung von Menschen mit Netzhautdegenerationen
Am Reuterberg 26

35745 Herborn

Tel.: 02772 / 570 576

Email:  <mailto:vorstand@...>
vorstand@...

www.pro-retina.org





[Non-text portions of this message have been removed]

#1216 From: "Markus Georg" <m.georg@...>
Date: Thu Nov 9, 2006 8:43 pm
Subject: AW: Cured mice
m.georg@...
Send Email Send Email
 
Hi Caisa,

This is pretty cool. Quite interesting.

For more details visit:
http://www.nature.com/nature/journal/v444/n7116/abs/nature05161.html

Here you can find also the abstracts.

CU,

Markus



   _____

Von: retinayouth@... [mailto:retinayouth@...] Im
Auftrag von Caisa
Gesendet: Mittwoch, 8. November 2006 16:54
An: retinayouth@...
Betreff: [retinayouth] Cured mice



Hi all,
This article is rather long, but it is really interesting. It is about
curing mice with RP-similar desease through transplanting stem cells.
http://news.bbc.co.uk/1/hi/health/6120664.stm
Cheers,
Caisa






[Non-text portions of this message have been removed]

#1215 From: "Caisa" <ramshage@...>
Date: Wed Nov 8, 2006 3:54 pm
Subject: Cured mice
cramshage
Offline Offline
Send Email Send Email
 
Hi all,
This article is rather long, but it is really interesting. It is about
curing mice with RP-similar desease through transplanting stem cells.
http://news.bbc.co.uk/1/hi/health/6120664.stm
Cheers,
Caisa

#1214 From: "Markus Georg" <m.georg@...>
Date: Mon Oct 9, 2006 8:40 pm
Subject: Vitamin A, Self medication can be dangerous
m.georg@...
Send Email Send Email
 
Hi Friends,

Please find below some information out of the newsletter from Retina South
Africa.,

They point out that self medication can be dangerous.



Through study of the ABCR mutation that causes Stargardt Disease and Cone
Rod Dystrophy researchers have found that supplementation with Vitamin A or
Beta carotene may increase the rate of degeneration. Vitamin A is converted
in the retina to various forms of Retinol needed for the conversion of light
to energy and overloading the system with more Vitamin A may accelerate a
build up of by- products of Retinol and speed vision loss. Some forms of
Atypical RP may have been wrongly diagnosed and may in fact be ABCR Cone or
Cone- rod Dystrophies.

This information  coupled with the known risks associated with high levels
of Vitamin A - the increased risk of lung cancer for smokers and the risk of
foetal abnormalities in early stages of pregnancy leads us to issue a
warning for retinal patients NOT to self medicate and to ensure that any
Vitamin supplementation is approved by their Eye specialist.



Best regards,

Markus



Markus Georg

www.pro-retina.org





[Non-text portions of this message have been removed]

#1213 From: "Markus Georg" <m.georg@...>
Date: Thu Sep 21, 2006 5:49 pm
Subject: traineeship programme for disabled people
m.georg@...
Send Email Send Email
 
Launch of European Parliament traineeship programme for disabled people



Several initiatives to improve the equality of opportunities for disabled
people have been taken by the Secretariat of the European Parliament.



Recently, a specific traineeship programme for disabled people was adopted
by the Bureau of European Parliament on 4 September. The programme is an
example of positive action, as it is an addition to other traineeship
options available and will offer the opportunity of a paid five-month
traineeship to ten disabled candidates in 2007.



The text of the programme has been launched in 22 languages. A description
of the programme and the application form are available on the
Euro-parliament website:


<http://www.europarl.europa.eu/parliament/public/staticDisplay.do?id=147&pag
eRank=4&language=EN>
http://www.europarl.europa.eu/parliament/public/staticDisplay.do?id=147&page
Rank=4&language=EN



The programme will also be launched through the EP Information Offices.



For more information, please contact Janina Arsenjeva:
<mailto:janina.arsenjeva@...> janina.arsenjeva@...



WM24-Annex 4: Pilot programme of traineeships for people with a disability
(English)

WM24-Annex 5: Pilot programme of traineeships for people with a disability
(French)





SOURCE: EDF Newsletter





Markus Georg

Vorstand

Pro Retina Deutschland e.V.
Selbsthilfevereinigung von Menschen mit Netzhautdegenerationen
Am Reuterberg 26

35745 Herborn

Tel.: 02772 / 570 576

Email:  <mailto:vorstand@...>
vorstand@...

www.pro-retina.org





[Non-text portions of this message have been removed]

#1212 From: "Markus Georg" <m.georg@...>
Date: Mon Sep 18, 2006 7:45 pm
Subject: 900 Mile run
m.georg@...
Send Email Send Email
 
Hi Folks,

Have you heard about this exciting event to raise funds for Fighting
Blindness?



A 900 mile charity fundraising run along four of England's longest national
trails in support of the British Retinitis Pigmentosa Society (BRPS).

Start Date: 9th September 2006. Finish Date: 11 October 2006.

National Trails: Lands End to Minehead, Chepstow to Prestatyn, Edale to Kirk
Yetholm, St. Bees to Robin Hoods Bay.

ALL MONEY RAISED FROM THIS SITE WILL GO DIRECTLY TOWARDS FIGHTING BLINDNESS.

Follow our progress:  <http://www.rptrailblazer.co.uk>
www.rptrailblazer.co.uk

CU

Markus





Markus Georg

Vorstand

Pro Retina Deutschland e.V.
Selbsthilfevereinigung von Menschen mit Netzhautdegenerationen
Am Reuterberg 26

35745 Herborn

Tel.: 02772 / 570 576

Email:  <mailto:vorstand@...>
vorstand@...

www.pro-retina.org





[Non-text portions of this message have been removed]

#1211 From: "Nikola Verhalen" <Nikola.Verhalen@...>
Date: Thu Sep 14, 2006 8:30 pm
Subject: AW: tunnel vision
Nikola.Verhalen@...
Send Email Send Email
 
Hey Markus,

ich komm nich nach Götingen, hab an dem WE Fortbildung in Köln. Aber Philipp
kommt... hat ja sonst an dem Wochenende nichts zu tun.. ich hab ja keine
Zeit ;)

Bist du am WE in Bonn? Ich mail Danny auch mal ebene... hätte echt lust, mal
wieder mit euch zu quatschen.

Vielleicht klappts ja,
liebe Grüße,
Nikola




-----Ursprüngliche Nachricht-----
Von: retinayouth@...
[mailto:retinayouth@...]Im Auftrag von Markus Georg
Gesendet: Donnerstag, 14. September 2006 21:35
An: retinayouth@...
Betreff: [retinayouth] tunnel vision


Please find below an article about a new visual aid.

The text is in German but you will probably find information in English
under:

www.eri.harvard.edu
<http://www.eri.harvard.edu/faculty/peli/lab/videos/augmented/augmented.htm>




CU,

Markus



  weitergeleitet von

  Ihre Hilke Somm


Gerät erweitert peripheres Gesichtsfeld bei Patienten mit Tunnelblick


06.09.2006 - NEW YORK (Reuters Health) - Ein neuer Ansatz, der bei Patienten
mit stark eingeschränktem peripherem Gesichtsfeld eine größere visuelle
Wahrnehmung bietet, erlaubt eine raschere und genauere Erkennung von
Objekten außerhalb des Gesichtsfeldes. Darauf lassen Ergebnisse einer
Pilotstudie schließen.


Der Tunnelblick, der bei Erkrankungen wie Retinitis pigmentosa, Glaukom oder
Chorioideremie auftritt, beeinträchtige die Betroffenen in
Alltagssituationen, schreiben die Autoren der in der September-Ausgabe von
Investigative Ophthalmology and Visual Science erschienenen Studie. In der
Vergangenheit wurden umgekehrte Teleskope, divergente Linsen und andere
Hilfsmittel eingesetzt, um peripher gelegene Objekte in das eingeschränkte
Gesichtsfeld zu bringen, jedoch sind diese Hilfsmittel in der Praxis nur
begrenzt von Nutzen.

Der neue Ansatz, den Dr. Gang Luo und Dr. Eli Peli vom Schepens Eye Research
Institute an der Harvard Medical School in Boston beschreiben, wurden in
Zusammenarbeit mit der MicroOptical Corporation in Westwood, Massachusetts,
entwickelt. Dabei wird eine Miniaturkamera verwendet, die auf dem Bügel der
Brille von Betroffenen angebracht wird und einen verkleinerten Übersicht
eines erweiterten Gesichtsfeldes projiziert.

Das erweiterte Gesichtsfeld wird überlagernd auf dem transparenten
Brillenglas vor dem dominanten Patientenauge abgebildet. Die Wissenschaftler
testeten das Gerät an zwölf Patienten, deren horizontales binokulares
Gesichtsfeld zwischen sieben und 16 Grad lag.

Die Patienten erhielten eine kurze Trainingseinheit. Visuelle Suchaufgaben
wurden bewertet, bei denen die Patienten vor einem Bildschirm saßen, auf den
man außerhalb des jeweiligen normalen Gesichtsfeldes der Patienten visuelle
Ziele projizierte. Die Probanden begannen in der Mitte des Bildschirmes und
durften sowohl die Augen als auch den Kopf bewegen, um die Ziele zu finden
und zu identifizieren.

Die Ergebnisse waren "überraschend gut", berichtete Luo Reuters Health. "Die
Patienten haben uns positive Rückmeldungen gegeben, und sagten, sie hätten
sofort einen Unterschied zu ihrem eigenen natürlichen Gesichtsfeld bemerkt."

"Wir stellten fest, dass die Expansionsrate für die visuelle Suche fast
viermal höher war, wenn wir eine vierfache optische Verkleinerung anboten",
fügte er hinzu. Wurden akustische oder visuelle Hinweise auf Richtung und
Außermittigkeit der Ziele hinzugefügt, erhöhte sich die Geschwindigkeit, mit
der die Patienten die Ziele ausmachten.

Er und Peli hätten noch einen weiten Weg zu gehen, bis das Gerät klinisch
genutzt werden könne, fuhr Luo fort. "Unser nächster Schritt wird sein zu
untersuchen, ob Menschen ihren Abstand zu einem Hindernis abschätzen
können." Auf diese Weise können sie bestimmen, ob etwas auf ihrem Weg weit
entfernt ist, oder so nah, dass sie ausweichen müssen.

Luo und Peli wollen ihr Gerät außerdem unter normalen Bedingungen testen,
indem sie es Patienten für einen Monat zu Hause ausprobieren lassen, gefolgt
von weiteren Untersuchungen in Bezug auf Schnelligkeit und Genauigkeit.

Luo fügte hinzu: "Wir haben unter www.eri.harvard.edu
<http://www.eri.harvard.edu/faculty/peli/lab/videos/augmented/augmented.htm>
Simulations-Videos hinterlegt, die das Konzept des vergrößerten Sehvermögens
zeigen."

"Damit erhält man einen Eindruck wie es ist, wenn man dieses Gerät
einsetzt", sagte er.

Quelle. Investigative Ophthalmology and Visual Science 2006;47:4152-4159
(ac)





[Non-text portions of this message have been removed]



To unsubscribe from this group, send an email to:
retinayouth-unsubscribe@...


Yahoo! Groups Links

#1210 From: "Markus Georg" <m.georg@...>
Date: Thu Sep 14, 2006 7:35 pm
Subject: tunnel vision
m.georg@...
Send Email Send Email
 
Please find below an article about a new visual aid.

The text is in German but you will probably find information in English
under:

www.eri.harvard.edu
<http://www.eri.harvard.edu/faculty/peli/lab/videos/augmented/augmented.htm>




CU,

Markus



  weitergeleitet von

  Ihre Hilke Somm


Gerät erweitert peripheres Gesichtsfeld bei Patienten mit Tunnelblick


06.09.2006 - NEW YORK (Reuters Health) - Ein neuer Ansatz, der bei Patienten
mit stark eingeschränktem peripherem Gesichtsfeld eine größere visuelle
Wahrnehmung bietet, erlaubt eine raschere und genauere Erkennung von
Objekten außerhalb des Gesichtsfeldes. Darauf lassen Ergebnisse einer
Pilotstudie schließen.


Der Tunnelblick, der bei Erkrankungen wie Retinitis pigmentosa, Glaukom oder
Chorioideremie auftritt, beeinträchtige die Betroffenen in
Alltagssituationen, schreiben die Autoren der in der September-Ausgabe von
Investigative Ophthalmology and Visual Science erschienenen Studie. In der
Vergangenheit wurden umgekehrte Teleskope, divergente Linsen und andere
Hilfsmittel eingesetzt, um peripher gelegene Objekte in das eingeschränkte
Gesichtsfeld zu bringen, jedoch sind diese Hilfsmittel in der Praxis nur
begrenzt von Nutzen.

Der neue Ansatz, den Dr. Gang Luo und Dr. Eli Peli vom Schepens Eye Research
Institute an der Harvard Medical School in Boston beschreiben, wurden in
Zusammenarbeit mit der MicroOptical Corporation in Westwood, Massachusetts,
entwickelt. Dabei wird eine Miniaturkamera verwendet, die auf dem Bügel der
Brille von Betroffenen angebracht wird und einen verkleinerten Übersicht
eines erweiterten Gesichtsfeldes projiziert.

Das erweiterte Gesichtsfeld wird überlagernd auf dem transparenten
Brillenglas vor dem dominanten Patientenauge abgebildet. Die Wissenschaftler
testeten das Gerät an zwölf Patienten, deren horizontales binokulares
Gesichtsfeld zwischen sieben und 16 Grad lag.

Die Patienten erhielten eine kurze Trainingseinheit. Visuelle Suchaufgaben
wurden bewertet, bei denen die Patienten vor einem Bildschirm saßen, auf den
man außerhalb des jeweiligen normalen Gesichtsfeldes der Patienten visuelle
Ziele projizierte. Die Probanden begannen in der Mitte des Bildschirmes und
durften sowohl die Augen als auch den Kopf bewegen, um die Ziele zu finden
und zu identifizieren.

Die Ergebnisse waren "überraschend gut", berichtete Luo Reuters Health. "Die
Patienten haben uns positive Rückmeldungen gegeben, und sagten, sie hätten
sofort einen Unterschied zu ihrem eigenen natürlichen Gesichtsfeld bemerkt."

"Wir stellten fest, dass die Expansionsrate für die visuelle Suche fast
viermal höher war, wenn wir eine vierfache optische Verkleinerung anboten",
fügte er hinzu. Wurden akustische oder visuelle Hinweise auf Richtung und
Außermittigkeit der Ziele hinzugefügt, erhöhte sich die Geschwindigkeit, mit
der die Patienten die Ziele ausmachten.

Er und Peli hätten noch einen weiten Weg zu gehen, bis das Gerät klinisch
genutzt werden könne, fuhr Luo fort. "Unser nächster Schritt wird sein zu
untersuchen, ob Menschen ihren Abstand zu einem Hindernis abschätzen
können." Auf diese Weise können sie bestimmen, ob etwas auf ihrem Weg weit
entfernt ist, oder so nah, dass sie ausweichen müssen.

Luo und Peli wollen ihr Gerät außerdem unter normalen Bedingungen testen,
indem sie es Patienten für einen Monat zu Hause ausprobieren lassen, gefolgt
von weiteren Untersuchungen in Bezug auf Schnelligkeit und Genauigkeit.

Luo fügte hinzu: "Wir haben unter www.eri.harvard.edu
<http://www.eri.harvard.edu/faculty/peli/lab/videos/augmented/augmented.htm>
Simulations-Videos hinterlegt, die das Konzept des vergrößerten Sehvermögens
zeigen."

"Damit erhält man einen Eindruck wie es ist, wenn man dieses Gerät
einsetzt", sagte er.

Quelle. Investigative Ophthalmology and Visual Science 2006;47:4152-4159
(ac)





[Non-text portions of this message have been removed]

#1209 From: "Markus Georg" <m.georg@...>
Date: Sat Aug 12, 2006 6:49 pm
Subject: For our UK list members
m.georg@...
Send Email Send Email
 
Handicap International recruits a Disability Information Officer for SOURCE



Handicap International is an international NGO specialising in disability,
and works with partners in almost 60 countries worldwide. Handicap
International is recruiting a Disability Information Officer.



SOURCE (www.asksource.info
<file:///C:\Documents%20and%20Settings\olivier\valerie.EDF\Local%20Settings\
Temporary%20Internet%20Files\OLK95\www.asksource.info> ) is an electronic
resource providing information on health and disability to development
practitioners. It is a UK-based partnership with Healthlink Worldwide and
the Centre for International Child Health.



HI is seeking an experienced information manager in the field of disability
and international development, to build the disability component of Source
and to improve the use of disability and development information within and
by Handicap International.



The post involves:

* developing and disseminating key information resources and products

* communication and liaison with key internal and external stakeholders

* improving the use of disability and development information within HI



Please also note that applicants need to be legally eligible to work in the
U.K



The closing date for application is on 23 August 2006. To apply: send a CV
and short letter showing how you match the person specification to: Bethanie
Johnson, Handicap International UK, Waterman House, 101-107 Chertsey Road,
Woking, Surrey, GU21 5BW. Tel: 0870 7743737. Email: recruitment@...



More information and job description available at:

www.handicap-international.org.uk/page_584.php
<file:///C:\Documents%20and%20Settings\olivier\valerie.EDF\Local%20Settings\
Temporary%20Internet%20Files\OLK95\www.handicap-international.org.uk\page_58
4.php>





[Non-text portions of this message have been removed]

#1208 From: "Markus Georg" <m.georg@...>
Date: Sat Aug 12, 2006 6:44 pm
Subject: UNITED NATIONS - E-accessibility to be theme for the 2006 International Day of Disabled Persons
m.georg@...
Send Email Send Email
 
UNITED NATIONS – E-accessibility to be theme for the 2006 International Day
of Disabled Persons



Improving access to new information technology for persons with disabilities
will be the focus of this year’s International Day of Disabled Persons, the
United Nations announced on 26th July.



The Day, which is marked on 3 December, seeks to promote the integration of
people with disabilities into society.



Although access to information and communication technology (ICT) has
created opportunities for everyone, these advances have been particularly
meaningful for persons with disabilities, allowing them to overcome the
societal barriers of prejudice, infrastructure and inaccessible formats that
stand in the way of participation.



But, many persons with disabilities remain unable to take full advantage of
the Internet, because most websites are inaccessible to the blind and
visually impaired, heavily dependent on using the mouse, and because
training is often conducted in inaccessible formats and venues.  Most
persons with disabilities do not have access to new information technology
at all.



“The new computer-based information technologies have the potential for
opening up a world of new opportunities for persons with disabilities,” said
Sarbuland Khan, Executive Coordinator of the Secretariat of the Global
Alliance for ICT and Development.  “The problem is that new obstacles are
preventing many of these people from reaching their potential.  We want to
promote good website design that allows all people to benefit from the new
technology, and we want product developers to consider the needs of the
disabled in their new designs.”



Governments, at the first World Summit on the Information Society in 2003 in
Geneva, committed themselves to building a people-centred, inclusive and
development-oriented information society, where everyone can create, access,
utilize and share information and knowledge. By focusing on e-accessibility,
this year’s Day of Disabled Persons is intended to mobilize action to allow
persons with disabilities to participate in that global vision.



Persons with disabilities are at a considerable disadvantage by not being
able to access information technology. For instance, as education becomes
increasingly dependent on information technology, not being able to access
the Internet limits the learning potential of persons with disabilities.



Several places already have legislation and regulations requiring websites
to be fully accessible. Global standards and guidelines on website
accessibility are being developed.  Once adopted and ratified, the
International Convention on the Rights of Persons with Disabilities will
require that persons with disabilities can access information technology. It
specifies that certain measures should be introduced to eliminate obstacles
and barriers to information and communication, and to promote access for
persons with disabilities to ICT, including the Internet.



“Making information technology available to persons with disabilities is not
only a matter of human rights -- it also makes good business sense,” Mr.
Khan said.  “Studies suggest that accessible websites appear higher up the
page rankings of search engines and can save costs on web maintenance.”



But many websites remain inaccessible for the visually impaired and the
blind.  A recent study of the FTSE 100 companies in the United Kingdom
showed that around three quarters of company websites did not achieve basic
levels of accessibility.  By not making their websites accessible, British
companies are forfeiting £80 million a year ($147 million) in lost revenue.



For further information, please contact Edoardo Bellando at the UN
Department of Public Information,  <mailto:bellando@...> bellando@...





[Non-text portions of this message have been removed]

#1207 From: Mike De <misiaczny@...>
Date: Thu Jul 27, 2006 9:55 am
Subject: Re: AW: Whats up?
misiaczny
Offline Offline
Send Email Send Email
 
MG> Bad news from you. Do you have any idea how it will be continued in
Poland?

   MD> I have no idea. At this point I know that Pawel is no longer webmaster of
PSRP vel AMD Retina Poland. Also Piotr Krol - our best translator and magazine
editor has quit cooperation with Mrs. Pacholec.

MG> Germany will participate with one and a half youth member.
I know that Sweden, UK, Netherlands and Ireland will send youth members as
well.

   MD> So I hope that some tasks according to the youth will be spoken. Do
Brazilian organising something for a youth?

Best regards
   Mike


---------------------------------
  Try the all-new Yahoo! Mail . "The New Version is radically easier to use" –
The Wall Street Journal

[Non-text portions of this message have been removed]

#1206 From: "Markus Georg" <m.georg@...>
Date: Tue Jul 25, 2006 5:14 pm
Subject: AW: Whats up?
m.georg@...
Send Email Send Email
 
Hi Mike,
Bad news from you. Do you have any idea how it will be continued in Poland?

Regarding your question regarding Rio I can tell you that Germany will
participate with one and a half youth member.
I know that Sweden, UK, Netherlands and Ireland will send youth members as
well.
I have no idea about Finland, Norway, France, Italy, Lithuania and Spain.

If anybody else has more details it would be highly appreciated to get this
information.

Ciao,
Markus


-----Ursprüngliche Nachricht-----
Von: retinayouth@... [mailto:retinayouth@...] Im
Auftrag von Mike DEBIEC
Gesendet: Donnerstag, 29. Juni 2006 22:10
An: retinayouth@...
Betreff: [retinayouth] Whats up?

It's getting colder and colder here...
Yes, I think we have a problem with new youngsters. Maybe in your country
they rather would like to meet eachother not on the international level...

From april Polish Society of RP is changed into Retina AMD Poland, and I'm
not connected any more with them. So I am free. I'm wondering if I can be a
chairman of REY in that case. Well - Rio is too expensive for my polish
wallet so You have to do meeting in Rio by yourself instead of Zakopane.
Whos going to be in Rio?
Bye
Mike


----------------------------------------------------------------------
PS. Fajny portal... >>> http://link.interia.pl/f196a



To unsubscribe from this group, send an email to:
retinayouth-unsubscribe@...


Yahoo! Groups Links

#1205 From: "Mike DEBIEC" <mikedx@...>
Date: Thu Jun 29, 2006 8:09 pm
Subject: Whats up?
mikedx@...
Send Email Send Email
 
It's getting colder and colder here...
Yes, I think we have a problem with new youngsters. Maybe in your country
they rather would like to meet eachother not on the international level...

From april Polish Society of RP is changed into Retina AMD Poland, and I'm
not connected any more with them. So I am free. I'm wondering if I can be a
chairman of REY in that case. Well - Rio is too expensive for my polish
wallet so You have to do meeting in Rio by yourself instead of Zakopane.
Whos going to be in Rio?
Bye
Mike


----------------------------------------------------------------------
PS. Fajny portal... >>> http://link.interia.pl/f196a

#1204 From: "Markus Georg" <m.georg@...>
Date: Thu Jun 29, 2006 9:02 pm
Subject: WG: Call for Artwork Submissions for Second Annual Art Exhibit by Blind Artists
m.georg@...
Send Email Send Email
 
Maybe it is of interest for you.
Ciao,
Markus

-----Ursprüngliche Nachricht-----
Betreff: Fw: Call for Artwork Submissions for Second Annual Art Exhibit by
Blind Artists

If you know anyone for whom this would be appropriate, please pass it on to
them.
Thanks.
Lorna
----- Original Message -----
From: "Ocusource" <ocusource@...>
To: "Lorna Rosenstein" <lrosenstein@...>
Sent: Wednesday, June 07, 2006 4:57 PM
Subject: Call for Artwork Submissions for Second Annual Art Exhibit by Blind

Artists



***Please forward to artists who may be interested in this event***

Calling all Artists!  Submit your artwork for display at the Eye Care Center

of the Southern California College of Optometry.  Shared Visions 2006, the
second annual juried art exhibit by artists who are blind or legally blind.
Works selected will be exhibited in the Eye Care Center for a period of one
year.  Artists may also offer their work for sale.

A pdf brochure is available at:
http://www.ocusource.com/campaigns/Call_to_Artist_Flyer_6jun06.pdf
THE DEADLINE FOR ARTIST SUBMISSIONS: MONDAY, JUNE 19, 2006.

Download the 2006 Submission Pack:
http://scco.edu/Shared%20Visions/SV%20Artist%20Application.pdf

Forty-five works of art by blind and legally blind artists have been on
exhibit at the Eye Care Center at the Southern California College of
Optometry since last fall. "Shared Visions 2005," an exhibit of paintings,
photography, ceramics and mixed media works by blind artists, welcomed over
200 local residents to the reception. Much of the 2005 artwork can be viewed

at the following website, as well as interviews with the artists:
http://letsgoexpo.com/art.cfm

Obtain application packets for 2006 submissions:
Website: www.SCCO.edu
Email: SharedVisions@...
Phone: 714.449.7462

Mail: Eye Care Center, Southern California College of Optometry
Shared Visions: 2575 Yorba Linda Blvd., Fullerton, CA 92831

Media accepted: Paintings, drawings, photographs, sculpture, and mixed media

pieces.


The OcuSource Team
(888)299-6657 x701
ocusource@...
www.ocusource.com

NOTE: We have no intention of sending you unwanted messages. We are
committed to the accurate and ethical distribution of pertinent information
to the professionals in the assistive technology community.  If you prefer
not to receive any further communications from OcuSource, please reply to
this message with Unsubscribe in the subject line.

#1203 From: "Markus Georg" <m.georg@...>
Date: Mon May 22, 2006 9:56 am
Subject: ENCAPSULATED CELL TECHNOLOGY
m.georg@...
Send Email Send Email
 
Some scientific news published in the Newsletter of Retina International
might be of interest for all RP patients.



Researchers have for many years, been investigating the beneficial effect of
growth factors on the progression of retinal conditions. One of the greatest
stumbling blocks has been the problem of delivering these factors to the
retina. The blood retinal barrier protects the eye allowing only the
required nutrients through to the eye. Eye drops are a very in-effective way
of getting past this barrier and this led researchers to devise a more
efficient drug delivery system. The Encapsulated Cell, a miniature polymer
device that is implanted into the eye, would appear to be the answer to this
problem.

Successful results of a Phase I study of the Encapsulated Cell Technology
trial have just been released. In this study 10 patients in America with
late stage RP had the device implanted and only removed after six months.
The device is hung by a little hook inside the eye out of the path of vision
and constantly releases CNTF which is produced by special cells inside the
device. Although the study was only meant to test for the safety of the
device, most patients actually had a small improvement in vision as well.
This study represents the first use of ECT in human eyes and as the devices
were safe and well-tolerated, we are sure that stage ll and lll trials will
follow shortly. The final results of these studies will help understand the
role that CNTF and other growth factors will play in treating patients with
retinitis pigmentosa and other retinal degenerative conditions.





Markus Georg

Pro Retina Deutschland e.V

Vorstand

Am Reuterberg 26

35745 Herborn

Tel.: 02772 / 570 576

Email:  <mailto:vorstand@...>
vorstand@...

www.pro-retina.org





[Non-text portions of this message have been removed]

#1202 From: "Markus Georg" <m.georg@...>
Date: Thu May 18, 2006 4:35 pm
Subject: WG: ARVO
m.georg@...
Send Email Send Email
 
Dear all,
Please find below some information from the ARVO edited by Gislin Dagnelie
Best regards,
Markus

Dear listers,

As I promised a few weeks ago, here is a brief summary of all the things
I learned (or
should have learned, see below) at ARVO, the annual meeting of the
Association for
Research in Vision and Ophthalmology in Ft. Lauderdale.  And before you
start getting
jealous (yes, the weather was perfect, 85F during the day and 75F at
night, not a cloud in
the sky, and all that), when you spend 12+ hours a day in an
air-conditioned convention
center where it is downright cold and you're drinking coffee to stay
warm, the meeting
might as well have been in Fargo.

But it is a fascinating overview of all that's new in eye and vision
research, with close to
6000 presentations, and 10500 attendees.  The downside of that size is
that it's
impossible to see everything you would like to see, and that you have to
spend at least 1-
2 hours every night to make sure you have your itinerary for the next
day all set up.

It is worth every minute, though.  Just in terms of new ideas, potential
therapies,
encouraging findings in animal testing, there is a lot of reason for
optimism.  But of
course, as several of you have grumbled, it's always "a few more years."
   Well, to start
with something that may have seemed a few years away just a few short
years ago, and is
really here:  Growth of the new blood vessels under the retina, the
scourge of wet macular
degeneration is not nearly the certain path to legal blindness it once
was.  Eight years ago
everyone was talking about macular translocation surgery as a mrethod to
save sight;
then came Visudyne as a "gentle" laser treatment to stop new blood
vessels, but the idea
that a class of compounds called VEGF inhibitors might actually be used
in the clinic to
stop new blood vessels in their tracks seemed too good to be true.

Yet here they are.  Several anti-angiogenic treatments (Macugen,
Lucentis, Avastin) are
duking it out, in clinical trials and in the marketplace, with a lot of
moneyat stake for their
manufacturers.  The next generation, drugs that may slow down the
deterioration of
photoreceptors in RP and dry AMD, is here:  We've all heard about the
next Neurotech
trials, so if all goes well such treatments will be a real option soon.
   How well and for how
long the degeneration process can be stalled we don't know, and lost
photoreceptors will
not come back, so chip implants and cell transplantations remain important.

As for the chip implants, the Optobionics trial is on-going, and we can
expect to hear more
about its results later this year.  If all is well, the effect of this
implant will be similar to that
of the Neurotech implant: slow down the degeneration process, and
possibly improve
vision by a modest amount.  More exciting was the news from two German
groups who
have recently performed their first chronic iimplants in blind RP
patients.  Both confirmed
that the patients see phosphenes similar to those described by the
Second Sight implant
wearers, so we now have independent confirmation from 3 groups that a
chronic implant
can create at least some vision.  All three groups indicate that they
expect more, and
more detailed, results to be available soon.  Second Sight is still
announcing its next
generation implant for later this year.

There were many presentations regarding stem cell transplants, almost
all of them in
rodents.  Some of these used stem cells obtained from within the eye, or
from the
umbilical chord, but most used stem cells obtained from bone marrow
(either autologous,
i.e., from the same animal or patient, or heterologous, i.e., from an
animal without retinal
degeneration).  My impression (but I admit that it may be biased by my
expectation) is that
all stem cell methods have similar results:  temporary vision
improvement and better
health of the retina in the transplanted eye, that can most likely be
explained by an indirect
effect of the transplanted cells on the native rods and cones,
supporting their remaining
function.

The same limitation seemed to hold for most transplant reports with
fetal or adult retinal
cells, although a few of these studies may have shown signs of the
transplanted cells
making functional connections, and possibly creating new vision.  The
most exciting
report, at least among the ones I saw, was from the Institute of
Ophthalmology in London,
where researchers transplanted developing rods harvested from a
normally-sighted
mouse at about 5 days after birth (which is before the mouse opens its
eyes, but well after
the cells have moved into their final locations), transplanted them into
the degenerated
retina of an adult RDS mouse, and demonstrated quite convincingly that
the transplanted
cells formed working synapses (i.e., contacts) with secondary cells and
other features
demonstrating they were fully functioning as photoreceptor cells.  The
particular stage of
development when the cells were harvested would correspond with that of
the human
retina a few months before birth.  Of course this raises questions about
the potential
availability of such donor material for human cell transplantation, but
it may just be enough
to know what the ideal development stage is, i.e., after the cells have
transformed from
stem cells into developing photoreceptors, and then create cells in that
stage of
development in tissue culture.
    More important is the question how much flexibility there is in the
age of the recipient:  In
mice it appears that the transplanted cells can thrive even after the
native photoreceptors
have degenerated, but for the much slower degeneration process in human
patients this
may not be true.  If the technique only works in young children or
persons in an early
stage of retinal degeneration, that would rule out a lot of patients who
are not diagnosed
until the degeneration process is well under way.  But since the process
is localized, it
may be possible to perform the transplants in retinal areas where the
rods and/or cones
are still in relatively good shape.

Hope this helps, and that you will see it as a glass at least half full,
rather than almost
empty.  Looking back 5 years, much of what I saw this year was still in
the realm of ideas,
or even fantasy, so I think there is much to be excited about.

Gislin
------
Gislin Dagnelie, Ph.D.
Associate Professor of Ophthalmology
Lions Vision Research & Rehab Center
Johns Hopkins Univ. Sch. of Medicine
550 N. Broadway, 6th floor
Baltimore, MD 21205-2020      USA

E-mail: gislin@...    It's a small world after E-mail!




--

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#1201 From: "Markus Georg" <m.georg@...>
Date: Tue May 9, 2006 4:00 pm
Subject: 2006 conference list
m.georg@...
Send Email Send Email
 
Please find below a list of some events out of the EDF weekly mailing.

Maybe it is of interest for you .

CU,

Markus





2006 Conference list



Date     Title      Venue   Organisers

2006     9th International Biennial of Disabled People's Fine Arts
Cracow (Poland)           http://www.idn.org.pl/fson



10/05/2006        Seminar on location based services for people with
disabilities London (UK)     PhoneAbility in collaboration with COST210ter
and Ask-it

E-mail : john.gill@...



15-20/5/2006     Training Course on non-discrimination on race, ethnic
origin, religion, belief and disability          Maastricht University (NL)
http://www.rechten.unimaas.nl/racesummerschool



17/5/2006         ECCL seminar "The right to live in the Community"
Brussels (B)      Contact person :

Ines Bulic

E-mail : coordinator@...

18-20/5/2006     Europe in Action

Learning all our lives - Continuing learning opportunities for adults with
intellectual disabilities   Brussels           Inclusion Europe



http://www.europeInAction.org



6-16/6/2006       Disability Discrimination Summer School 2006 : Toward
Effective Test Case Strategies.  Using the European Union Framework
Employment Directive (2000/78/EC) in a Disability Context.    National
University Galway (Ireland)            REGISTER NOW!



http://www.eusummerschool.info



14-17/6/2006     International symposium  Mobilities in Transit - Rethinking
the artefacts, images and surroundings of human motion and movability
Trondheim (Norway)      http://www.hf.ntnu.no/mobilities_in_transit/



19/6/2006         Workshop on "Health and Discrimination"

Results of project funded by the EU action programme on non-discrimination
Stockholm (Sweden)     For further information, contact the project manager
:

E-mail : jonas.frykman@...

Tel : +46 (0)8 508 88 707).









[Non-text portions of this message have been removed]

#1200 From: "Markus Georg" <m.georg@...>
Date: Tue May 9, 2006 4:00 pm
Subject: SOURCE and HANDICAP INTERNATIONAL launch new online Directory on disability, inclusion and development
m.georg@...
Send Email Send Email
 
SOURCE and HANDICAP INTERNATIONAL launch new online Directory on disability,
inclusion and development

A new directory of key information resources on disability, inclusion and
development, is produced by the Source International Information Support
Centre and Handicap International. The directory is available online at :
<http://www.asksource.info/res_library/disability.htm>
http://www.asksource.info/res_library/disability.htm

The directory aids the sharing of high quality, appropriate and up-to-date
information that reflects developing country experience and trans-national
good practice. It is vital for practitioners, programme managers, policy
makers and other people involved in the disability sector.

The directory presents details of over 300 information resources, organised
by topic and including clear abstracts and details of distributors. Most
entries include links to the full resource online. For people with limited
access to the Internet, the directory is available in print with a CD-ROM,
which holds the full = text of many resources in a fully searchable and
browseable interface

Topics include:

Disability and society : Disability and human rights, Mainstreaming and
disability, Inclusive education, Poverty reduction and disability,
Emergencies and disability, Disability and adolescence, Gender and
disability, Disability and sexuality

Management issues : Planning and evaluation of disability in development,
Disability and statistics

Rehabilitation and health : Community based rehabilitation, Mental health,
Child development for community health workers, Nutrition and child health,
HIV/AIDS and disability

Source is an international information support centre designed to strengthen
the management, use and impact of information on health and disability
information worldwide. It is a collaboration of three partners: the Centre
for International Child Health (a research and teaching organisation working
on child health), Handicap International (an international disability and
development NGO), and Healthlink Worldwide (a health communication NGO).



>  <http://www.asksource.info/res_library/disability.htm>
http://www.asksource.info/res_library/disability.htm

Source: EDF Weekly Mailing





Markus Georg

Pro Retina Deutschland e.V

Vorstand

Am Reuterberg 26

35745 Herborn

Tel.: 02772 / 570 576

Email:  <mailto:vorstand@...>
vorstand@...

www.pro-retina.org





[Non-text portions of this message have been removed]

#1199 From: "??sa Gunnarsdotter" <asa.gunnarsdotter@...>
Date: Tue Apr 25, 2006 4:25 pm
Subject: Jaqueline!
asagunnarsdo...
Offline Offline
Send Email Send Email
 
Dear Jaqueline!
Hope everything is fine with u. I send u this email with a request of your
account number so we can pay u the rfund from REY in Sthlm. Please send it as
fast as possible, it is the only infomration we lack to put an end to the
project.

Regards
Asa

[Non-text portions of this message have been removed]

#1198 From: "Markus Georg" <m.georg@...>
Date: Mon Apr 10, 2006 8:52 pm
Subject: WG: (kein Betreff)
m.georg@...
Send Email Send Email
 
For your information a link I received on a stem cell therapy for RD.

Guildford, England, April 4, 2006: ReNeuron Group plc (LSE: RENE.L) today
announces initial survival efficacy data with its ReN003 stem cell therapy
programme for diseases of the retina. The joint research, led by Professors
John Greenwood and Stephen Moss at the UCL Institute of Ophthalmology in
London, showed expansion of human retinal progenitor cells with markers of
photoreceptors over multiple population doublings. These progenitors showed
an ability to engraft and protect the photoreceptor layer of the retina from
degeneration in a retinal dystrophic model

-----Ursprüngliche Nachricht-----
Von: se.klaes@... [mailto:se.klaes@...]
Gesendet: Mittwoch, 5. April 2006 00:58
An: Markus Georg
Betreff: (kein Betreff)

http://www.medadnews.com/News/Index.cfm?articleid=328415

#1197 From: m.georg@...
Date: Tue Mar 14, 2006 11:26 pm
Subject: AW: Zakopane - end
m.georg@...
Send Email Send Email
 
Dear Mike and all,
I am really sorry to read this.
This is very bad but I have tried everything to get people informed about the
meeting.
You put a lot of effort in this project and I deeply regret that there is no REY
meeting in Poland.
Did you get any reply from the email address outside this mailing list that I
have sent to you?
I know you are really frustrated now.
Same happened to me when I cancelled the REY meeting in Germany in 2002.
Everything was planed, prepared and organised but nobody registered for the
meeting. At that time the RI congress in Tokyo was the reason that nobody
registered for the REY meeting.
It seems that it is the same reason this time with Rio.

Bear up!
Markus

>I'm sorry to inform you that meeting of Retina EuropeYouth in Zakopane 2006
>is canceled. Nobody besides 2 persons from Sweden wannnnts to join. All
>reservations expired today.
>Regards
>Mike
>
>
>----------------------------------------------------------------------
>Kliknij po wiecej! >>> http://link.interia.pl/f18ed
>
>
>
>To unsubscribe from this group, send an email to:
>retinayouth-unsubscribe@...
>
>
>Yahoo! Groups Links
>
>
>
>
>
>

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