Today brought the postman me a letter I have been waiting for, the paper telling me what time and date I am going to Lund to get a proper examination of my RP....
Dear Caisa, I understand very well what you are talking about. Anyway, I guess nobody without RP can really understand it. In my opinion those guys can listen...
m.georg@...
Nov 7, 2002 11:56 pm
717
Hallo Caisa! Yvonne from the Netherlands calling! What a lovely letter! Good news too! When you go to Lund perhaps you will meet B. Ehinger - he is a fantastic...
R. van der Wiel
wielromp@...
Nov 8, 2002 9:00 am
718
Thanks a lot both Yvonne and Markus, you are so lovely. Yvonne, I hope I will at least have time to say hello to Berndt Ehinger and as well to a wonderful...
Greetings Markus ! I myself visited an information event in Münster last year. Many researchers have been there to explain RP patients and opthalmologists the...
altunok1@...
Nov 11, 2002 12:10 pm
720
Hello, it's me again from USA, There will be a next youth meeting in Hannover at beginning of 2003. I do not know actually the exact date. Ute Pfannschmidt and...
m.georg@...
Nov 12, 2002 11:13 pm
721
Hello everybody in this list! My name is Hanna Väänänen. I am (soon) 22 years old student from Finland and I also have RP. I have just joined this list. I...
Hanna Väänänen
hanski_vaananen@...
Nov 13, 2002 10:23 am
722
Hi Caisa, Noreen Power-Waldron from Ireland here. I can fully sympathise with how you feel - it's very difficult to deal with a condition when you don't know ...
Noreen Power Waldron
nrpower@...
Nov 13, 2002 1:01 pm
723
ups, i didn't check my mail att this address fore some time so they closed my account, but now i am up and running again. I wanted to ask Caisa if she has...
anna.berndtson@...
Nov 13, 2002 2:58 pm
724
Hi Hanna, hallo everybody, welcome in the list an in our group ! Do you already know Pekka or other people with RP from Finnland ? I am 27, student of social...
simone.brucker@...
Nov 13, 2002 4:04 pm
725
Hello all and espeialy Hanna, wellcome to our list! The web page of P.E.A. (Greek Retina) has been updated. I tryied to make it <retina friendly> but it is the...
Pantelis Pittas
elpadel@...
Nov 14, 2002 10:55 am
726
Dear Anna and everybody, A lot of the peoples with RP notice this black dots. I have really no idea where they come from. But I have heard this might be the...
m.georg@...
Nov 14, 2002 7:04 pm
727
Hello all and welcome Hanna in our list. Ii is good to see someone else ffom Finland here too. Sorry for not writing here lately. Honestly, my vision has...
Pekka Rantanen
vp.rantanen@...
Nov 15, 2002 12:09 am
728
Dear friends, Today I'd like to forward an important letter, which was sent to all members of RI. Anyway, I would be glad if somebody of you would be ...
m.georg@...
Nov 15, 2002 4:51 pm
729
Hi Hanna, This is Markus from Germany. 29 years old, studied economic, actually in the USA for our subsidiary company. RP and worst problems with night vision....
m.georg@...
Nov 16, 2002 12:11 am
730
Hello everyone, My name is George Papadopoulos. I am 24 years old and have ushers syndrome type 1 and retintis pigmentosa. I lives in Australia and am...
George Paapdopoulos
papasg@...
Nov 17, 2002 1:09 am
731
Dear Pantelis, Great job ! I have already recommended the link to some guys of Pro Retina who are great fans of Greece and also speaks a little bit Greek. But...
m.georg@...
Nov 19, 2002 12:02 am
732
Hallo Markus! Great job for you too! Thanks for telling folks about our new www page: http: www.retinanederland.org, we are still in the process of updating it...
R. van der Wiel
wielromp@...
Nov 19, 2002 12:54 am
733
Thanks Markus! Do you have any retina related stories from Amerika? Anyway, stay warm! ... Dear Pantelis, Great job ! I have already recommended the link to...
Pantelis Pittas
elpadel@...
Nov 19, 2002 8:30 am
734
Hello George! Welcome to the list! My name is Pantelis Pittas and i am a student from Athens Greece. I have rod cone dismorphy and achromatopsia. Hope to hear...
Pantelis Pittas
elpadel@...
Nov 19, 2002 8:38 am
735
Welcome George to our list ! I am not sure if there are more guys from Australia on our list, but I also have some contacts to youngsters in Australia (with...
m.georg@...
Nov 19, 2002 2:35 pm
736
Hi George, welcome to the list ! Well, when I first read your name, I thought you come from Greece ! I heard, you want to start an Usher-group in Australia -...
simone.brucker@...
Nov 19, 2002 9:30 pm
737
Hello everyone! I am sorry Pekka to hear about your vision loss. I dont know what to say, hope you find ways to get around anyway even though it is sad. I have...
Åsa Gunnarsdotter
asa.gunnarsdotter@...
Nov 20, 2002 12:27 pm
738
Congratulations Simone! And of course good luck on your last test. I hope you will have some time over for meeting retinos just for fun. And welcome Hanna! We...
Hello Anna, Thank you for your kind offer. We will stay at a friend in Hässleholm, so there is no need for room, but thank you anyway. Now I have asked some...
Hello folks, sorry for not writing for such a long time, butz things are very busy for. I am studying for my final exam on November 25th /26th. I will...
Michael.Reinhardt@...
Nov 21, 2002 8:59 pm
741
Simone, I just want to say a big 'congratulations' - that is great news. However, I hope you won't withdraw completely from the REY activities because we...
Noreen Power Waldron
nrpower@...
Nov 21, 2002 9:17 pm
742
Hi Yvonne, I hope you're keeping well. In response to your request for suggestions for topics, from a personal point of view I would like to see things like...
Noreen Power Waldron
nrpower@...
Nov 21, 2002 9:21 pm
743
Dear Asa, thats sound really interesting - at our university, we can go abroad if we want but usually we stay in our home countries. Its useful to get more...
simone.brucker@...
Nov 22, 2002 8:41 am
744
Hello Markus, Thanks for welcoming me into the list and it is really good for me to get involve and learn from you and others about our similar conditions or ...
