Do you live in the UK and suffer with Sjogrens Syndrome or have friends and family that do? IF SO PLEASE JOIN US
Sjogrens Syndrome is quite Rare in Great Britain and can take some time to get diagnosed, Many Health officials have never heard of it , And yet we need to take special care of our dry eyes and teeth as well as general health, we have found it difficult to get help and support in the British isles, most support groups are based in the U.S.A and their Health is cared for in a totally different way than ours. We set up this group so that those suffering with this disease can share their experiences and get support from other sufferers that understand what they are going through .
We hope to build up a database of knowledge that will help those relying on National Health and private health care in this country.And also provide knowledge that will help friends and family understand how this disease effects us.Please bare in mind that non of us are medically trained or qualified to diagnose your illness, all advice and information is given from what we or other members of this group have experienced and we suggest you verify it with your own Doctor or Nurse practitioner.
We hope also to make it a friendly place where the worrys of life can be shared as well as the ocasional joke and laughter.
MAGPIE & SUE
SJOGRENS SYNDROME
Sjogren's syndrome is a chronic, inflammatory, autoimmune disorder characterized by dry mouth and dry eye which represent the two primary clinical features of this disorder. Two distinct forms of Sjogren's syndrome are recognized known as primary and secondary Sjogren's. Primary Sjogren's syndrome is defined as dry mouth that is not associated with another underlying autoimmune disorder, whereas, secondary Sjogren's is dry eye and dry mouth associated with an underlying autoimmune connective tissue disorder such as rheumatoid arthritis, systemic lupus
