Spring, I wonder what type of scanning you are unable to have due to your reaction to contrast. Nuclear medicine thyroid imaging offers two different...
Gail, Not knowing about this, is a BMB the only way to test for the JAK mutation? Since 23&me is questioning if I have that or not - guess I need to figure...
Yes, it was done at the Ingram Cancer Center at Vandy. Vanderbilt is huge with hospitals and clinics. I used the standard premedication protocol from the...
Issie, I believe JAK can be detected in the blood as well. Somewhere I read that marrow seemed to be more reliable for the C-KIT testing. Don't know if this...
I will absolutely share the results. It is about time for me to go to bed, and I do hope I sleep well. I sure did last night. Hope you sleep well too. Gail...
Thanks for the info. Was hoping that it could be gotten that way. Please do let us know what you find out. Will be interesting to compare notes. Issie...
Thanks to all for the encouragement! Yes, Tina it can be difficult to understand how people can have such different symptoms and yet have the same problem. It...
I am wondering about IGG food reactivities that show up on RAST testing, and if any of you have had this happen? My local Immunologist decided to test me as...
Christina, Not that you asked for my opinion:) but I would suggest continuing with Dr. Afrin's plan of introducing "one at a time." Too many variables at once...
I had reactions on my RAST, but don't remember which type, will try to look later. I had a 3 level reaction(I think) to egg, broccoli, mushrooms, and rye. ...
Debbie, I have never had any allergy testing because I have very few allergies. I don't know that I would assume the foods are doing any damage because Mast...
Thanks, Tina, I appreciate any thoughts even when I don't ask for them! ; ) That was exactly what we were thinking! We would love to use this doctor for...
Christina, one of the things I have noticed is that Drs who are unfamiliar with Mast Cell reactions have no idea just reactive a person can be. With standard...
I have a question about the GastroCrom. I've never used it. But, have some Nasal Crom. I know they are similiar - but, how does the GastroCrom work vs....
Issie, NasalCrom works locally, in the airway. GastroCrom works systemically. I have no idea how NasalCrom would work squirted down the throat???? Forgot to...
Hi Issie, I drink gastrocrom, from a liquid form in little viles. It's the generic-cromolyn sodium. I heard it's expensive, but great for the stomach cramps....
It is good for the gut, but it has helped more than that for me. My Creatinine had been in the High range. The last 2 times it has been tested, that has...
I really enjoy hearing the positive stories- thank you to everyone for sharing. By hearing the bad and the good we are all learning so much. I wanted to give...
Tina-- this is HUGE for you and Sean! I am so happy that it is helping!! YAYYyyyyyyyyyyyy I hope it's just the beginning of improvements for both of you your...
Tina I dont use a portable neb but we have 3 regular so I keep one albuterol and an inverter in the car. So far it's worked fine when needed. Spring Sent from...
Tina, I don't have asthma but have been short of breath often. Singulair is really good for that. I now take 2 vials of GastroCrom 3 x day. I have been trying...
Susan, thank you for the amazing article. Wow, that is very helpful. I related to the bruising. If I walk in the mall or anything like that, something very...
It is so good to hear of your improvements! I hope the food trials continue to go well! Allison wants pickles, celery, and cucumbers! I don't know that...
I have a huge court date in the morning. The judge is hearing my motion to relocate right away. I'm petrified and relieved at the same time. Terrified it won't...
I sure hope so! It sounds like you've done everything humanly possible. I'm not a doctor but may I suggest if you haven't already to begin increasing your...
