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theelephantproject · The Elephant Project

Group Information

  • Members: 129
  • Category: Support
  • Founded: Jun 12, 2011
  • Language: English
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Messages 7697 - 7726 of 12454   Oldest  |  < Older  |  Newer >  |  Newest
Messages 7697 - 7726 of 12454   Oldest  |  < Older  |  Newer >  |  Newest
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7697 Deborah Drake, ND
deborahdrake Send Email
Aug 1, 2012
11:17 pm
I hope it went well. Now you need a vacation to distract you and let your body calm down. I went through a super stressful period lately and getting away for a...
7698 Spring Sunshine
springeedingee Send Email
Aug 1, 2012
11:24 pm
Things went so so. His Attny objected to like everything. The judge asked why he hasn't been charged over and over. We had a therapist a dcf worker a forensic...
7699 mommy2seanp Send Email Aug 2, 2012
12:52 am
I'm so sorry this is dragging out. Praying it works out in your favor....
7700 mommy2seanp Send Email Aug 2, 2012
12:56 am
Hi everyone, I wanted to share this EDS/ Dysautonomia survey I came across on Dr. Diana's website. It's easy to download, fill out, and submit if you're...
7701 maiysa1 Send Email Aug 2, 2012
4:19 am
HI Spring, hope you are doing better. Hang in there. Thanks for the article Tina! I think I posted over a week ago that I went to the ER and my liver was...
7702 mgc0724 Send Email Aug 2, 2012
7:20 pm
Maiysa, the liver stuff really needs to be discussed with your Dr, but I am thinking the inflammation may be from the Mast Cells. Mast Cells are known to...
7703 mgc0724 Send Email Aug 2, 2012
7:22 pm
I'm thinking of you Spring. Hope you are doing alright and that everything will eventually work out...since it hasn't already. Gail...
7704 Daniel
drledford93 Send Email
Aug 2, 2012
7:26 pm
Has anyone asked their doc or been on this?  I was thinking of asking my pain doc for it tomorrow.  From a lot of reports, it's great for energy.  The...
7705 Lisa Simmons
girlinchair_... Send Email
Aug 2, 2012
7:45 pm
I loved Allison's video of her first steps. I have a double HKAFO that's even the same blue shade lol- his name is Fred and when I couldn't walk for years die...
7706 Lisa Simmons
girlinchair_... Send Email
Aug 2, 2012
8:01 pm
As for the gastro chrome I don't tolerate it at all. For me it has to be the plastic ampules they are in because we now know I don't do anything with plastic...
7707 Lisa Simmons
girlinchair_... Send Email
Aug 2, 2012
8:09 pm
Maiysa, do you have EDS as a diagnosis? If not it sounds like you should lol. I've actually been to Dr. Ponicki's lectures before so I've heard it and it...
7708 Lisa Simmons
girlinchair_... Send Email
Aug 2, 2012
8:11 pm
I'm so sorry to hear that you have to go back in again because he went over time, but very glad to hear that it's going so well. Hopefully after this next...
7709 maiysa1 Send Email Aug 3, 2012
1:02 am
Oh thank you so much Gail. I was afraid I would have to go off of the gastrocrom. I have an appointment next week with my family doc. But of course they...
7710 maiysa1 Send Email Aug 3, 2012
1:07 am
Hello Lisa, I have been diagnosed with hyper mobile joint syndrome, but heard it is the same as EDS. My doc at Mayo was going to try to diagnose it for me but...
7711 Susan O'Neal
catmafia03 Send Email
Aug 3, 2012
1:53 am
I was on it and then Nuvigil for awhile, not sure on the length of time. I was douptful of just how much it improved things, but my daughter said it made a...
7712 Mary Coleman
mary_in_va Send Email
Aug 3, 2012
10:57 am
Spring, I'm sorry I hadn't checked my messages so didn't realize the big day was upon you. I wish they wouldn't drage things out like they do in the courts,...
7713 Daniel
drledford93 Send Email
Aug 3, 2012
1:06 pm
So, you were more willing to say "Yes" to things because you felt better?  Or, something else?  Did it help any other symptoms?  I know it's pretty...
7714 Sarah Nicholson
doggus25 Send Email
Aug 3, 2012
1:16 pm
This made me laugh - my son would love to give me a pill to make me say yes to things! To: theelephantproject@... From: drledford93@... ...
7715 Daniel
drledford93 Send Email
Aug 3, 2012
2:06 pm
Ha!  Maybe I should give this to my wif...ah, nevermind. =)  =)  =) ... From: Sarah Nicholson <doggus@...> Subject: RE: [theelephantproject]...
7716 Susan O'Neal
catmafia03 Send Email
Aug 3, 2012
2:48 pm
As I said Daniel, at the time I couldn't really tell if it made me feel better. The best I can remember, my memory of that period is pretty bad, was that I...
7717 Bowes Martha
mhbowes11 Send Email
Aug 3, 2012
3:05 pm
One thing I wonder ... he's using beta blockers for patients, but I read that they are mast cell destabilizers. I don't know if he's looped in on the mast cell...
7718 Bowes Martha
mhbowes11 Send Email
Aug 3, 2012
3:06 pm
This isn't conventional, but i'm using SAM-e successfully for pain (granted not as bad as yours). It's also thought to be good for the liver, but prob more...
7719 drledford93@...
drledford93 Send Email
Aug 3, 2012
3:08 pm
Ok, I just didn't quite understand, sorry. I appreciate your help. It did help quite a bit. Thanks again. From my HTC Sensation 4G on T-Mobile. The first...
7720 Spring Sunshine
springeedingee Send Email
Aug 3, 2012
3:16 pm
I thought I was going to. But my ex won't let my teen come down. We were going to fly out to Washington and go whale watching. Now Idk. I can't stay at my...
7721 Spring Sunshine
springeedingee Send Email
Aug 3, 2012
3:18 pm
Roflmbo! Love it. A yes yes med. where do I get it. Lol Sent from my iPhone...
7722 Spring Sunshine
springeedingee Send Email
Aug 3, 2012
3:20 pm
Susan and others on ala. How do you deal with the ala. when I take it my throat hurts? Feels like pill comes. BAck up? Idk how to describe but I can't tell if...
7723 Sarah Nicholson
doggus25 Send Email
Aug 3, 2012
8:11 pm
Ha ha! To: theelephantproject@... From: drledford93@... Date: Fri, 3 Aug 2012 07:05:12 -0700 Subject: RE: [theelephantproject] Provigil for...
7724 Christina
twodogs8us Send Email
Aug 3, 2012
9:34 pm
Never tried ALA, but around here, if a pill feels like it is getting stuck or coming back up, it's usually a sign that they're reacting to it. If they don't...
7725 Daniel
drledford93 Send Email
Aug 3, 2012
10:23 pm
One thing on the MCAD front, Dr Afrin stated to me that if a pill (or anything) is hard to swallow or feels like it "gets stuck", then it's probably esophageal...
7726 Spring Sunshine
springeedingee Send Email
Aug 3, 2012
10:32 pm
That's what I wondered. I have trouble with large pills frequently and it's large. But it isn't immediate it's 15 minutes or so later. Sent from my iPhone...
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