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theelephantproject · The Elephant Project

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  • Members: 128
  • Category: Support
  • Founded: Jun 12, 2011
  • Language: English
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Has anyone asked their doc or been on this?  I was thinking of asking my pain doc for it tomorrow.  From a lot of reports, it's great for energy.  The...
14 Aug 4, 2012
7:32 am

Susan O'Neal
catmafia03
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I have a huge court date in the morning. The judge is hearing my motion to relocate right away. I'm petrified and relieved at the same time. Terrified it won't...
10 Aug 3, 2012
3:16 pm

Spring Sunshine
springeedingee
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Ok, I just didn't quite understand, sorry. I appreciate your help. It did help quite a bit. Thanks again. From my HTC Sensation 4G on T-Mobile. The first...
1 Aug 3, 2012
3:08 pm

drledford93@...
drledford93
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Maiysa, do you have EDS as a diagnosis? If not it sounds like you should lol. I've actually been to Dr. Ponicki's lectures before so I've heard it and it...
4 Aug 3, 2012
3:06 pm

Bowes Martha
mhbowes11
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HI Spring, hope you are doing better. Hang in there. Thanks for the article Tina! I think I posted over a week ago that I went to the ER and my liver was...
3 Aug 3, 2012
1:02 am

maiysa1
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An interesting document I found tonight and wanted to share. http://www.dynakids.org/Documents/hypermobility.pdf He has a lecture available at...
3 Jul 31, 2012
1:01 am

mommy2seanp
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I am wondering about IGG food reactivities that show up on RAST testing, and if any of you have had this happen? My local Immunologist decided to test me as...
3 Jul 28, 2012
4:08 am

mgc0724
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I wanted to give a a more in depth report of my BMB experience in case others might be interested in going to Vanderbilt. There were 3 people other than myself...
13 Jul 27, 2012
6:26 am

Issie
auntissie
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I am still on minimal meds after my MCAS testing last week, and on Saturday got my IV fluids. I was amazed at what a difference they make. Saturday morning I...
95 Jul 27, 2012
5:00 am

Lyn
doozlygirl...
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And everything went really well. Aspiration and bone sample are off to be analyzed. I really like the ppl at Vanderbilt. A Nurse Practitioner did the biopsy,...
7 Jul 26, 2012
6:16 pm

mgc0724
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If this is the case, why hasn't more been done to mitigate the levels of these biochemicals in AI conditions? I realize it might not be easy but generally...
29 Jul 26, 2012
5:52 pm

drledford93@...
drledford93
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I had to drive all the way to the post office to pick up two certified letters from the local breast center. I just had a check up 6 months ago and was told...
12 Jul 26, 2012
4:46 am

Lyn
doozlygirl...
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I was just sent this article from a friend of mine who also has POTS and probable MCAS. This may be of interest to several of you. This site has some other...
1 Jul 25, 2012
11:33 pm

Issie
auntissie
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Hello Friends, Old & New- I apologize for my long absence- more about that later. Please know that I've kept you all in my heart and prayers. My...
2 Jul 25, 2012
4:38 pm

maiysa1
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Hey all, I was just reading up on some stuff bcs I keep having SEVERE muscle soreness (no cause evident) and shortness of breath.  I came across polymyositis...
7 Jul 24, 2012
9:18 pm

Josie Evans
josieevans
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I was on 35mg of HC for several years. Its effect slowly diminished. IOW, the symptoms I have now, I had when on HC. It may be related to adrenals or MCs....
57 Jul 22, 2012
4:03 am

Spring Sunshine
springeedingee
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So my body aches got worse yesterday, I was in tears for about 10 hours. Then everything went terribly wrong. My temp was only 99.5, which I've had higher...
41 Jul 21, 2012
1:13 pm

Mary Coleman
mary_in_va
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Hi Just another sal trigger I have found for my son and most likely me. Fabric softener/dryer sheets. We are staying with family at present and after a few...
3 Jul 21, 2012
5:53 am

Reginald Sauls
lizasauls
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Dr. G just called in Diamox for me to trial. I've been having terrible edema lately and lots of pressure in my head. So, even though he doesn't really...
15 Jul 21, 2012
1:10 am

Issie
auntissie
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You know, I was measured at a bafflingly low renin and aldo number a while back. My aldo was 0 (yep, ZERO) and that was salt fasting, too. It isn't proof but...
9 Jul 20, 2012
1:01 pm

Daniel
drledford93
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I just discovered that I haven't been seeing all messages. Noticed small print at the end of my "digest" e-mails that says "message truncated" and lets you...
1 Jul 20, 2012
11:06 am

Mary Coleman
mary_in_va
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So far, I have an appointment time, given to me by the referring Dr's office, and instructions not to eat anything 6 hrs prior. No other instructions. hmmmm...
12 Jul 20, 2012
3:52 am

mgc0724
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Abstract Having identified renin in cardiac mast cells, we assessed whether its release leads to cardiac dysfunction. In Langendorff-perfused guinea pig...
9 Jul 19, 2012
8:10 pm

mgc0724
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This almost the only 'allergic&#39; symptom I show, and it is related to Mast Cells. Interesting study: Mean +/- SD corticotropin levels were 24.43 +/- 14.38 pg/mL...
4 Jul 19, 2012
7:49 pm

mgc0724
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Hi folks! I've been trying to follow the threads here for a few months since Ana pointed me in this direction, but hesitated to post since I really didn't...
31 Jul 19, 2012
3:55 pm

maiysa1
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I have seen that a lot of you have been going through your 23andme results and looking for common elements. I don't know much about 23andme as I have applied...
1 Jul 19, 2012
2:12 pm

hhoover75
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Wow, it seems several of us have low Renin and Aldo! Is that connected with MCAS???? My Endo can't figure out why mine is low. My potassium is low normal and...
5 Jul 19, 2012
1:35 pm

hhoover75
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It's been awhile since I've posted, but - I got my 23&me results back and was talking with Sarah and she suggested that I ask my question about my results...
47 Jul 18, 2012
9:52 pm

Sarah Nicholson
doggus25
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Dug up my labs. Anti-Xa Heparin was 0.05 units/mL.....thanks for the reference #s, but I need to double check the units since sometimes Canada is different. If...
25 Jul 18, 2012
12:32 am

anaphylaxing
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First off, this has Methelization information, a topic recently discussed on one of these lists. Susan http://www.pharmgkb.org/pmid/18001838 Influence of...
14 Jul 17, 2012
10:33 pm

Mary Coleman
mary_in_va
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