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theelephantproject · The Elephant Project

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  • Members: 133
  • Category: Support
  • Founded: Jun 12, 2011
  • Language: English
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13147 sarah4_ep Send Email Jun 19, 2013
6:39 pm
Duh - I googled it, and it seems quite a few people have. http://www.aafp.org/afp/2006/0401/p1231.html (see Pathophysiology) ...
13148 maiysa1 Send Email Jun 19, 2013
6:39 pm
Thanks Kathy, I do wonder if medication is not helping. I didn't have this till this year. And now my thyroid after being schmanser free for 4 years has two...
13149 Doozlygirl
doozlygirl... Send Email
Jun 19, 2013
6:40 pm
Maiysa, I appreciate you chiming in.  The gut seems to be at the root of so many chronic illnesses - the way we are able to take in food, water,...
13150 sarah4_ep Send Email Jun 19, 2013
6:42 pm
Someone sent me this and I thought I'd post it: http://www.medicalnewstoday.com/articles/257319.php...
13151 maiysa1 Send Email Jun 19, 2013
6:43 pm
From the paper you posted Sarah.....Conclusion-An altered immuno-inflammatory response to environmentally induced allergic reactions may predispose women to...
13152 sarah4_ep Send Email Jun 19, 2013
6:45 pm
Thanks, Lyn - those are exactly what I was looking for but couldn't find! The one I have both risk alleles for is CYP1B1 L432V...
13153 maiysa1 Send Email Jun 19, 2013
6:47 pm
Nice, you are an innovator Lyn. I talked to Dr Tim and he wanted me to focus on healing my gut. Oh, that has been fun. Peppermint was a bust. And have ran...
13154 sarah4_ep Send Email Jun 19, 2013
6:54 pm
That's really good news about Allison - you guys are so successful when it comes to getting the doctors to contact one another. I wish I could figure that one...
13155 sarah4_ep Send Email Jun 19, 2013
6:55 pm
I can't remember - is there a place for Files and Links on their site?...
13156 sarah4_ep Send Email Jun 19, 2013
6:59 pm
Thanks so much, Lyn, for taking the time to explain your thinking on this. I know it represents a lot of reading! It seems like the methylation and detox...
13157 sarah4_ep Send Email Jun 19, 2013
7:03 pm
I've been dealing with quite a few glitches too. We do need a change, but want to find a place that meets all of our needs - simplicity, access by smart...
13158 sarah4_ep Send Email Jun 19, 2013
7:08 pm
Found it - and I don't have a gmail address......
13159 sarah4_ep Send Email Jun 19, 2013
7:10 pm
That's great! Although I wish you didn't have the issues......
13160 Spring Sunshine
springeedingee Send Email
Jun 19, 2013
7:13 pm
Thanks Maisya. I don't know if that's the culprit. The scrape is on my left leg. But I'm getting itchiness in both. And now the right thumb print too. Only the...
13161 Spring Sunshine
springeedingee Send Email
Jun 19, 2013
7:14 pm
I would see about getting in to a nephrologist ASAP. This should be considered emergent. Until the cause is determined at least! Sent from Spring's iPhone...
13162 sarah4_ep Send Email Jun 19, 2013
7:17 pm
Hi everyone, I received an email today (and I'm hoping others here did too) indicating that Dr. Vadas will soon be moving to the second phase of his study. If...
13163 Spring Sunshine
springeedingee Send Email
Jun 19, 2013
7:17 pm
Lyn You can use chrome but don't have to. I have a google+ but never use it. I actually love chrome as a browser. It's more stable than Firefox or IE I...
13164 Christina Workman
twodogs8us Send Email
Jun 19, 2013
8:19 pm
Could it be because of the higher histamine at night, Spring? I really don't know. I don't have the same issue with razors (other than the fact that nearly...
13165 Christina Workman
twodogs8us Send Email
Jun 19, 2013
8:24 pm
I did not get the update yet, Sarah. Christina...
13166 Doozlygirl
doozlygirl... Send Email
Jun 19, 2013
9:00 pm
If only it were so easy to take a BH4 capsule....But then again, noting in this realm is easy.  The best way to fix the BH4 deficiency from what I've read is...
13167 Doozlygirl
doozlygirl... Send Email
Jun 19, 2013
9:02 pm
Thanks Spring.  ________________________________ From: Spring Sunshine <springeedingee@...> To: "theelephantproject@..."...
13168 Susan White
susanwhite7777 Send Email
Jun 19, 2013
9:59 pm
You sent me the questionnaire, Sarah. I just hadn't filled it out yet. I do have an official diagnosis of EDS and just saw my Rheumatologist today. She will be...
13169 maiysa1 Send Email Jun 19, 2013
11:39 pm
For me that is exactly the same thing. Before I was diagnosed with mast cell we looked into MS because it's one of the symptoms, but it was just my lower...
13170 maiysa1 Send Email Jun 19, 2013
11:43 pm
I thought the same thing, but they told me that hydronephrosis can go on for a long time and that the soonest they can get me in will be July 2nd. The doctors...
13171 maiysa1 Send Email Jun 19, 2013
11:45 pm
I got the update today Sarah. That was soooooooooo great to hear. I sent him a thank you also and told him how much I appreciate his efforts! Maiysa...
13172 maiysa1 Send Email Jun 19, 2013
11:48 pm
And that's the million dollar question for me Lyn, how do we do that? I can't find anything I can take. Have you found anything you can take for your gut? I...
13173 Danette Hillier
danihillier75 Send Email
Jun 19, 2013
11:48 pm
It's POTS/MCAS from stretchy veins in your lower legs. They fill up with more blood being at a lower level than your heart and being stretcher with the EDS....
13174 maiysa1 Send Email Jun 19, 2013
11:52 pm
Now that I think about it, I'm having problems lately with having loosey goosey joints again. I thought I was over that after the menstrual cycles...
13175 Danette Hillier
danihillier75 Send Email
Jun 19, 2013
11:56 pm
With EDS, your always going to have veins that will take in more blood than a normal person's would and at night, even a normal person's legs can pool with...
13176 Spring Sunshine
springeedingee Send Email
12:13 am
Thanks all! Now that I think about it the problem started and has been worse since I tried the insulin that made my throat close up!!! Lovely! Has anyone tried...
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