Hi Rachelle Thanks for your advice, have made an appointment! Sorry you seem to have had such a long / difficult journey with this, hope you are ok at the...
Hi Everyone, I don't get the opportunity to log as often as I would like due to workload of Butterfly but I hope this might help with the recent posts re Tg...
Hello all, just joined the group. Been meaning to do it for ages. I'm the mother of a sufferer, she was diagnosed at 13 and here we are 3 years later still...
I wished I had the luck others have had with this cancer. It has caused one problem after another. I wish they would come up with a better treatment for this...
Hi Ruth, Yes, you are right my name is Carmel. Thanks for your email, will certainly check out the files for more info. Am being treated in North London...
Hi my daughters voice slowly came back over a couple of month. she sounded very babyish for a while. It aslo sounds awful when she coughs as she now has only...
Hi "barberkatey" and welcome! Can you tell us some more about your daughter's experience? What type of thyca did she have? My daughter is 14, and had...
Hello Rachelle Welcome to our group. I am fairly new here myself having being diagnosed in May. I had my surgeries June and August, had RAI 4 weeks ago. Had...
Hi Rachelle and welcome to the Group. I am very sorry to hear of all the problems you have had. Hopefully you are now dealing with good doctors and hospitals....
... Hi, Welcome, and you're doing it fine :) How old is your daughter? I was diagnosed and had surgery for thyroid cancer when I was 15, I'm now 16 going on 55...
... Hi Rachelle, Welcome to the group and I'm sorry you're having to deal with this again :( British guidelines do indeed recommend to keep the cumulative dose...
HI Rachelle yes I agree with Judith. A second opinion and a referral is always a good idea. Afterall its your body adn under NHS guidelines we should have a ...
I will start a new thread telling our story (it could take a while) but to answer your questions my daughter is 16, she was 13 when she was diagnosed with...
Hi there, well I have seen 4 different doctors over my thyroid cancer and the hypocalcemia and I am being told pretty much the samething. I had some pretty...
Hi dawn. I'm glad to hear everything went well for you. I have papillary carcinoma, well that's what I was diagnosed with when it all started. If the cancer...
Hi Kate, Thanks for the info. Last year i had a negative Tg result but a positive scan which was very unusual and nobody ever mentioned the Tg antibodies. I'm...
Hi Rachelle It is universally accepted that the risk of secondary cancer caused by radiation exposure follows a linear model at this dose level. What this...
Thanks for your imformation, although,I am game for more treatments of RAI, its the doctors who have a problem giving it to me, My endo told me that they cant...
Hi Rachelle, Which country are you in? There are several centres in the USA that have a more aggressive approach, and you mention that you're taking Synthroid...
Thanks I will. I am in San Diego, California. How funny I used to take a medicene named thyroxine. I have also taking levethyroxine I was told that was the...
If you are in the US, Rachelle, I would highly recommend the US Thyca Group as they are a team of very experienced people, including Ian Adam. I am in the US...
-snip I am in the US myself and have learnt, both from my own and other people's experience, that you can get VERY bad as well as VERY bad doctors here! -snip ...
Hope someone out there can help me understand my test results. My TSH is 0.01, my Free T4 is 23.7. Now I think the TSH result is good as we have to keep that...
Hi Karen I'm no expert (!) but I have just compared your latest results with a set of results I had recently looked at by my oncologist. Mine were TSH 0.29...
Thanks for that Rachel:-) I wonder why it would be better at 30? How would they make it 30, by giving more thyroxine? I presume as long as the TSH is supressed...
He just said it needed to be a little higher and I asked him to name an approx figure (because I'm trying to gain a working knowledge of where I should be)....
HI rachel if youa re not having any more RAI you should be able to go on iit straight away. I started my T4 on the Thursday - I'd had the rai on the Monday ...
Hi Rachel Hope you dont have to wait around too long for an answer, surely if that is all the tests out the way you should be able to commence meds again but...
Hi Amanda, I certainly don't intend waiting 2 weeks for his blessing, but it would have been nice to have been given the go ahead. I have phoned my GP and...
