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1206
(no subject) http://rumahminimalismodern.net/wp-content/themes/tiga/achievesk.php
Laura Ward
28 Mar
#1206
 
1205
Re: Information and support groups Hi Steven, My little boy, Bruce has achondroplasia. He is 7. I'm a member of a few groups. I have found the most helpful and positive to be little people uk.
Maureen Carnie
12 Jan
#1205
 
1204
Information and support groups Hi Our daughter was born three weeks ago and has been diagnosed with achondroplasia. Therefore we are both keen to gather as much information and support in
Steven Gale
12 Jan
#1204
 
1203
Re: Season's Greetings Have a wonderful season and good health throughout the years ahead. God Bless   Kim TAN On Thursday, 19 December 2013, 8:43, "robpegs@..."
Kim Chai
Dec 20, 2013
#1203
 
1202
Season's Greetings Season's Greeting and best wishes to all for 2014. Rob
robpegsuk
Dec 19, 2013
#1202
 
1201
Claiming DLA for Achondroplasia Dear Karen, I hope you do not mind my cheekiness but I was on the internet looking up how to claim DLA for a child of 3 with achondroplasia and spotted your
Alison Hauxwell
Dec 12, 2013
#1201
 
1200
Expert Help Neeeded Hello, Hope this finds you well. I am looking or a specialist hospital/ individual practitioner who deals with people who have Achondroplasia and was wondering
Katie Collis
Dec 12, 2013
#1200
 
1199
Re: Beds Hi Sarjfin Try asking local Disability & Mobility Centre. They maybe able to help you. Will pass on to ask around, too. Best wishes   Kim TAN On Tuesday, 26
Kim Chai
Nov 26, 2013
#1199
 
1198
Beds Hello my name is Sarah, I have Achondroplasia, as well as cerebral palsy and am looking for a bed which can be adjustable for my size. I am 3 foot 10 but has
sarjfin
Nov 25, 2013
#1198
 
1197
Re: (unknown) Hi,Val thanks for reply,I am in Peterborough UK
Sadia
Nov 4, 2013
#1197
 
1196
(no subject) hi Lisa, nice to hear from you. yes i am in Peterborough-UK. Im really concerned about my daughter's development. i want to know from people with Achon... as
Sadia
Nov 4, 2013
#1196
 
1195
Re: Help Hi Gabrielle, I'm glad that I could be of some help. Don't despair about the situation because from our experience there wouldn't have been much intervention
Joan Scott
Nov 1, 2013
#1195
 
1194
Re: Help Dear Joan, Your reply is just what I needed to hear. It is good to hear that someone understands my concerns. As you say eventually something will be done  as
Gabrielle Cumming
Nov 1, 2013
#1194
 
1193
Re: Help Thank you for that. My son and daughter have very high powered jobs with lots of foreign travel and missed all the development tests hence nothing being done
Gabrielle Cumming
Nov 1, 2013
#1193
 
1192
Re: Help Hello, I am not an expert but I don't think your grandaughter's got achondroplasia. Does she have trident fingers? However I do think that she might have
Veronique Walraven
Nov 1, 2013
#1192
 
1191
Help It is worried granny back! I have left message before and still haven't done anything definite about it in case I offend my daughter in law and incur the wrath
gabriellecumming
Nov 1, 2013
#1191
 
1190
Re: Micro scooters Yes it was the one with the seat that I was looking at, I think you have confirmed that this would be a good buy for Mylo. Thanks for your help.
Joan Scott
Oct 31, 2013
#1190
 
1189
Re: Micro scooters i honestly cant remember, about 2 i think but they do one now with a removable seat (that wasnt out when fern was that age, she is nearlly 8 now). it was
s.snedon@...
Oct 31, 2013
#1189
 
1188
Re: Micro scooters Many thanks for your reply. How old was your daughter when she started using the scooter and is hypochondroplasia very different from achondroplasia?
Joan Scott
Oct 31, 2013
#1188
 
1187
Re: Micro scooters there has been a similar question on facebook this week and nearlly everyone is recommending the micro scooter. my daughter has one and gets on great with it
s.snedon@...
Oct 31, 2013
#1187
 
1186
Micro scooters My grandson is 28 months old and has achondroplasia. For Christmas I would like to buy him some sort of ride on toy. I have been looking at the Mini Micro
joanh.scott@...
Oct 31, 2013
#1186
 
1185
(no subject) Hi sadia my names Lisa I have a son Jamie now 4 1/2 with achondroplasia also my partner tony has as well, are you in the uk
Lisa
Oct 3, 2013
#1185
 
1184
Re: (unknown) Hi Sadia Nice to hear from you through the Achondroplasia Group. Are you in Peterborough England or USA? I am in England, and can put you in touch with other
Valerie
Sep 30, 2013
#1184
 
1183
(no subject) Hello. me n my husband are both average height.My Duaghter Fizza is 21 months old and has achondraplasia.No one in our family has this condition.I live in
Sadia
Sep 30, 2013
#1183
 
1182
Toys Hiya Everyone My niece Tyler Louise was diagnosed with hyper-achondraplasia at a few months old, she is now 2 and a half and the light of our lives. We are
kirstineoglesby@...
Sep 30, 2013
#1182
 
1181
Re: hypochondroplasia Hi Please share ho you obtain dla motability. Leon born with the condition only received lower rate with care. He has been trying to get motability without
Kim Chai
Sep 23, 2013
#1181
 
1180
Re: hypochondroplasia Hi there. Did you manage to get dla or motability as i have this condition and recieve nothing . thanks
sarah_lou_1993
Sep 23, 2013
#1180
 
1179
Re: Advice for seating Hi Eve  I recollect your pain when my son was 51/2 months. He can't sit up but eventually roll about around 1 year plus. She takes longer to than normal to
Kim Chai
Sep 5, 2013
#1179
 
1178
Re: Advice for seating Hello Eve, It is very common for children with achondroplasia to have low muscle tone. And many milestones can take longer to achieve. Good support is very
Veronique Walraven
Sep 5, 2013
#1178
 
1177
Advice for seating My daughter Tasha is 5 1/2 months old. Achon was suspected in utero, as was down 's because she had very short limbs and a largish head. Once she was born, a
Eve
Sep 5, 2013
#1177
 
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