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Re: cochlear impant

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  • Saffron
    Hi Paul, Lovely to see you posting here. I remember you and in fact, I feel embarrassed for not contacting you, as you had given me your email address. The
    Message 1 of 13 , Sep 1, 2006
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      Hi Paul,

      Lovely to see you posting here. I remember you and in fact, I feel
      embarrassed for not contacting you, as you had given me your email
      address. The past year has been a bit mad for me and I've got a huge
      list of things I've been meaning to do for ages and emailing you was
      one of them!

      I'm glad you're finally being assessed for an implant. Do you know
      Jenny from the Cochlear Implant group? Jenny comes to the Red Lion
      in London quite often. I'm sure Michael will be able to introduce
      you to a few more people with cochlear implants. Have you been in
      touch with the LINK centre for deafened people? Do you know of their
      rehabilitation course for deafened people? If not, do ask me or
      Michael and we'll give you some info.

      You're welcome to come back and join us at the Red Lion. We meet
      there every 3rd Monday of the month and there is also another
      Saturday gathering on October 28th (like the one you attended).

      Take care and hopefully see you again soon,

      Saffron

      --- In hardofhearinguk@..., paul mcphoy
      <paulmcphoy@y...> wrote:
      >
      > Hi
      > I'm sorry i missed the get together on Monday and I hope you all
      had a good time. It's been a while and I've only attended once,
      acouple months ag,. so I won't be surprised if you don't remember
      me. I know Mike Samaru , in fact he intoduced me to the group and I
      remember meeting a few lovely people : Saffron, Nick , Tim Barlow,
      and a few others. In fact I'm very embarrassed for not showing up
      and being part of the group, I will start BSL level 1 soon and would
      like to be part of the group if that is okay.
      > It's been difficult these past few months and I became withdrawn
      but I nealise that is not helping my situation at all , only
      making it worse. I am severely deafened due to meningitis (2 years
      ago) and I've been having tests for a cochlear implant at RNET,Grays
      Inn road. I am due for a Cochlear Implant meeting in 3 weeks and I
      would like to know how best to prepare for this meeting. Has anyone
      had an implant and could you please brief me on the pros and cons
      concerning i?. I appreciate any help/advice I may receive.
      > Thanking you in anticipation
      > Kind Regards
      > Paul Mcphoy
      >
      >
      > ---------------------------------
      > Try the all-new Yahoo! Mail . "The New Version is radically
      easier to use" – The Wall Street Journal
      >
      > [Non-text portions of this message have been removed]
      >
    • Steve Wright
      Hi Paul I have a CI and I m planning to go to the 28th October Red Lion meet-up that Saffron referred to. If Saffron doesn t mind me posting the weblink, I
      Message 2 of 13 , Sep 1, 2006
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        Hi Paul

        I have a CI and I'm planning to go to the 28th October Red Lion meet-up that
        Saffron referred to.

        If Saffron doesn't mind me posting the weblink, I could also let you know
        about a CI Yahoo group aimed at UK people. Michael's a member.

        Steve

        On 01/09/06, Saffron <saffron68@...> wrote:
        >
        > Hi Paul,
        >
        > Lovely to see you posting here. I remember you and in fact, I feel
        > embarrassed for not contacting you, as you had given me your email
        > address. The past year has been a bit mad for me and I've got a huge
        > list of things I've been meaning to do for ages and emailing you was
        > one of them!
        >
        > I'm glad you're finally being assessed for an implant. Do you know
        > Jenny from the Cochlear Implant group? Jenny comes to the Red Lion
        > in London quite often. I'm sure Michael will be able to introduce
        > you to a few more people with cochlear implants. Have you been in
        > touch with the LINK centre for deafened people? Do you know of their
        > rehabilitation course for deafened people? If not, do ask me or
        > Michael and we'll give you some info.
        >
        > You're welcome to come back and join us at the Red Lion. We meet
        > there every 3rd Monday of the month and there is also another
        > Saturday gathering on October 28th (like the one you attended).
        >
        > Take care and hopefully see you again soon,
        >
        > Saffron
        >
        > --- In hardofhearinguk@..., paul mcphoy
        >
        > <paulmcphoy@y...> wrote:
        > >
        > > Hi
        > > I'm sorry i missed the get together on Monday and I hope you all
        > had a good time. It's been a while and I've only attended once,
        > acouple months ag,. so I won't be surprised if you don't remember
        > me. I know Mike Samaru , in fact he intoduced me to the group and I
        > remember meeting a few lovely people : Saffron, Nick , Tim Barlow,
        > and a few others. In fact I'm very embarrassed for not showing up
        > and being part of the group, I will start BSL level 1 soon and would
        > like to be part of the group if that is okay.
        > > It's been difficult these past few months and I became withdrawn
        > but I nealise that is not helping my situation at all , only
        > making it worse. I am severely deafened due to meningitis (2 years
        > ago) and I've been having tests for a cochlear implant at RNET,Grays
        > Inn road. I am due for a Cochlear Implant meeting in 3 weeks and I
        > would like to know how best to prepare for this meeting. Has anyone
        > had an implant and could you please brief me on the pros and cons
        > concerning i?. I appreciate any help/advice I may receive.
        > > Thanking you in anticipation
        > > Kind Regards
        > > Paul Mcphoy
        > >
        > >
        > > ---------------------------------
        > > Try the all-new Yahoo! Mail . "The New Version is radically
        > easier to use" � The Wall Street Journal
        > >
        > > [Non-text portions of this message have been removed]
        > >
        >
        >
        >
        >
        >
        >
        >


        [Non-text portions of this message have been removed]
      • Saffron
        Hi Steve, Of course we don t mind you posting a weblink to something so relevant. The only things we don t like are Spam, members advertising their own private
        Message 3 of 13 , Sep 2, 2006
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          Hi Steve,

          Of course we don't mind you posting a weblink to something so
          relevant. The only things we don't like are Spam, members advertising
          their own private services without prior authorisation, or people
          joining JUST to advertise another group. However, if any existing
          member knows of websites that might be of interest to our members,
          please feel free to let us know about them and do also add them to
          our Links pages (no need to check with mods for this). Anyone can add
          a link, not just the moderators.

          Thanks,

          Saffron

          --- In hardofhearinguk@..., "Steve Wright"
          <Steve.M.Wright@g...> wrote:
          >
          > Hi Paul
          >
          > I have a CI and I'm planning to go to the 28th October Red Lion
          meet-up that
          > Saffron referred to.
          >
          > If Saffron doesn't mind me posting the weblink, I could also let
          you know
          > about a CI Yahoo group aimed at UK people. Michael's a member.
          >
          > Steve
          >
          > On 01/09/06, Saffron <saffron68@g...> wrote:
          > >
          > > Hi Paul,
          > >
          > > Lovely to see you posting here. I remember you and in fact, I feel
          > > embarrassed for not contacting you, as you had given me your email
          > > address. The past year has been a bit mad for me and I've got a
          huge
          > > list of things I've been meaning to do for ages and emailing you
          was
          > > one of them!
          > >
          > > I'm glad you're finally being assessed for an implant. Do you know
          > > Jenny from the Cochlear Implant group? Jenny comes to the Red Lion
          > > in London quite often. I'm sure Michael will be able to introduce
          > > you to a few more people with cochlear implants. Have you been in
          > > touch with the LINK centre for deafened people? Do you know of
          their
          > > rehabilitation course for deafened people? If not, do ask me or
          > > Michael and we'll give you some info.
          > >
          > > You're welcome to come back and join us at the Red Lion. We meet
          > > there every 3rd Monday of the month and there is also another
          > > Saturday gathering on October 28th (like the one you attended).
          > >
          > > Take care and hopefully see you again soon,
          > >
          > > Saffron
          > >
          > > --- In hardofhearinguk@..., paul mcphoy
          > >
          > > <paulmcphoy@y...> wrote:
          > > >
          > > > Hi
          > > > I'm sorry i missed the get together on Monday and I hope you
          all
          > > had a good time. It's been a while and I've only attended once,
          > > acouple months ag,. so I won't be surprised if you don't remember
          > > me. I know Mike Samaru , in fact he intoduced me to the group and
          I
          > > remember meeting a few lovely people : Saffron, Nick , Tim
          Barlow,
          > > and a few others. In fact I'm very embarrassed for not showing up
          > > and being part of the group, I will start BSL level 1 soon and
          would
          > > like to be part of the group if that is okay.
          > > > It's been difficult these past few months and I became
          withdrawn
          > > but I nealise that is not helping my situation at all , only
          > > making it worse. I am severely deafened due to meningitis (2
          years
          > > ago) and I've been having tests for a cochlear implant at
          RNET,Grays
          > > Inn road. I am due for a Cochlear Implant meeting in 3 weeks and I
          > > would like to know how best to prepare for this meeting. Has
          anyone
          > > had an implant and could you please brief me on the pros and cons
          > > concerning i?. I appreciate any help/advice I may receive.
          > > > Thanking you in anticipation
          > > > Kind Regards
          > > > Paul Mcphoy
          > > >
          > > >
          > > > ---------------------------------
          > > > Try the all-new Yahoo! Mail . "The New Version is radically
          > > easier to use" – The Wall Street Journal
          > > >
          > > > [Non-text portions of this message have been removed]
          > > >
          > >
          > >
          > >
          > >
          > >
          > >
          > >
          >
          >
          > [Non-text portions of this message have been removed]
          >
        • Steve Wright
          OK, here s the link for the benefit of Paul http://health.groups.yahoo.com/group/ciug2004/ Its fairly active, 188 messages in August. I ve also added the link
          Message 4 of 13 , Sep 2, 2006
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            OK, here's the link for the benefit of Paul

            http://health.groups.yahoo.com/group/ciug2004/

            Its fairly active, 188 messages in August.

            I've also added the link to the "other groups and forums" section of this
            site's links page.

            Steve

            On 02/09/06, Saffron <saffron68@...> wrote:
            >
            > Hi Steve,
            >
            > Of course we don't mind you posting a weblink to something so
            > relevant. The only things we don't like are Spam, members advertising
            > their own private services without prior authorisation, or people
            > joining JUST to advertise another group. However, if any existing
            > member knows of websites that might be of interest to our members,
            > please feel free to let us know about them and do also add them to
            > our Links pages (no need to check with mods for this). Anyone can add
            > a link, not just the moderators.
            >
            > Thanks,
            >
            > Saffron
            >
            > --- In hardofhearinguk@..., "Steve Wright"
            >
            > <Steve.M.Wright@g...> wrote:
            > >
            > > Hi Paul
            > >
            > > I have a CI and I'm planning to go to the 28th October Red Lion
            > meet-up that
            > > Saffron referred to.
            > >
            > > If Saffron doesn't mind me posting the weblink, I could also let
            > you know
            > > about a CI Yahoo group aimed at UK people. Michael's a member.
            > >
            > > Steve
            > >
            > > On 01/09/06, Saffron <saffron68@g...> wrote:
            > > >
            > > > Hi Paul,
            > > >
            > > > Lovely to see you posting here. I remember you and in fact, I feel
            > > > embarrassed for not contacting you, as you had given me your email
            > > > address. The past year has been a bit mad for me and I've got a
            > huge
            > > > list of things I've been meaning to do for ages and emailing you
            > was
            > > > one of them!
            > > >
            > > > I'm glad you're finally being assessed for an implant. Do you know
            > > > Jenny from the Cochlear Implant group? Jenny comes to the Red Lion
            > > > in London quite often. I'm sure Michael will be able to introduce
            > > > you to a few more people with cochlear implants. Have you been in
            > > > touch with the LINK centre for deafened people? Do you know of
            > their
            > > > rehabilitation course for deafened people? If not, do ask me or
            > > > Michael and we'll give you some info.
            > > >
            > > > You're welcome to come back and join us at the Red Lion. We meet
            > > > there every 3rd Monday of the month and there is also another
            > > > Saturday gathering on October 28th (like the one you attended).
            > > >
            > > > Take care and hopefully see you again soon,
            > > >
            > > > Saffron
            > > >
            > > > --- In hardofhearinguk@..., paul mcphoy
            > > >
            > > > <paulmcphoy@y...> wrote:
            > > > >
            > > > > Hi
            > > > > I'm sorry i missed the get together on Monday and I hope you
            > all
            > > > had a good time. It's been a while and I've only attended once,
            > > > acouple months ag,. so I won't be surprised if you don't remember
            > > > me. I know Mike Samaru , in fact he intoduced me to the group and
            > I
            > > > remember meeting a few lovely people : Saffron, Nick , Tim
            > Barlow,
            > > > and a few others. In fact I'm very embarrassed for not showing up
            > > > and being part of the group, I will start BSL level 1 soon and
            > would
            > > > like to be part of the group if that is okay.
            > > > > It's been difficult these past few months and I became
            > withdrawn
            > > > but I nealise that is not helping my situation at all , only
            > > > making it worse. I am severely deafened due to meningitis (2
            > years
            > > > ago) and I've been having tests for a cochlear implant at
            > RNET,Grays
            > > > Inn road. I am due for a Cochlear Implant meeting in 3 weeks and I
            > > > would like to know how best to prepare for this meeting. Has
            > anyone
            > > > had an implant and could you please brief me on the pros and cons
            > > > concerning i?. I appreciate any help/advice I may receive.
            > > > > Thanking you in anticipation
            > > > > Kind Regards
            > > > > Paul Mcphoy
            > > > >
            > > > >
            > > > > ---------------------------------
            > > > > Try the all-new Yahoo! Mail . "The New Version is radically
            > > > easier to use" � The Wall Street Journal
            > > > >
            > > > > [Non-text portions of this message have been removed]
            > > > >
            > > >
            > > >
            > > >
            > > >
            > > >
            > > >
            > > >
            > >
            > >
            > > [Non-text portions of this message have been removed]
            > >
            >
            >
            >
            >
            >
            >
            >


            [Non-text portions of this message have been removed]
          • Olukayode Ajala
            Hi all paul s situation kind off exactly mirrors mine.had meningitis,also two yerars now(april 2004)had appointment at grays inn national deaf hospital,but not
            Message 5 of 13 , Sep 18, 2006
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              Hi all
              paul's situation kind off exactly mirrors mine.had meningitis,also two yerars now(april 2004)had appointment at grays inn national deaf hospital,but not able to receive one

              get withdrawn coz socialisation diff havin lost work and colleagues,even findin church difficult

              diff doin bsl get stressed and withdew

              heard thers a group dont knw if cochlea pple with pple of various capacities]

              findin lipreadin a struggle too

              interview of 9/11 BAD!


              well surely can things get any better here?

              mrk




              ---------------------------------
              Yahoo! Messenger NEW - crystal clear PC to PC calling worldwide with voicemail

              [Non-text portions of this message have been removed]
            • electric259
              Hi Mr K there is always hope think positive yes red lion is on tonight hope to meet you not unless u have another excuse? !! M. ... meningitis,also two yerars
              Message 6 of 13 , Sep 18, 2006
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                Hi Mr K

                there is always hope think positive

                yes red lion is on tonight hope to meet you not unless u have another
                excuse? !!

                M.

                --- In hardofhearinguk@..., Olukayode Ajala
                <mrkstuk@y...> wrote:
                >
                > Hi all
                > paul's situation kind off exactly mirrors mine.had
                meningitis,also two yerars now(april 2004)had appointment at grays
                inn national deaf hospital,but not able to receive one
                >
                > get withdrawn coz socialisation diff havin lost work and
                colleagues,even findin church difficult
                >
                > diff doin bsl get stressed and withdew
                >
                > heard thers a group dont knw if cochlea pple with pple of various
                capacities]
                >
                > findin lipreadin a struggle too
                >
                > interview of 9/11 BAD!
                >
                >
                > well surely can things get any better here?
                >
                > mrk
                >
                >
                >
                >
                > ---------------------------------
                > Yahoo! Messenger NEW - crystal clear PC to PC calling worldwide
                with voicemail
                >
                > [Non-text portions of this message have been removed]
                >
              • Saffron
                Mr K, It was nice meeting you yesterday, but sorry that we didn t get to chat. By the time I sat down and settled, I realised that you had gone. I was looking
                Message 7 of 13 , Sep 19, 2006
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                  Mr K,

                  It was nice meeting you yesterday, but sorry that we didn't get to
                  chat. By the time I sat down and settled, I realised that you had
                  gone. I was looking forward to a chat. I know how difficult it was
                  for you. Like you, I have difficulty lipreading, but I'm lucky that
                  I can still use my residual hearing (with my hearing aids). However,
                  I'm very happy to use other means of communication (pen and paper,
                  laptop, fingerspelling, whatever). I hope you do come back and we
                  can have a nice chat and you can enjoy socialising again.

                  Take care,

                  Saffron

                  --- In hardofhearinguk@..., Olukayode Ajala
                  <mrkstuk@y...> wrote:
                  >
                  > Hi all
                  > paul's situation kind off exactly mirrors mine.had
                  meningitis,also two yerars now(april 2004)had appointment at grays
                  inn national deaf hospital,but not able to receive one
                  >
                  > get withdrawn coz socialisation diff havin lost work and
                  colleagues,even findin church difficult
                  >
                  > diff doin bsl get stressed and withdew
                  >
                  > heard thers a group dont knw if cochlea pple with pple of
                  various capacities]
                  >
                  > findin lipreadin a struggle too
                  >
                  > interview of 9/11 BAD!
                  >
                  >
                  > well surely can things get any better here?
                  >
                  > mrk
                  >
                  >
                  >
                  >
                  > ---------------------------------
                  > Yahoo! Messenger NEW - crystal clear PC to PC calling worldwide
                  with voicemail
                  >
                  > [Non-text portions of this message have been removed]
                  >
                • Olukayode Ajala
                  hI SAFFRON ITS A PITY, BUT MUCH AS WANTED STAYIN HAD TO GET HOME EARLY ITS A BALANCE OF SENSITIVITY WTH WIFE NOT WORKIN YESTERDAY OR WUD HAVE TO LEAVE EARLIER
                  Message 8 of 13 , Sep 19, 2006
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                    hI SAFFRON
                    ITS A PITY, BUT MUCH AS WANTED STAYIN HAD TO GET HOME EARLY

                    ITS A BALANCE OF SENSITIVITY WTH WIFE NOT WORKIN YESTERDAY OR WUD HAVE TO LEAVE EARLIER AS 1HR JOURNEY BACK HOME,PLUS BUS WAITS.
                    DIDNT GET TO KNW EVERYONE CLOSE UP BUT NICE SEEIN U IN FLESH PLUS PINTASHUN
                    OTHERS WHOSE IDS CDNT GET

                    THE STRUGGLE CONTINUES

                    MR K

                    Saffron <saffron68@...> wrote:
                    Mr K,

                    It was nice meeting you yesterday, but sorry that we didn't get to
                    chat. By the time I sat down and settled, I realised that you had
                    gone. I was looking forward to a chat. I know how difficult it was
                    for you. Like you, I have difficulty lipreading, but I'm lucky that
                    I can still use my residual hearing (with my hearing aids). However,
                    I'm very happy to use other means of communication (pen and paper,
                    laptop, fingerspelling, whatever). I hope you do come back and we
                    can have a nice chat and you can enjoy socialising again.

                    Take care,

                    Saffron

                    --- In hardofhearinguk@..., Olukayode Ajala
                    <mrkstuk@y...> wrote:
                    >
                    > Hi all
                    > paul's situation kind off exactly mirrors mine.had
                    meningitis,also two yerars now(april 2004)had appointment at grays
                    inn national deaf hospital,but not able to receive one
                    >
                    > get withdrawn coz socialisation diff havin lost work and
                    colleagues,even findin church difficult
                    >
                    > diff doin bsl get stressed and withdew
                    >
                    > heard thers a group dont knw if cochlea pple with pple of
                    various capacities]
                    >
                    > findin lipreadin a struggle too
                    >
                    > interview of 9/11 BAD!
                    >
                    >
                    > well surely can things get any better here?
                    >
                    > mrk
                    >
                    >
                    >
                    >
                    > ---------------------------------
                    > Yahoo! Messenger NEW - crystal clear PC to PC calling worldwide
                    with voicemail
                    >
                    > [Non-text portions of this message have been removed]
                    >







                    ---------------------------------
                    Yahoo! Messenger NEW - crystal clear PC to PC calling worldwide with voicemail

                    [Non-text portions of this message have been removed]
                  • darren thorman
                    Hi there enjoyed myself at Red Lion - great to get to know more people :-) apologies for the long email but i really feel the urge to help Mr K! Mr K - dont
                    Message 9 of 13 , Sep 19, 2006
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                      Hi there

                      enjoyed myself at Red Lion - great to get to know more people :-)

                      apologies for the long email but i really feel the urge to help Mr K!

                      Mr K - dont worry you're not alone - from being at the Hearing Festival and also at Red Lion last night, I feel in a funny but reassuring way that there seem to be several people with hard of hearing out there who feel isolated, have little confidence in socialising and at work especially around hearing people and/or are wanting to make new friends.

                      Thats pretty much the reason why i went to both events. Indeed, my first Red Lion visit was only in July and i felt better for it when i realised how easy it was to relate to people with the same (i hate saying the word) disability and experiences. Before then i hadnt really got to meet anyone else who is hard of hearing (admittedly it took this long to pluck up the courage) and whilst i love my hearing friends who I have fun with and are able to remain patient with me its not quite the same.

                      As for BSL, I struggled with level 2 when following people as i realised out of habit, i was drawn to the lips and not the hands and i dont think i'll be able to avoid that. I've also being frustrated by other people's attitudes at work - unfortunately i do think thats how society is and we have to try and rise above it even if we dont get what we want - have you read Val and Bunty's book on empowerment? quite inspiring.

                      My point is - we know exactly how you feel - try and relax more - and keep coming along - your confidence will grow and you're amongst people who clearly are friendly and keen to include new people. As well as Red Lion (wish it was fortnightly at least!), there are other deaf meets out there aswell as website chats - keep trying new places until you feel comfortable - i've tried loads and it is exasperating but worth it once you get there.

                      Of course, i'm good at dishing out advice...as for practising what i preach.... ;)

                      hope this helps Mr K

                      Darren :-)





                      Saffron <saffron68@...> wrote:
                      Mr K,

                      It was nice meeting you yesterday, but sorry that we didn't get to
                      chat. By the time I sat down and settled, I realised that you had
                      gone. I was looking forward to a chat. I know how difficult it was
                      for you. Like you, I have difficulty lipreading, but I'm lucky that
                      I can still use my residual hearing (with my hearing aids). However,
                      I'm very happy to use other means of communication (pen and paper,
                      laptop, fingerspelling, whatever). I hope you do come back and we
                      can have a nice chat and you can enjoy socialising again.

                      Take care,

                      Saffron

                      --- In hardofhearinguk@..., Olukayode Ajala
                      <mrkstuk@y...> wrote:
                      >
                      > Hi all
                      > paul's situation kind off exactly mirrors mine.had
                      meningitis,also two yerars now(april 2004)had appointment at grays
                      inn national deaf hospital,but not able to receive one
                      >
                      > get withdrawn coz socialisation diff havin lost work and
                      colleagues,even findin church difficult
                      >
                      > diff doin bsl get stressed and withdew
                      >
                      > heard thers a group dont knw if cochlea pple with pple of
                      various capacities]
                      >
                      > findin lipreadin a struggle too
                      >
                      > interview of 9/11 BAD!
                      >
                      >
                      > well surely can things get any better here?
                      >
                      > mrk
                      >
                      >
                      >
                      >
                      > ---------------------------------
                      > Yahoo! Messenger NEW - crystal clear PC to PC calling worldwide
                      with voicemail
                      >
                      > [Non-text portions of this message have been removed]
                      >







                      ---------------------------------
                      Try the all-new Yahoo! Mail . "The New Version is radically easier to use" – The Wall Street Journal

                      [Non-text portions of this message have been removed]
                    • Olukayode Ajala
                      the power of numbers quite true in the politics of campaignin and awareness were u the guy livin in amersham yeas true tryin gradually gainuing confidence not
                      Message 10 of 13 , Sep 20, 2006
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                        the power of numbers

                        quite true in the politics of campaignin and awareness
                        were u the guy livin in amersham yeas true tryin gradually gainuing confidence not so much as gettin to meet but of course communicational deficiency that happens in groups for person very articulate by nature maybe u gv me rundown of some of thse grps

                        try bein spiritual but even in church the same barriers exist tired of tryin to ask for special favor as really love the place and wife/kids also too

                        any way thanks

                        it goes on still jobles and anxious coz yr end again

                        mr k




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